Looking for support for Bladder Cancer

Posted by Roxy37 @roxy37, Oct 23, 2011

I am interested in joining a support group, even if only by chat. A week ago, I had surgery to remove part of my bladder among other things. I have a rare cnacer, urachal andenocarcinoma of the bladder. This is a rare cancer in the US but only happens 1 in 5 million. It was rather scary as not as much is known about this cancer. This is my second cancer. My first was last year…I had uterine cancer. Once I had a hysterectomy, I became cancer free. This is a whole new cancer, diagnosed 1 year and 2 days later than the first. To top it all off, I am the youngest of three girls in my family. All three children have cancer. We lost my oldest sister after a 6 year battle with breast cancer, in May 2011. I was diagnosed in Sept 2010 and my middle sister was diagnosed in December 2010. All three of my parents children have cancer and they have already lost one child. I also have a 19 year old son and I worry about him, physically and emotionally!

Though I have supports, as those with cancer know, those well meaning supporters don’t understand what is truly like because they don’t have cancer. I need to talk with others that understand.

Thanks!

@roxie43

My paternal aunt passed away from cancer and it was difficult for the entire family because she was such a wonderful person. Towards the end it was so sad. No one deserves to suffer like that. A friend passed away from brain cancer and all he thought he suffered from were migraines.
I’m so sorry that this horrible disease has been so prevalent in your family. I dont blame you for worrying about your child. For now, try to take care of yourself because you have to properly recover. You will be in my prayers…..
God bless
Rox

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From one Rox to another….thank you so much for your kind words and support. I’m so sorry for your family as well. Cancer is such a terrible disease….so life changing in EVERY way! The fears of cancer returning are overwhelming!

Thanks so much!
Roxanne

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@roxie43

My paternal aunt passed away from cancer and it was difficult for the entire family because she was such a wonderful person. Towards the end it was so sad. No one deserves to suffer like that. A friend passed away from brain cancer and all he thought he suffered from were migraines.
I’m so sorry that this horrible disease has been so prevalent in your family. I dont blame you for worrying about your child. For now, try to take care of yourself because you have to properly recover. You will be in my prayers…..
God bless
Rox

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Hang in there and have faith that all will be ok. I wish a cure is found soon because cancer is a horrible disease.
God bless you and yours,
Rox

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@jberry1

I know what you are going through. My parents had 4 girls. 3 of us had and have breast cancer. My sister who was 2 years older than me passed away from cancer. My dad passed away 6 months from her passing of lung cancer. My siblings that are left 3 girls including myseldf and my twin brother all have kidney falure also. Docs just shake there heads when asking about our medical history. This is my 3 round with breast cancer. Currently I am cancer free. Don”t ever loose hope. Miracles happen all the time. I am not suppose to be here now. I always say things could be worse or there are so many people with worse problems than me Prayer helps alot!.

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You are amazing and strong and I totally agree that having hope and perseverance is powerful. So sorry for all your trials and may God bless you with continued remission.
Sincerely,
Rox

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@jeannettew

Sorry to hear about you and your family and the battle with cancer. My heart goes out to you. I didn’t realize how much cancer there was in my family until I was diagnosed in March wtih breast cancer. I also have two sisters. So far I am the only one with cancer and I hope it stays that way. My daughter is in her 30’s and I worry about her. I share your fear for your children. You are right about others not understanding. They just can’t help it. I didn’t understand either until I had it. I had melonoma surgery last summer, 2010 and then breast cancer this year. It is very scary. I have always had checkups and mammograms but this didn’t show up on a mammogram. It when from 1/4 inch on an ultrasound to 3 inches on an MRI. Very scary. I have just finished treatment, chemo and radiation, and I am now waiting to get my strength back. It has been almost two weeks so I am getting restless. I have no energy. I hope you have a Happy Halloween. This year has really gone by fast. When you are living from one treatment to another, time flies.

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Hello
I read your post as well as other’s and it’s amazing the things human beings go through in life. It’s ok to cry. I was raised thinking that crying was a bad thing but as an adult when life’s challenges become so overwhelming I too cry and you know what? It’s not a sign of weaknes but instead a healthy way to cope with all that one is experiencing.
You are all in my prayers
Rox

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I was diagnosed with colon cancer at 38 and since family history of cancer and my age they referred me to a geneologist. That Dr did tissue samples of my tumor and it came back with a abnormality and now im being tested for Lynch Syndrome. I am the youngest of 5 girls and the 2 one to have cancer. As Im waiting for my results all I can think about is my kids, grandbaby, husband and my sisters. If i have Lynch it puts my kids and sibilings at a 50/50 chance of also having it. Just hang in there and everybody who fought, is fighting or lost the battle to this horrible thing called cancer is in my prayers!

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hi. how r u feeling

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