Long standing symptoms and nothing on CT scan: Does it happen often?

Posted by hopethereisnothing @hopethereisnothing, May 4 11:27am

Hello everyone. Iam new here and don't really know if this is the right place for my question, but I am literally having the most difficult times in my life. I think I have PC and still waiting for tests for it.
I am a previously healthy 39 yo female, I don't smoke or drink and have no family history of any cancer.
I started to feel unwell in October 2022, first symptom was menopause-like hot flushes, followed by feelig gassy and flatulent. I then thought this must be my hormones messing up with my gut. In November I got some abdominal pain, increased frequency of stools (occasionally loose but no color or smell change or floating ..etc) and new unusual burping.
I was thinking of colon cancer, had some tests, ultrasound and CT with contrast, all clear.
I then had colonoscopy and gastroscoy, all clear.
I had mild symptoms since January to mid-March when I started to have mid-back pain, just where a bra strap sits (The typical location of PC pain).
I got terrified, went to a gastroenterologist and had (poorly done) ultrasound which showed nothing.
Almost 3 weeks ago, I started to have severe upper abdominal pain refered to the back, mainly after eating (also typical for PC) and noticed that I lost weight +/- 10 kg since October.
I had a new CT scan with IV contrast tumor marker, amylase and lipase blood tests, surprisingly ALL were just NORMAL.
I took second and third opinions regarding the CT scan from other consultant radiologists, all said there was nothing suspicious!!!
I wish I could believe them but I have symptoms that can't be explained by anything else. I am now waiting for an MRI scan and I am dreading as i think it will defenitely show the cancer.
The question is : did anyone have PC that showed severe and long standing symptoms and did not show on CT scan ? and if so, how was it diagnosed ?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

I am going to have EUS tomorrow as the (hopefully) last step to rule out PC as I have classic symptoms but all previous tests were inconclusive.
I am so scared. I also had a newly discovered, enlarging (liver lesion) seen by US, CT and MRI and I am scared it could be a secondary tumor.
I hope they find nothing sinister and that this nightmare ends soon. Don't really know what I will do if it turned out to be cancer.😭😭😭😭

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@hopethereisnothing

I am going to have EUS tomorrow as the (hopefully) last step to rule out PC as I have classic symptoms but all previous tests were inconclusive.
I am so scared. I also had a newly discovered, enlarging (liver lesion) seen by US, CT and MRI and I am scared it could be a secondary tumor.
I hope they find nothing sinister and that this nightmare ends soon. Don't really know what I will do if it turned out to be cancer.😭😭😭😭

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I hope it is nothing also. Hope you get nothing but good news.

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@jenray

I hope it is nothing also. Hope you get nothing but good news.

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EUS done, normal pancreas. Thank God.

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@hopethereisnothing

EUS done, normal pancreas. Thank God.

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hopethereisnothing,

So, given then multiple tests and your continuing concerns, are you convinced there is no pancreatic cancer?

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@mayoconnectuser1

hopethereisnothing,

So, given then multiple tests and your continuing concerns, are you convinced there is no pancreatic cancer?

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I think I am now reassured. I still wonder what causes my mysterious symptoms, but that is much better than worrying about cancer.

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@hopethereisnothing

EUS done, normal pancreas. Thank God.

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WOOOOOOOOOOOHOOOOOOOOO!!!!!!!!!! CONGRATS!!!!!!!!!!

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@jenray

WOOOOOOOOOOOHOOOOOOOOO!!!!!!!!!! CONGRATS!!!!!!!!!!

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😍Thank you so much

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