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Audrey
@akogut

Posts: 10
Joined: Jul 01, 2016

Looking for help with connection of PLLA anchors in shoulder causing

Posted by @akogut, Jul 1, 2016

I had found a out of USA medical research article of how bioabsorbable anchors used in shoulder surgery can be responsible for igf-1 levels in bloodstream (insulin like growth hormone 1) I had thrown it out cause I could not get one specialist to look at it and research the study. I have had 4 shoulder surgeries on my left shoulder and each one the same Type of Athrex anchor was used. I am in pain 24/7 especially when moving my arm up in front of me. I feel sharpness and impingement but also Mri shows edema inflammation but my surgeon doesn’t want remove anchor with unsure it is just that causing all the pain. I even had bicep tenodisis so not only shoulder hurting but upper arm bicep area. I am so lost I just what this anchors replaced with titanium ones since the bioabsorbable ones been replaced with bioabsorbable same kind and I would not have the complications after surgery but three weeks late all the pain and impingement starts again. I do hyper heal as well I had seen endocrinologist for some reason tested my igf-1 and each test of it increases. I am 48 at 5’7″ and my weight from a year ago was 164 and has climbed to 194 and I am on synthroid due to hypothyroidism which I was put on last Fall and right now stable. I had been but on years ago wrongly Metoformin 1500 mg which last Fall found out previous endo false diagnosed me with risk of pre diabetes. I am off of Metoformin. I also was recently tested for glucose tolerance with measurements of growth hormone which came back normal. In March Inhad a mri with out contrast wrongly ordered to scan my pituitary gland which found a possible biegn adenoma on left side pituitary size 2.5 mm but in April the correct Mir on pituitary gland with and without contrast was done but then this showed it wasn’t on the left but on my right side of my pituitary gland and 2.2 mm. I am suppose to have another scan in Oct but was told has nothing to do with my shoulder as well last test measuring my igf-1 was 393 when just a month before it was 264. I am scare and confused and alone. I get told go to Mayo etc but I have cost my mother Thousands of dollars going to one specialist to another and they don’t continue researching why things going wrong in me. Please I need help and I need my shoulder specialist to have a team of dedicated researchers help him stop the pain I am in as well help my primary Doctor get me the medical care to help me get my life back. Like I said I am a 48 year old woman who never had children last January my periods stopped I am so hurt I lost chance have children. I was told it was young for me to stop having periods. I also last FAll had precancerous polyps removed from colon with no family history of it which makes me think that the metformin caused it as well diverticulitis and hiatus hernia

REPLY

Hi @akogut, and welcome to Connect. Thanks for sharing your journey with us, and even though it has not been easy, we applaud for posting here. I’m tagging a few members who have discussed their experiences with severe shoulder pain – @ccorrconro, @success101, @kenl and @walden0228.

I would also encourage you to check out the Chronic Pain group (https://connect.mayoclinic.org/group/pain/) and the Bones, Joints and Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/), as there may be some discussions that are relevant to your pain. Have you found any methods to relieve some of the pain?

Lastly, if you decide you would like to see a specialist at Mayo Clinic, here’s the link you can use to request an appointment: http://mayocl.in/1mtmR63.

@alysebrunella

Hi @akogut, and welcome to Connect. Thanks for sharing your journey with us, and even though it has not been easy, we applaud for posting here. I’m tagging a few members who have discussed their experiences with severe shoulder pain – @ccorrconro, @success101, @kenl and @walden0228.

I would also encourage you to check out the Chronic Pain group (https://connect.mayoclinic.org/group/pain/) and the Bones, Joints and Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/), as there may be some discussions that are relevant to your pain. Have you found any methods to relieve some of the pain?

Lastly, if you decide you would like to see a specialist at Mayo Clinic, here’s the link you can use to request an appointment: http://mayocl.in/1mtmR63.

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I don’t think my insurance would cover me. It is a long flight and then if no one can help me I will be out of monies. I am on disability so stressful

Please Mayo clinic can you please forward this message to your research team.

@akogut

Please Mayo clinic can you please forward this message to your research team.

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I really need assistance 11 years in pain and don’t know what to do or go to. Please I want my life back

@akogut

Please Mayo clinic can you please forward this message to your research team.

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VHave you been to orthopedics
Or rehab? Do you need a new
Shoulder. It is a horrible pain.
I had rotator cuff surgery
15 years ago. Now have
Bursitis in most joints.
Heat and ice alternate

Yes under care with Orthopaedist he and I looking for a lab on Long Island, Ny or NYC that can test me if I have PLLA antigens since anchors have been replace 4 times with same kind of anchor only out the USA like Greece has done this research and I lost article I had found a year ago that say PLLA bioabsorbable anchor can increase insulin like growth hormone-1 but I accidental threw it out and now can’t find it. I have done therapy and I can feel inpingement we don’t know if the inflammation is causing inpingement or reverse. I can’t just jump on a plane to Mayo cause I don’t think my Worker’s comp would cover me. No less Mayo not telling me if they work with NY WORKER’s comp insurance as well my personal insurance

@akogut

Please Mayo clinic can you please forward this message to your research team.

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I messaged below.

@alysebrunella

Hi @akogut, and welcome to Connect. Thanks for sharing your journey with us, and even though it has not been easy, we applaud for posting here. I’m tagging a few members who have discussed their experiences with severe shoulder pain – @ccorrconro, @success101, @kenl and @walden0228.

I would also encourage you to check out the Chronic Pain group (https://connect.mayoclinic.org/group/pain/) and the Bones, Joints and Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/), as there may be some discussions that are relevant to your pain. Have you found any methods to relieve some of the pain?

Lastly, if you decide you would like to see a specialist at Mayo Clinic, here’s the link you can use to request an appointment: http://mayocl.in/1mtmR63.

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I really wish there were medical peopl on here from mayo to help contact patient’s doctors or can direct where to go not everyone can jump on a plane

@akogut. Wow what a history. Ver sorry. Sure wish to help your pain.
I have been suffering from shoulder pain for 2 years now. Exhausted all testing modalities. I to went to reseach articles for help. I have os acromial he, a torn pectoral minor. I have been seen by my local md’s & mayo clinic. But only 2% don’t heal or need intervention. The surgical intervention posses the possiblity of cause more pain than now. (Really 🙁 ???) Well of cause I didn’t take that info very well. Mayo clinic helped me find this amazing physical therapist who has helped me find the right combination for pain releif with no medication. It still cause me discomfort but I can finally lay down and sleep. I no longer feel as if someone has is stredding my bicept and reaching in my chest and tearing my chest apart one muscle and tendon at a time. For me the key is stretch and manual therapy rather than the exercise part. I sure wish I could package Adam up and send him to you. He would total get you on the right track. 😉 but of course I would want him back by 730am Mon, Wed. Fri.

@alysebrunella

Hi @akogut, and welcome to Connect. Thanks for sharing your journey with us, and even though it has not been easy, we applaud for posting here. I’m tagging a few members who have discussed their experiences with severe shoulder pain – @ccorrconro, @success101, @kenl and @walden0228.

I would also encourage you to check out the Chronic Pain group (https://connect.mayoclinic.org/group/pain/) and the Bones, Joints and Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/), as there may be some discussions that are relevant to your pain. Have you found any methods to relieve some of the pain?

Lastly, if you decide you would like to see a specialist at Mayo Clinic, here’s the link you can use to request an appointment: http://mayocl.in/1mtmR63.

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Hi Audrey,
Mayo Clinic Connect is an online community where you can share your experiences and find support from other patients. I’m glad you’ve connected with @success101 and @dawn_giacabazi.

Should you wish to have your medical case reviewed by Mayo Clinic doctors, please call the contact numbers on this webpage http://mayocl.in/1mtmR63. You may also wish to look into the Mayo Clinic Care Network http://www.mayoclinic.org/about-mayo-clinic/care-network “Mayo Clinic Care Network members share Mayo Clinic’s patient-centered culture and commitment to improving the delivery of health care. Potential members go through a thorough evaluation, including a review process that includes overview and site visits.” See the list of care network members to find a care center closer to you. As Alyse mentioned, call the numbers at Mayo Clinic here http://mayocl.in/1mtmR63 They will help you get the care you’re looking for.

Mayo should offer assistance over the phone prior to them expecting me to jump on a plane without them speaking to me or my specialist on Long Island

I agree. Some sort of counselling.
I dislike pain medication.
My daughter,has me on some oils.
They help some. At least smell
nice.
I think, too, PT is my best bet.
The shoulder pain does not go away.
I do put heat on it at night.
Helps some.
Success101
And,this is arthritis. After having it scraped
15 years ago,and rotator cuff surgery.

@akogut

Mayo should offer assistance over the phone prior to them expecting me to jump on a plane without them speaking to me or my specialist on Long Island

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Audrey, Mayo Clinic does offer assistance over the phone to help assess your health issues, medical records, care history, etc. before you invest in travelling to one of our campuses. I urge you to call Mayo Clinic at one of our 3 campuses – Minnesota, Florida or Arizona – and talk to one of our representatives to find out what options are available for you. Click this link to find the contact numbers for all 3 campuses http://mayocl.in/1mtmR63

@akogut

Mayo should offer assistance over the phone prior to them expecting me to jump on a plane without them speaking to me or my specialist on Long Island

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So I can send over medical for someone to go over before investing flying over there. I am so lost and been in pain for 11 years tossed from one specialist to another and not on pain meds for shoulder no pain meds at all. I feel totally alone on top of it my IGF-1 keeps rising it is now 393 and I am 48 years old. Please

@akogut

Mayo should offer assistance over the phone prior to them expecting me to jump on a plane without them speaking to me or my specialist on Long Island

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Yes, Audrey. Please call the numbers provided by clicking this link http://mayocl.in/1mtmR63 They will walk you through the process over the phone.

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