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#MayoClinicNeuroChat on Brain Tumors

Posted by @toffenbacher in Brain Tumor, Fri, Jan 27 at 11:36am CDT

Join us Friday, February 3, 9:30 a.m. CT (7:30 a.m. PT / 10:30 a.m. ET) right here on
Connect for a live Q&A with Dr. Bernard Bendok, neurosurgeon, and Dr. Sujay Vora, radiation oncologist, at Mayo Clinic in Arizona.

Learn more about:

Post your questions below for Dr. Bendok and Dr. Vora. Sign up for the live event to receive email reminders.

lindalb

Posted by @lindalb, Sat, Jan 28 at 12:23pm CDT

I am registered. My questions for the Drs
1). Do you have a interventional Neuro radiologist that has experience doing Meningioma brain tumors embolization as stand alone treatment for tumors that are too dangerous for surgery or radiation. My tumor location is cerebello pontine angel right side extends along the foramen jugulars towards caudal andvparcisl growth in sinusvsigmoideus on right side. My tumor was embolized (95% of feeders) in 2012 at University hospital in Zurich by a interventional Neuro radiologist. Tumor shrunk 20% and no new growth. prof Valavanis has been very successful at this I am watch & wait if tumor starts to grow or new feeders developed I will need tumor embolization again. I now live in Ft Lauderdale permanently so I need to find a Dr in USA with experience at this. Seems not well known here in USA or I just have not found right Drs? Can you help me. Thank you.

colleenyoung

Posted by @colleenyoung, Sat, Jan 28 at 12:34pm CDT

Thank you for your question Linda. While the doctors won't be able to speak to the specifics of your case directly, we can ask them your fundamental question:
"Is tumor embolization used as a stand alone treatment for meningiomas? Is this done at Mayo Clinic?"

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lindalb

Posted by @lindalb, Fri, Feb 3 at 10:11am CDT

My Question was not answered. I really would like to know if Mayo Clinic does have a Interventional Neuro Radiologist that has experience with brain tumor embolization as a stand alone treatment and if so the name of the Dr and how many procedures of this type he does per year. Can some one answer this question for me? THank You!

colleenyoung

Posted by @colleenyoung, Fri, Feb 3 at 11:41am CDT

Hi @lindalb,
We are following up with questions that didn't get answered during the live event and will post the answers here.

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lindalb

Posted by @lindalb, Sat, Feb 4 at 10:33pm CDT

When do you think I can expect an answer that my questions? Thank you

colleenyoung

Posted by @colleenyoung, Sun, Feb 5 at 7:48am CDT

Linda, we'll post the answers early this week.

Lindajean likes this
colleenyoung

Posted by @colleenyoung, Tue, Feb 14 at 11:01am CDT

Hi @lindalb, Drs Bendok and Vora spoke to your question about embolization as a standalone treatment at minute 21:00. I paraphrase here:
"Embolization is used as an adjunct tool in a treatment plan. But on rare situations where embolization can be used on its own."

lindalb

Posted by @lindalb, Wed, Feb 15 at 5:37pm CDT

I had two questions, the second was if you have a interventional neuro radiologist who is experienced doing embolization as a stand alone treatment? Or do you not do this. I do understand that more often embolization is used as a pre treatment for vascular brain tumors before surgery. My question does Mayo have a interventional neuro radiologist with experience doing embolization of tumors that are not options for surgery or radiation? If so how much experience does he/she have with this? Thank You.

colleenyoung

Posted by @colleenyoung, Fri, Mar 17 at 10:11am CDT

Hi @lindalb,
I would encourage you to call Mayo Clinic http://mayocl.in/1mtmR63 for more specific answers to your questions. We do have physicians in these categories and you can ask about them specifically.

NEURORADIOLOGY – INTERVENTIONAL
Harry J. Cloft, M.D., Ph.D.
David F. Kallmes, M.D.
Guiseppe Lanzino, M.D., (Neurosurgery)

NEUROINTERVENTIONAL SURGERY
Bernard R. Bendok, M.D.
Brian W. Chong, M.D.
Chandan Krishna, M.D.

NEURORADIOLOGY INTERVENTIONAL
Benjamin L. Brown, M.D., (Neurosurgery)
David A. Miller, M.D., (Joint appointment–Radiology)
Rabih G. Tawk, M.D., (Neurosurgery)

pennie

Posted by @pennie, Tue, Jan 31 at 11:53am CDT

I would like to join

colleenyoung

Posted by @colleenyoung, Tue, Jan 31 at 12:07pm CDT

Great Pennie,
All you have to do is return to this page Fri. Feb 3 at 9:30 Central Time. (Find the time in your timezone http://www.thetimezoneconverter.com/) The video will play at the top of the page.
If you would like to get an email reminder the day before and 1 hour before, sign up here: http://mayocl.in/2jzocXW

Do you have a question you would like to ask the doctors?

colleenyoung

Posted by @colleenyoung, Wed, Feb 1 at 6:26pm CDT

Hi @07ram @amkaloha @pegorr @lindajean @barbarabx @eleanor1931seminara1931 @carma @dianerock @markelia @cleahy85 @steveninkc @jkenser @cynaburst @kariulrich @upartist @jasonkwellls @parker80138 @user_che69bc66 @heatherdeuel @dawn_giacabazi @rosesareredmylove2016 @dmedina71 @torino1qm @shellsk24

I'd like to invite you to join us Friday, February 3, 9:30 a.m. CT (7:30 a.m. PT / 10:30 a.m. ET) right here on Connect for a live Q&A about brain tumors with Dr. Bernard Bendok, neurosurgeon, and Dr. Sujay Vora, radiation oncologist, at Mayo Clinic in Arizona.

rosesareredmylove2016

Posted by @rosesareredmylove2016, Wed, Feb 1 at 8:41pm CDT

Hey Coleen, I got your e mail about the tumor session Friday. Unfortunately I will be working those hours and cannot attend. Any chance I could view a recording later,???

Lindajean likes this
colleenyoung

Posted by @colleenyoung, Wed, Feb 1 at 8:46pm CDT

Yes, indeed. The session will be recorded and available to view anytime on this page.

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cleahy85

Posted by @cleahy85, Wed, Feb 1 at 8:54pm CDT

Hi! I would like to know if either doctors have had experience with treating polycystic astrocytomas in adults? I would also like to ask Doctor Vora if he has treated a third ventricle tumor? Would he use proton radiation?

colleenyoung

Posted by @colleenyoung, Tue, Feb 14 at 10:41am CDT

@cleahy85 Drs Vora and Bendok addressed your question at minute 25:00. I paraphrase here:

"Each case is individual. Some polycystic astrocytomas can be cured by surgery. When the tumor cannot be completely removed, the proton radiation can be considered in some situations. It is important to study the patient's entire story and all imaging to determine the best treatment plan."

irishel

Posted by @irishel, Thu, Feb 2 at 9:56am CDT

I have a 3.5 cm meningioma with mass effect on my brainstem and sits 1mm from my optic nerve. This was discovered as a result of trigeminal nerve pain in my jaw. I underwent 6 weeks of IMRT 5 years ago. My question is what if any long term effects from IMRT are there--and what if anything can be done to avoid them?

colleenyoung

Posted by @colleenyoung, Tue, Feb 14 at 10:46am CDT

Hi @irishel,
Here are some resources about brain radiation side effects
- Oncolink http://bit.ly/2lMl78j
- Cancer Research UK http://bit.ly/2lg01lG

What long term side effects, if any, have you noticed?

chuck58201

Posted by @chuck58201, Fri, Feb 3 at 9:26am CDT

Thank you all for taking time out of your day to do this. I was diagnosed in May of 2015 and feel like I'm swimming in an ocean without direction.

colleenyoung

Posted by @colleenyoung, Fri, Feb 3 at 9:33am CDT

Welcome Chuck. Do you see the video at the top of the page?

chuck58201

Posted by @chuck58201, Fri, Feb 3 at 9:51am CDT

Yes my wife and I are listening/watching it

chuck58201

Posted by @chuck58201, Fri, Feb 3 at 9:52am CDT

I have had Radiation and Chemo and am on Temodar now. Should I come to the Mayo for a second opinion?

colleenyoung

Posted by @colleenyoung, Fri, Feb 3 at 11:32am CDT

Hi Chuck,
If you would like to seek a second opinion from Mayo Clinic, please contact the campus of your choice using the contact information on this page http://mayocl.in/2jGPdO7

What type of tumor do you have? I'd like to connect you with other members.

lindajean

Posted by @lindajean, Fri, Feb 3 at 12:21pm CDT

Hello everyone, I am on Hawaii time and therefore missed the live event. Since @colleenyoung said we could ask ? off the live feed , I would like to ask what are the health risks of contrast for those of us with long term watch and wait tumors that have MRI's with Contrast on a yearly basis for many years?

colleenyoung

Posted by @colleenyoung, Tue, Feb 14 at 10:58am CDT

Hi @lindajean and @lindalb,
This study reviews the "Safe Use of Contrast Media: What the Radiologist Needs to Know" http://pubs.rsna.org/doi/full/10.1148/rg.2015150033

Have you spoken to your radiologist about possible long-term side effects?

lindalb

Posted by @lindalb, Fri, Feb 3 at 1:02pm CDT

Very good question I'm a long term watch and wait tumor too do very interested in this answer

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dmedina71

Posted by @dmedina71, Fri, Feb 3 at 1:14pm CDT

Hi, can you tell me if their is any new procedure,or treatment for patients that have PITUITARY Adenoma. My husband was diagnosed, but he is not ready for surgery.

kariulrich

Posted by @kariulrich, Fri, Feb 3 at 8:21pm CDT

That is a great question, There was Q&A on Pituitary Tumors with Dr. Bendok, Dr. Cook and Dr. Porter: https://www.facebook.com/MayoClinic/videos/10154230883407517/

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