I’m new to this website but it seems awesome!
I have been totally ridiculously sick for a few months now out of nowhere. I was a healthy 19 year old 4 months ago and now I can barely get out of bed some days. And nobody knows what’s wrong!
My symptoms are terrible heartburn and regurgitation that’s getting worse, joint pain, back spasms that are extremely disabling, muscle pain, nerve pain sometimes burning or pinching, Raynauds, swollen hands and feet, what I think and my GP believes to be dysautonomia (I can’t stand for very long or I have difficulty breathing and get lightheaded) I also have tachycardia that led to me being hospitalized to no avail. except to get heart medication to slow my heart rate. I’m also photosensitive, have little pin prick red dots absolutely everywhere, my legs get very purple sometimes, chronic cough and apparently a lung obstruction which leaves me constantly out of breath.
I think that’s the gyst of the bad symptoms haha but alas nobody knows what’s wrong.
Now I’m finding out my spleen and liver are swollen.
As far as tests go my ANA was 1:320 and I tested positive for autoimmune hepatitis but my liver enzymes are normal.
Been waiting months for an appointment with a new rheumatologist and I’ve just about seen every doctor I can.
So far the things they’ve been throwing around are CREST or another form of scleroderma, potentially also Lupus, autoimmune hepatitis and Dysautonomia.
Anybody have experience?
I’ve been eating a very clean vegan diet with lots of fresh organic produce and barely any sugar. I take anti inflammatory supplements and vitamins.
I don’t know what to do!
Advice with relief or on how to get a diagnosis would be much appreciated. I’m new to all this and am very overwhelmed.
Liked by John, Volunteer Mentor