Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy group.

@suzirtist

Neuropathy and Acupucture. Has anyone had success with it?

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I had 20 treatments with no success.

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@suzirtist

Neuropathy and Acupucture. Has anyone had success with it?

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No success with accupuncture, but have had more success at improving balance from chiropractor.

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Has anyone tried Vicks rub to relieve neuropathy?

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@swanny58

Has anyone tried Vicks rub to relieve neuropathy?

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I use it daily as it takes the edge off. My symptoms are mostly numbness and tingling. First I massage in Aquaphor cream followed by the Vicks. The massage helps me, too.

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@swanny58

Has anyone tried Vicks rub to relieve neuropathy?

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I use a spray called Little Miracle (faster pain relief). It is a convenient spray (. an Herbal Formula, Natural Menthol), Made in the USA. I spray it on at night and get fast relief and it helps me fall asleep. It probably has the same effect as Vicks. I am not trying to sell this product, For all i know it may just be having a placebo effect on me. I mention it because you shared how Vicks, a menthol type product has helped you. Information for the product can be obtained at http://www.pantexinc.com

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@swanny58

Has anyone tried Vicks rub to relieve neuropathy?

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Yes actually. Lathered on soles of my feet. It does give some relief

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@swanny58

Has anyone tried Vicks rub to relieve neuropathy?

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I’ve tried a bunch of different creams and lotions but none really helped. Recently wash the caspian cream and I couldn’t wash it off fast enough! What helps me is and lotion and just massaging my feet before bed and before pitting socks on.

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@swanny58

Has anyone tried Vicks rub to relieve neuropathy?

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Hello @swanny58. You will notice that I have moved your post into a larger discussion on Neuropathy so that you may more easily connect with members who may also have tried Vick's for relief of neuropathy symptoms.

Have you tried it? Has it worked for you?

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HI !! I post as iputtman. I am an 81 year old male from Burlington, NC and have had ideopathic PN for about i5 years. I am pretty much past the pain and tingling but numbness continues and progresses. I play golf about 3 times per week and my balance has been significantly becoming worse. I have visited a neurologist at Duke University and have had several tests but nothing seems to be able to reverse or slow down the malady. What a truly EVIL disease !!

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@1puttman

HI !! I post as iputtman. I am an 81 year old male from Burlington, NC and have had ideopathic PN for about i5 years. I am pretty much past the pain and tingling but numbness continues and progresses. I play golf about 3 times per week and my balance has been significantly becoming worse. I have visited a neurologist at Duke University and have had several tests but nothing seems to be able to reverse or slow down the malady. What a truly EVIL disease !!

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Welcome @1puttman, I also have idiopathic small fiber PN. It started in my toes in my 50's as near as I can remember and gradually worked it's way up to just below the knees before I bothered getting a diagnosis. You are right. It is a truly evil disease. I've never had the pain with my neuropathy but do have the numbness. I posted my neuropathy journey in Member Neuropathy Journey Stories: What's Yours? discussion here – https://connect.mayoclinic.org/comment/310341/

I think exercise and staying active is part of helping a person with their new "normal" when they have neuropathy. It's good that you are able to stay active.

Have you tried any alternative therapies, treatments or supplements to see if they help some?

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@johnbishop

Welcome @1puttman, I also have idiopathic small fiber PN. It started in my toes in my 50's as near as I can remember and gradually worked it's way up to just below the knees before I bothered getting a diagnosis. You are right. It is a truly evil disease. I've never had the pain with my neuropathy but do have the numbness. I posted my neuropathy journey in Member Neuropathy Journey Stories: What's Yours? discussion here – https://connect.mayoclinic.org/comment/310341/

I think exercise and staying active is part of helping a person with their new "normal" when they have neuropathy. It's good that you are able to stay active.

Have you tried any alternative therapies, treatments or supplements to see if they help some?

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Yes, upon advice of my neurologist, i take alpha lipoic acid 600mg 2/day, tumeric 1500mg 2/day. I'm not really sure that it helps but it's not that expensive and i'm willing to take the chance. Other than that, i just try to stay as active as possible. We have a chiropractor in town that advertises that he can cure pn but i think that is just to harvest $$.

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@almighty

9 weeks ago I had my hB1ac levels come in at 74, this was up from previous from 44. I immediately started a low Kcal diet of 800 Kcals a day with 4 litres of water. 8 weeks later I was tested again. My new level was 45, I was taken off all medication officially by the diabetic nurse. (I had already stopped taking them 4 weeks earlier)
9 weeks and 3 days after the first test I have lost 48 lbs and have more energy than ever. I still have the damaged nerves in my feet but none of the inflammation that caused it and the pain I was getting every evening. I can sleep uninterrupted.

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Hi, I'm new so unsure of protocols here–but what is Kcals?
I have neuropathy in my feet–just from balls of feet through toes. Not totally numb so endochronologist has never been too worried about it, but leg swells and limits my movement, and currently one foot is dusky–much darker than the other foot. Didn't even know there were different types of neuropathy.
I'm interested in slowing progress but without drugs–I control my pre-diabetes with diet and herbs.

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