Lyme Disease

Posted by sundance6 @sundance6, Dec 30, 2018

I am new to this group. I have been trying to get a diagnosis for Lyme Disease for the last six months from my doctors in my area. Since I live in the desert they say there is no way I could have it! Yet all the research I have done says you could have been infecteded many years ago and because of stress or other things it can finally apperer. It started six months ago with a sever headache then I slept for 36 of 48 hours. Had the stiff neck, joint pain, fatigue and all of the rest of the symptoms. One last symptom that was strange that I just finally found in an on line paper that said one of th symptoms was Jaw Pain or toothaches that are not related to actual tooth decay or infection. I just had a total X-Ray done by my dentist two weeks ago and there is nothing there!
I guess waht I am asking is for Help! My medical provider in my area has done every test they can on every part of my body! For thousands of Dollars! And have yet to find anything!They refuse to even consider Lyme Disease or West Nile. Yes I did have the Blood test, but it was after I had been on to regimines of Dococyclines.
Could someone please give me some help!
Friends in other states can't believe the medical care I have gotten!!
Sundance

Liked by friendz4

Low Dose Naltrexone. It is a compounded I think. I get my mailed from a Pharmacy in another cirty than I live in.

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@sundance6 stay warm was from PA now Ca cold here 60 haha

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I am sorry to not have gotten back to you. Have been ill the last 2 weeks. Holidays take a toll.

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@kellye5

Low Dose Naltrexone. It is a compounded I think. I get my mailed from a Pharmacy in another cirty than I live in.

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@kelly5 does this help with pain I have low back pain?

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Low dose naltrexone is a compounded drug. My rheumatologist prescribes it for me. I have heard that not many insurance companies cover it so I consider myself lucky because mine does. Also some compounding pharmacies charge more for the LDN than others so shop around. The compounding pharmacy (a small mom and pop pharmacy) closest to me charged me $40 and a compounding pharmacy associated with a university only charged my insurance company since I had already met my out or pocket max.

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@leilanis

Low dose naltrexone is a compounded drug. My rheumatologist prescribes it for me. I have heard that not many insurance companies cover it so I consider myself lucky because mine does. Also some compounding pharmacies charge more for the LDN than others so shop around. The compounding pharmacy (a small mom and pop pharmacy) closest to me charged me $40 and a compounding pharmacy associated with a university only charged my insurance company since I had already met my out or pocket max.

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@leilanis Thanks I,ll have to talk with my rheumatologist then

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@lioness

@sundance6 stay warm was from PA now Ca cold here 60 haha

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Funny! My daughter and Grandson live on the New Mexico/Colorado border. This is the first day they have gotten above 17 in the past week. They still have 2' of snow on the ground. Be we won't complain, it is the first measurable snow they have had in a year!
Sundance

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@leilanis

Low dose naltrexone is a compounded drug. My rheumatologist prescribes it for me. I have heard that not many insurance companies cover it so I consider myself lucky because mine does. Also some compounding pharmacies charge more for the LDN than others so shop around. The compounding pharmacy (a small mom and pop pharmacy) closest to me charged me $40 and a compounding pharmacy associated with a university only charged my insurance company since I had already met my out or pocket max.

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Will check with the LLMD Dr. when I talk to him next week. I have a couple of pharmacys close to me that are friends. Thanks, Sundance

Liked by kellye5

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@sundance6

Funny! My daughter and Grandson live on the New Mexico/Colorado border. This is the first day they have gotten above 17 in the past week. They still have 2' of snow on the ground. Be we won't complain, it is the first measurable snow they have had in a year!
Sundance

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@sundance Im waiting to hear what the snowpack is in the Sierra,s for our rain next year.

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@lioness

@kelly5 does this help with pain I have low back pain?

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Yes. It helps with pain all over. Many Lyme patients are on it.

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@lioness

@sundance Im waiting to hear what the snowpack is in the Sierra,s for our rain next year.

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From what I saw on the weather channel last night the Sierra's were getting hit! All of ours, San Juan's and the Rocky's are finally in the pattern also! Sundance

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@sundance6

From what I saw on the weather channel last night the Sierra's were getting hit! All of ours, San Juan's and the Rocky's are finally in the pattern also! Sundance

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@sundance6 Good news yea we got 3/4 inch rain last night so this is good we are to get rain Wed and Fri this week when it snows back east we get rain but not enough I,ve gone through some dry times out here . Thanks for the update come on snow

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So many Doctors have no idea of this disease, mine is one of them. They try to treat a test instead of a diagnosis and treatment of the diagnosis. Better yet, if they even thinnk it could be Lyme they shhould treat it right away and rule it out. I know they are worried about over use of antibiotics but the test for Llyme are scethy at best. The elsa and WB are 50 50. Many have negative result but find lime much later. My Doctor was one who now a year later tells me she does not know much about Lyme. Really, a year and you just now admit you dont have knowlege of it so you did not treat it. Further more the evidence of the rash is proof enough to treat for it. The only reason she is treating me know is because I embarrased her and researchrd more than her. I hope the antibiotics work and we can move forward and my conditions are not permanent. Get treated and rule it out, pretty cheap medice to ensure its not Lyme.

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@kellye5

Yes. It helps with pain all over. Many Lyme patients are on it.

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@kelleye5 Thanks I'm going to talk to rheumatologist about this then

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