Low grade brain stem glioma

Posted by nigelfernandez5 @nigelfernandez5, Sep 24, 2018

Anybody with reoccurring brainstem glioma. Mine involves the lower pons extending to c2 in the cervical cord. I have a very long complicated history dating back to 1995. ( age of 5. Now 28)

Hi @nigelfernandez5, welcome to Connect. I'd like to bring @kennyb725 into this discussion. Kenny posted this discussion about
– ataxia and brainstem lesion in the pons https://connect.mayoclinic.org/discussion/ataxia-and-brainstem-lesion-in-the-pons

Nigel, it sounds like you've probably had multiple surgeries and procedures. Are you experiencing a recurrence at the moment? How are you doing today?

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