Mayo Pain Rehab Program: Signing off and my comeback afterwards
Hello to all my friends on Connect. Today I began the pain rehabilitation program. It was advised that I sign off for now and work on myself exclusively. My best wishes to each and every one of you while I'm away. It is my hope that once I have completed the program and return, I am able to share positive experiences to help all of you in some way, shape or form.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@rwinney There had to be a door that opened. There had to be evidence of an impressive opportunity to embrace and incorporate your discoveries into a time of self-compassion and care. Your consistent, positive contributions to Connect, your kind, and nonjudgemental embrace of members, and your ability to pick up the pieces and start over again when necessary are standout evidence of the quality of your character.
I have appreciated being your protege for a year or more. I am honored to have been the recipient of your trust and have treasured your genuine feedback. Just remember…you do hold the key, you are worth every moment of your success, and you deserve to laugh and play as you enjoy a life with new potential and a peaceful, quiet body.
May you have happiness and the causes of happiness.
@rwinney I'm so happy for your post, Rachel. You have helped so many here on Connect and I'm glad to hear that your experience at Mayo has helped you now!
Wishing you well and thanks again for all of the great support and information you provided here on Connect. It was great to have you with us!
Hi Rachel, it is so good to hear from you!!! I'm glad your experience at Mayo was beneficial and wish you all the best as you continue the hard work to improve your symptoms!
I would love to hear from you about your progress and how you are doing every now and then. I completely understand why you feel it's in your best interest to step away from the blog/s and only check in from time to time. I get so far behind on the emails/posts/replies that I had 109 emails in one group and 40-50 in another!! I stopped liking most of the posts as I just don't feel good enough to do everything I want to.
It's has been so good to know you here and I will continue to uphold you in prayer in every way that you may experience the comfort and peace of God through Christ which surpasses human understanding (Philippians 4:7). And let's not forget about relief! And victory!
Wamest of all wishes, in Christ's unfathomable love, Sunnyflower
Hello my friends, Happy New Year! I have missed you and hope you are all holding your own. Since coming home from Mayo PRC I have been working hard at implementing the many lessons I learned, becoming physically and mentally stronger, welcoming my daughter home from college, aiding my husband after knee replacement surgery and managing the holidays. Keeping it all together has been a challenge but, I have relied on the tools I learned at PRC to help me keep focused. I am in a much better place than I was last year at this time.
One of the first things we learn in the program is about pain behaviors. This applies to anyone who lives with chronic pain not, just who have Central Sensitization Syndrome. Pain behaviors are anything you do or say that reminds you of pain. Neuroplasticity plays a big role as many of you already understand. Unfortunately, Mayo Connect was a pain behavior and I was advised to disconnect while at rehab. In the beginning, It was very difficult omitting pain behaviors…everything from hats, sunglasses, lumbar pillow, heat, ice, medications, certain clothing items, irregular sleeping patterns/routines, excessive supplements, rubbing sore body parts, limping, talking about pain… the list goes on. I felt like I was being told everything I ever did was wrong but, I began to learn after many cognitive behavioral lectures. In my best interest, it was wise for me to detach from Connect. I am a person who wants to help everyone and by doing that, I provoke my symptoms both mentally and physically. I get too invested and don't know when or how to not let things consume me. This is why I have stayed away. I have been giving thought as to how I can minimally stay involved in a healthy, positive manor. An important PRC principle is to ask yourself the WHY behind the WHAT.
I have 3 of the 6 months under my belt that PRC asks each student to give themselves in order to hopefully achieve the maximum benefits of following the programs guidelines. I struggle, it is not easy. I work hard at managing my symptoms without medications. Some important tools for this is adhering to a daily structured schedule, timed moderation of activities, physical fitness designed to prevent deconditioning, omitting pain behaviors, humor, distraction, mindfulness, grace, forgiveness, structured sleep schedule, healthy diet, diaphragmatic breathing, scheduled rest breaks, acceptance. I do not know what more can change for me but, I continue to stick to the plan in hopes for the best possible outcome. I would be lost if I had not attended Mayo PRC as for the past 7 years I have spun my wheels looking for answers, Dr. hopped, been emotionally and physically distressed, taken many undesired medications and received multiple tests, injections and procedures all of which provoked and fueled my Central Sensitization. I never knew what was happening to me, nor did my Drs. I highly recommend Mayo PRC. It was life changing for me. If interested, you can apply online or by phone, submit your medical history and then be interviewed by a Mayo Dr. to see if you qualify.
Many of you have questions and I'd love to answer each and every one but, it gets too overwhelming. I'm sorry, I hope you understand. I will check in again at some point but, until then know that I think of you often and wish joy, strength, courage and hope for you all. Happy 2021!!!
Rachel @rwinney, So good to hear from you and that things are going well. Good for you on disconnecting from Connect, you are job number one and it's important that you take care of yourself first! Thank you for sharing how the Pain Rehabilitation Center helped you.
Happy New Year and wishing a better 2021 for all!!
@rwinney Awwww, Rachel! So happy to see you here for a short visit. You just keep doing what you are doing. It really sounds like Mayo aims to have you live a normal life! Anything connected to entrenching pain must be eliminated. Fool that brain of yours! Let it know who is in charge! Where there is a Willy, there is a way!!!! Love to you, LoriRenee1
I've been thinking about you the past several days, so I'm gladdened by your update. To use Paul's words, though a bit out of context, "press on toward the prize".
Awwwww. I loved every word. I will read this again. I will not impose on your regimen. You will leave no stone unturned. Love, goodness and encouragement.
May you be filled with joy in 2021 and live every day without pain. Chris
Thank you so much, Rachel ! Peggy
This is such a revelation, Rachel. Yes, eliminate things which would take you into the realm of pain. If you eliminate the trappings, like Lori said, you fool the brain into thinking you are just a normal person, or as close to one as you can get. It's so brilliant and yet seems obvious having just now heard it. I'll read this post to Linda tomorrow. She'll be very interested, as well as happy to hear from you.
OK, I get that you will continue to keep Connect at arms length. I can't help but be curious though at how you managed to go off your meds cold turkey at the Mayo PRC (as I assume they had you do) or close to cold turkey since it was only a 3 week program? How did you manage what must have been horrendous pain during the travel to Jacksonville, the transition to hotel life and the comings and goings (and being at) the 8 hours long daily regimen? I know how much pain you were in before you went based on your own descriptions. OK, I understand I might not get an answer here, and that is fine, but I wish you SO MUCH GOOD LUCK going forward! You are loved here and supported. My best to you always, Hank