Long standing symptoms and nothing on CT scan: Does it happen often?
Hello everyone. Iam new here and don't really know if this is the right place for my question, but I am literally having the most difficult times in my life. I think I have PC and still waiting for tests for it.
I am a previously healthy 39 yo female, I don't smoke or drink and have no family history of any cancer.
I started to feel unwell in October 2022, first symptom was menopause-like hot flushes, followed by feelig gassy and flatulent. I then thought this must be my hormones messing up with my gut. In November I got some abdominal pain, increased frequency of stools (occasionally loose but no color or smell change or floating ..etc) and new unusual burping.
I was thinking of colon cancer, had some tests, ultrasound and CT with contrast, all clear.
I then had colonoscopy and gastroscoy, all clear.
I had mild symptoms since January to mid-March when I started to have mid-back pain, just where a bra strap sits (The typical location of PC pain).
I got terrified, went to a gastroenterologist and had (poorly done) ultrasound which showed nothing.
Almost 3 weeks ago, I started to have severe upper abdominal pain refered to the back, mainly after eating (also typical for PC) and noticed that I lost weight +/- 10 kg since October.
I had a new CT scan with IV contrast tumor marker, amylase and lipase blood tests, surprisingly ALL were just NORMAL.
I took second and third opinions regarding the CT scan from other consultant radiologists, all said there was nothing suspicious!!!
I wish I could believe them but I have symptoms that can't be explained by anything else. I am now waiting for an MRI scan and I am dreading as i think it will defenitely show the cancer.
The question is : did anyone have PC that showed severe and long standing symptoms and did not show on CT scan ? and if so, how was it diagnosed ?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
I am going to have EUS tomorrow as the (hopefully) last step to rule out PC as I have classic symptoms but all previous tests were inconclusive.
I am so scared. I also had a newly discovered, enlarging (liver lesion) seen by US, CT and MRI and I am scared it could be a secondary tumor.
I hope they find nothing sinister and that this nightmare ends soon. Don't really know what I will do if it turned out to be cancer.😭😭😭😭
I hope it is nothing also. Hope you get nothing but good news.
EUS done, normal pancreas. Thank God.
So, given then multiple tests and your continuing concerns, are you convinced there is no pancreatic cancer?
I think I am now reassured. I still wonder what causes my mysterious symptoms, but that is much better than worrying about cancer.
😍Thank you so much