Living with Neuropathy - Welcome to the group

There was no help with pain while using the cannabis nor afterwards. The pharmacist had other regimens I could have tried....various combinations of the key cannabis parts----and also forms of it to use----but I opted out at that point. She was most helpful with suggesting new medicines for treating the nausea and constipation also. However at that point after nine meds and acupuncture I was ready to stop and live with my pain. I now have a power chair and am able to be around more in my senior housing complex. i am ninety years old and doctors felt that could have had affect on side problems.

Many of you have met @artscaping here on Connect. Today, @artscaping was featured in Connect Member Spotlights. Member Spotlights feature interviews with fellow Connect members so you can learn more about members you’ve connected with and some you haven’t met yet. Read all the spotlights https://connect.mayoclinic.org/page/about-connect/tab/newsfeed/.

Here’s @artscaping's: Finding energy and purpose by giving back: meet @artscaping, https://mayocl.in/2AVIJlb

Check out @artscaping's story and let her know and others what it has meant for you to have these connections on Connect.

Thank you @lisalucier, I am guided by the support I have received from all of the mentors. I am inspired by the sharing and caring efforts of every member. What an amazing community!

@fonda , thank you for sharing your experience with Cannabis. I’ve tried the oil but didn’t help me ether, wishing you a pain free day dear !♥️

I tried the cannabis "CBD Oil" and got no relief. Peggy

When I am standing still, my feet becomes greyish and reddish and In PAIN. When I start walking or put up my feet in upright position, I feel better, the REDDISH AND greyish disappear. I have this problem for 2 years..Having HOT BODY, ESPECIALLY MY BACK.

@dannydomingo, Me, too. There are some online explanations.....I think it just comes with the SFN territory. Sometimes my hands also become reddish/purple. I also notice very white areas at the bottom of my toes and even fingers. There are quite a few possible diagnoses on the Internet. It depends on temperature/what you are doing when the color change happens and what you do that normalizes it. Try dancing....maybe that would help. Kind of joking but it might be worth a try. Some sources do say to see a physician quickly, especially when you also have wounds that don’t heal. Be safe and well. Chris

Hi @dannydomingo, I would like welcome you to Connect along with @artscaping and other members here on Connect. Here is one of the easiest to understand explanations of small fiber peripheral neuropathy I've seen. It's by Matthew B. Jensen. Assistant Professor of Neurology, University of Wisconsin:

Have you found anything that helps you feel better?

John

Thanks for the video. I wonder how this applies to large bundle neuropathy.

He has a lot of other YouTube videos on Neurology that may address that. I haven't watched them all yet.

Matthew B. Jensen series of short videos -- Introduction to Neurology: Level 1
-- https://www.youtube.com/channel/UCJaXGRxxjnF2mvLiOFmmHLQ