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Let's Combat Pain

Posted by @leonardozangani in Just Want to Talk, Jul 12, 2011

We would like to introduce LET's COMBAT PAIN, our non-profit initiative to promote the bridging among individuals who have as a relevant interest the study and care of patients with chronic pain.

Our intent is to develop a worldwide information exchange network, to include all the relevant stakeholders such as health care professionals, researchers, patients and families, and benefactors with the goal of promoting exchange of opinions and knowledge as well fostering support toward pain education and research for development and innovation.

Tags: Other, chronic pain

Iraku and DrewR like this

Posted by @mizvikkz, Feb 1, 2012

How does a 64 yr old man, with numerous health issues, including severe leg neuropathy, a failed kidney transplant, numerous skin cancers that have been removed, and in constant pain explain to his dr that he would like to have help to keep his pain under control but not be given all these psychotic drugs that are supposed to work for neuropathy, but all they do is make you depressed and DO NOT STOP THE PAIN!! Can someone tell me a dr that will listen and help me with my pain???


Posted by @powerofpositive, Feb 1, 2012

Good Luck. My husband has been experiencing pain in his legs and feet for years. The pain clinic gave him only brief relief, not sustaining. The meds caused horrible side effects. Currently he is utilizing Apitherepy and has had some success with pain relief. I am utilizing it also for RA and Sjogrens and it is working well. It is not your typical treatment in this contry but is utilized world wide. I worked with a physician years ago that utilized it in her practice and saw first had how well it years later I can attest to the effectiveness of this treatment....something to look into...and it's affordable to boot.


Posted by @mkohli, May 8, 2012

Hello, I don't know if you have found help yet or where your at but about 2 years ago I found a doctor who really cares and will listen to you. I have been dealing with pain in my low back since 2002. I'm in Ohio reply back and I will get the info to you if you would like. I was to the point to where all I did was lay around tosing and turning all day and with his help I am now getting stuff done. You take care and try to have a good day.


Posted by @joanneo, May 9, 2012

Thank you so very much for your kindness. I am in fl. And currently am under the care of a pain specialist. I had unsuccessful back surgery which left me with leg neuropathy and nerve damage. He is a very kind man I feel very safe in his care. Enough about me. What did they do for your pain if I am not being too nosy.


Posted by @joanneo, May 9, 2012

Everyone owns their own pain but unfortunately because you cannot see it many healthcare professionals dismiss it or think an individual is drug seeking. Primarily it is subjective but has tow objective symptoms. Ie. B/P. Heartracing. Or site pain. One therapy does not work for all trial and error. We. Need more pain specialists.


Posted by @lizkat, May 9, 2012

who will advocate for us now?


Posted by @joanneo, May 9, 2012

LizKat that was an awesome link. I guess it all comes down to money in Florida where I live they already have guidelines in place for anyone taking pain medication with drug testing before you see the doctor and every visit henceforth. Paperwork has to be in place for the insurance co if it is to be covered. The hell with the patient that what it seems like but if a government official had pain than it probably would be a different story. I am not opposed to testing etc I am opposed to who will decide if if. I I. Have p a I n


Posted by @blueshouse, Jun 30, 2012

Saying page cannot be found


Posted by @lizkat, Jun 1, 2012

How do you deal with your pharmacy?

ARGH!!! I take hydrocodone for my pain, the doc raised the dose last month and I made a special trip to the pharmacy to let them know about the increase, they were cool and filled it correctly. This month not so. As it is addictive, they will only authorize one month at a time, requiring the pharmacy to fax in a request for the meds each month. I open my meds and find that they gave me a lower dosage and less pills? It was my initial dosage of 2 years ago!

So, who F'ed up? the pharmacy or the docs office? Who do I call in the morning? Doc or pharm? and I know they both will look at this as if I am drug seeking. Maybe I would get better care if got my drugs from the dealer across the street?

This gets me so mad! Do they F with brittle diabetics insulin dosages?
What can be done about this? It has to stop. healthcare institutions need to get serious about managing chronic pain without making us feel like drug addicts.



Posted by @blueshouse, Jun 30, 2012



Posted by @hopingforacure, Jun 3, 2012

Had a cervical surgery in January. Thought that would be the cure. Instead I now have chronic pain. I'm still grappling with how this could have happened and how I can live with it and still have a life. I've taken a leave of absence from work, because I was hardly there. I fear that I will never be able to return to my job and I love working.

I so much need the encouragement and support of others who are dealing with this. I've been given a number of medications that help the pain, but then cause my mind to be confused and they make my body really sick. I don't want to spend the rest of my life in drugged misery. I feel helpless, hopeless.

I'm worried about how a lifetime of this will effect my family. I have tried massage which feels great while it's happening, but the next day I'm wracked with pain. Water therapy helps some, but certainly not to the extent that I can lead any kind of normal life. I will be trying acupuncture next. If that doesn't work, I don't know what options I have left. I don't want to be a burden to my loved ones.

Is there any research being done on this disease? There has to be something that activates it. Would love to hear from anyone that is dealing with this. Also would like to hear if anyone is able to deal with this in a way that doesn't involve being constantly drugged.


Posted by @bjg, Jun 4, 2012

I'm now trying a gluten free diet because some have said it helps with inflammation. Since this is new to me, I'm hoping to get input from others on here. Have you ever been tested for Lymes? Mine showed no lymes but another Dr. said he could tell without testing again and put me on an antibiotic. Hopefully something will help.


Posted by @hopingforacure, Jun 4, 2012

I'm currently taking Celebrex twice daily and Alprazolam at night to help me sleep. Even with that help, I sleep little. I have searing, burning pain throughout my body with muscle aches and numbness in my hands. It never stops which is wearing me down. 5 steady months with no relief. I can't imagine going on like this for the rest of my life. I don't know what a gluten free diet consists of, but I will check it out. Please let me know how it works for you. I was told that I have Myofascial Pain Syndrome. I haven't been checked for Lymes. Are the symtoms similiar? Thank you for responding.


Posted by @lizkat, Jul 12, 2012

How is your sleep doing? What other meds have you been tried on?

I have fibromyalgia which is quite similar to myofascial pain



Posted by @hopingforacure, Jul 13, 2012

Sleep is better. I started taking Melatonin along with Alprazolam which seems to help. Now that I've been taking the other meds for quite some time, the pain is not as severe as it was. How are you doing?


Posted by @hopingforacure, Aug 14, 2012

Sleep has been okay lately. Not always, but mostly. I'm going to meet with a group of doctors in Cincinnati next month and I'm hoping for more answers! I am still trying to get my life back!


Posted by @lizkat, Aug 14, 2012

Hi Hoping
Glad to hear that your pain is better.

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