I am interested in joining a support group, even if only by chat. A week ago, I had surgery to remove part of my bladder among other things. I have a rare cnacer, urachal andenocarcinoma of the bladder. This is a rare cancer in the US but only happens 1 in 5 million. It was rather scary as not as much is known about this cancer. This is my second cancer. My first was last year…I had uterine cancer. Once I had a hysterectomy, I became cancer free. This is a whole new cancer, diagnosed 1 year and 2 days later than the first. To top it all off, I am the youngest of three girls in my family. All three children have cancer. We lost my oldest sister after a 6 year battle with breast cancer, in May 2011. I was diagnosed in Sept 2010 and my middle sister was diagnosed in December 2010. All three of my parents children have cancer and they have already lost one child. I also have a 19 year old son and I worry about him, physically and emotionally!
Though I have supports, as those with cancer know, those well meaning supporters don’t understand what is truly like because they don’t have cancer. I need to talk with others that understand.