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- Risk factors
Drs. Wetjen and Ho answer questions live during the event.
Corticobasal syndrome do you have a medication for it?
I've had trigeminal neuralgia for 15 yrs.Does any one the intense pain it causes in the face? Medication is a must to keep the electric shock like pain away. Does any one know what I experience?
I have Chiari Malformation and had 3 brain surgeries where the patch was used. The patch leaked twice. I did not suffer from hydrocephalus so no shunt was needed. I am now having severe inner cranial pressure and drainage of spinal fluid from my nose at times. Will a shunt help resolve this? I now have lupus that manifested after my surgeries so I am dealing with that as well as the chiari. Thank you for listening!
Welcome to Connect, and thank you for introducing yourself to the Brain & Nervous system group.
I'd like you to meet a few members who are familiar with Chiari Malformation. @johnnie @anorwalk @trouse @sweetthing111059 @spoiledheather @ginabee @staceybeyer @ashleybryant @david33 @maidmarion @vbrunette @mkell13 @scotthinojosa @ajgray @donnak69 @smann68 @cynaburst @cnoethe, do you have any insight that might help @dink75?
Deana, what explanation or suggestions has your care team offered, for the complications you mention?
I am interested in congenital overgrowth of the right mandible possibly causing Eustachian tube obstruction, leading to significant chronic ear infections. I am currently treated with continual ear tubes on that side, but the infections are getting frequent again and less responsive to antibiotics. These infections make me quite sick. I am a 60 year old female with a long history of repeated ruptures of the right ear drum. Should this be further evaluated, and are there other treatment options out there?
Good morning Colleen (connect director). I apologize, but I was just hoping to have bony growth question maybe addressed during the Upcoming Friday lecture by the Mayo team. I am just putting my feelers out there for possible new treatment options for my ear, and I am no spring chicken. I do have a good Mayo Doc right now, but I have never put my ear on the radar with him. This current infection has been rolling since before Christmas, so I am considering asking him to look at it now. It's a very big trip for me to take, so not a quick decision. You got my attention though, with the links, so thank you! I appreciate it.
The Video Q&A with Dr. Nicholas Wetjenand Dr. Mai-Lan Ho will be starting in 5 minutes. The video window will appear at the top of this page.
I wanted to thank you for always responding to my questions. You have been extremely helpful and treated me like a person during this scary, unknown time. I am over the moon right now. 1st meeting you and all the others affiliated. Now a support group! If you have any ideas, literature, or anything you think I may need please pass the work on
I thoroughly enjoyed Nikki's story and so much of it mirrored mine. Thank you recommending it.