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Lichen Sclerosus

Posted by @julievansickle in Cancer, Oct 15, 2012

I have been struggling with this problem for several years now, started shortly after my complete hysterectomy about 11 years ago. I take daily Premarin and Estratest to keep hormone levels up. Once diagnosed I was given 0.1% Betamethasone Valerate cream and later Premarin vaginal cream was added. This still is not controlling it. Sex it getting increasingly more painful and the itching and skin damage continues. I am at my whits end! Is there ANYTHING else I can do? The skin down there has almost all disappeared, and what is left I fear if this isn't controlled soon will cause other issues that I don't even want to think about! Scary! If anyone has any other treatment suggestions please let me know.

Tags: Cancer, Skin Conditions, womens health, lichen sclerosus


Posted by @katzee, Oct 24, 2012

My dr prescribed hydrocortisone 1%. I've only been on it since yesterday so don't have a lot of feedback other than it acted quickly to relieve the pain.


Posted by @katzee, Nov 4, 2012

Feeling a whole lot better

Julie Vansickle likes this

Posted by @julievansickle, Nov 5, 2012

Hydrocortisone is just for itching isn't it? Glad it's helping, but please keep an eye on the skin down there as it will start to get white areas where the skin folds are and the skin will thin in these areas that crack and bleed upon being stretched. Then forms a scar tissue that won't stretch either. Eventually this spreads and as it does the original damaged skin just kinda disappears and eventually the loose skin folds will disappear because of this process and the hairline is drawn down closer and closer to the vaginal opening. Sorry I don't want to scare ya, but I wasn't all that worried about it in he beginning as long as the itching was controlled and now here I am, years of pain and struggling with it. Worst thing is my hubby has to be really careful so I don't tare during sex and still afterwards I may bleed a little and OMGosh! When I pee after sex it burns so bad because the skin was damaged. Burning worse than any burning I have ever felt! Comparable to rubbing alcohol on an open wound! I pray yours will be kept under control and not get to the point mine is. And I pray I fine more help controlling this SOON. So thankful I found this site :0)


Posted by @fernanddia, Oct 28, 2012

Ask for a higher strength Betamethasone. And probaly need to use it every night.


Posted by @julievansickle, Nov 5, 2012

I will talk to my dr about it as I have to go see him every 3 months to keep an eye on it. I have been applying the ointment 2xs a day and Premarin cream every night now for about 6 months. Sick and tired of this!


Posted by @kam2005, Oct 30, 2012

I was diagnosed with this about 4 years ago by a physician who specialized in this problem. I was given clobetsol proprionate (ointment) .05% to be applied daily for 2 months then I was weaned down to once weekly, unless a flare up occurred. I was told I'd need to use it weekly for the rest of my life. I had 90% relief within 24 hours and after 2 months I didn't feel like I had any symptoms at all. I also continue to use it. Once I was given a refill in the form of cream; not ointment and found it did not work as well... I believe because it did not stay on as well. You might talk to your MD about trying this. Also, I found this article on PUB MED. It refers to a psoriasis study but interesting that the clobetsol work better. Best wishes to you.

The response of psoriasis to betamethasone valerate and clobetasol propionate. A 6-month controlled study.
Corbett MF.

Twelve patients with symmetrical psoriasis were studied for a period of 6 months. Clobetasol propionate 0-05% ointment was applied to the lesions on one side and betamethasone valerate 0-1% ointment to those on the other side as a double-blind controlled trial of these two treatments. All the patients showed a relative improvement on the side treated with clobetasol propionate. Clobetasol propionate-treated lesions tended to clear for longer than the corresponding betamethasone valerate treated lesions. The condition of five of the patients was better at the end of the study period than at the beginning.


Posted by @julievansickle, Nov 5, 2012

Wonderful! I will talk to my dr about it as I have to go see him every 3 months to keep an eye on it. I have been applying the ointment 2xs a day and Premarin cream every night now for about 6 months. Sick and tired of this!


Posted by @julievansickle, Nov 7, 2012

I went to see him yesterday & he perscribed the clobetsol proprionate for me to try. keeping my fingers crossed :o) Thanks for the info

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