Lightheaded/ Feel like I am Dying 30YO Male
Wondering if anyone has some advice for this feeling, I have been experiencing over the past 4 years, now I have symptoms 24/7. From the moment I wake up, I feel like my head is extremely light, like I am going to pass out/ in a dream like state. The feeling is so overwhelming I can barely see, I have intense brain fog and feel unsteady on my feet. There a glimpse of times when I do feel ‘a bit’ normal, an afternoon here and there. Although my line of ‘normal’ has been immensely blurred. I have been to, 3 neurologists, 1 neurosurgeon, 1 ears nose throat specialist, 3 psychiatrists and countless GPs. I have had a bloodwork, CT done, and an MRI done. The MRI showed an retro cerebellar arachnoid cyst, measuring 7.8 x 3.7 cm and there is mild impression upon the vermis. In which the neurosurgeon believe is actually just a large cisterna magna, conflicting opinions which even complicates things more. They believe I have vestibular migraines, but the only symptom I have ever experienced is this contestant lightheaded feeling. All medication for migraine has never helped this symptom at all. The only thing that takes it away ‘sometimes’ is lorazepam or clonazepam. I’m really at my breaking point of waking up every day like this and confused as to where to turn to next, I feel like something is wrong. Like my brain in dying.
Meds I have tried/ am currently on:
Every triptan out there
Every SRRI/SNRI out there basically
Botox- 1 session so far
Occipital nerve block- 1 session so far
All the typical vitamins for migraines
Blood tests have been normal: slightly high lymphocytes, Urea and Iron saturation
I sleep 8-9 hours a night, eat very healthy, and work out daily.
Any suggestions on tests or meds to bring to my dr would be greatly appreciated!