Mayo seeking volunteers: Chemo-Induced Peripheral Neuropathy study

Posted by Colleen Young, Connect Director @colleenyoung, Aug 11 12:14pm

Mayo Clinic is seeking volunteers (patient + family caregiver) for a research study on Chemo-Induced Peripheral Neuropathy (CIPN).

The purpose of this study is to assess the impact of a family caregiver massage technique that can help cancer survivors with CIPN. Symptoms of CIPN include: Numbness/pain/tingling in the fingers, toes, hands, or feet.

You may be eligible to participate if you:

Are 18+ years of age
Have been treated with certain kinds of chemotherapy for any type of cancer at least 6 months ago
Have moderate to severe symptoms of CIPN

Participation involves you and a family member (spouse, intimate partner, friend, or other family member) being randomly assigned to one of three groups. Two groups will be assigned to use one of two different massage techniques via an online platform. The third group will receive standard care and is able to participate in the massage program after completing the study. All three groups will provide us with weekly reports and self-reporting of CIPN symptoms.

The functions will be assessed using surveys at enrollment, six weeks, and twelve weeks. Study participation is a total of 12 weeks. You will be compensated for your time spent in this study (up to $240).

No in-person visits are required. Massage techniques are provided online.
You do not need to be an existing Mayo patient to participate.

For more information, contact a member of the study team at (904) 953-5102 or (904) 953-8855.

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

kathy_sheffield | @kathy_sheffield | Aug 21 11:16am

In reply to @rashida "@colleenyoung are Canadians eligible?" + (show)

Thank you for your question. At this time we cannot enroll people residing in Canada or anywhere outside of the US per NIH regulations.

Thank you.

Ann Dunshee | @anndunshee | Aug 18 8:19am

In reply to @gdj "I'd volunteer. I have significant neuropathy in my feet. Take Lyrica. Have tried other treatments. Like..." + (show)

Good morning Mr. Jensen,

Thank you for your interest. I will be happy to discuss the study in detail with you.
If you would like to give me a call today (904 953 5102) - we can review the requirements and details.
Thank you
Ann
dunshee.ann@mayo.edu

Ann Dunshee | @anndunshee | Aug 18 7:31am

In reply to @murray3 "This appears to be a very worthwhile study sponsored by the Mayo Clinic. I had chemo-induced..." + (show)

Good morning,

Unfortunately, since you’re not experiencing neuropathy symptoms, you wouldn’t be eligible for this particular study. That said, it’s wonderful to hear that other treatments have been working well for you!
Ann, Clinical Research Coordinator

kathan55 | @kathan55 | Aug 15 3:30pm

In reply to @kathan55 "I read this and it’s very interesting! I’ve had a few massages, but can’t afford them..." + (show)

I got a call from the Mayo Clinic regarding the massage therapy!! I told the lady I’m in the middle of moving, but I’m very interested. Hopefully I’ll be settled soon and she said to call her back.
They teach you and a caregiver how to do the massage therapy. I’m not sure if my daughter’s hands are strong enough to do it, but eventually, I’ll talk to her about it. I was really pleased to hear back from them.

aardvark2118 | @aardvark2118 | Aug 15 1:13pm

In reply to @aardvark2118 "Thank you. Just called and left a message. I would love to participate but just don’t..." + (show)

Just spoke to coordinator and you need to have a caregiver or someone to do the massage three times a week, 15-20 minutes. Not an option fir me

Ann Dunshee | @anndunshee | Aug 15 12:58pm

In reply to @aardvark2118 "Wish there was a self massage component for those without a caregiver" + (show)

Good afternoon.

Unfortunately, at this time this study requires two people. The person providing the massage can be any trusted friend or family member as long as they are able to complete this 12-week study.

I am not aware of any single-person massage technique study.

If you have any other questions, please reach out to me 904-953-5102, dunshee.ann@mayo.edu
Thank you. Ann

aardvark2118 | @aardvark2118 | Aug 15 11:22am

In reply to @colleenyoung "@rashida @aardvark2118 and @murray3, please call study coordinator to confirm eligibility for the study. 1 (904)..." + (show)

Thank you. Just called and left a message. I would love to participate but just don’t have a caregiver

Colleen Young, Connect Director | @colleenyoung | Aug 15 9:22am

@rashida @aardvark2118 and @murray3, please call study coordinator to confirm eligibility for the study. 1 (904) 953-5102

kathan55 | @kathan55 | Aug 14 3:43pm

I read this and it’s very interesting! I’ve had a few massages, but can’t afford them on a regular basis.
I called the number above and reached the voicemail. I left a message and hope they call me back so I can get more information.