Last January, without warning my legs folded, and combined pain and weakness owned me. I'd never heard of PMR, but my internist is, fortunately, quite experienced with it. .
Each Monday I go to the lab; each Tuesday he calls to say whether to 'up' or lower my prednisone dose,. From 10mg in Jan I've made it to 5mg now (Sept) ; however, it has stayed at 5mg for nearly 4 weeks, and the 40 prednisone pounds I've gained will, I fear, increase. Always I've been underweight, so I'm uncomfortable, and my clothes do not fit.
I'm interested in how you and others fare, once you lower the dose dramatically, and in other possible treatment options (several kidney failures make me ineligible for certain medications.) MARSHAHJ, I've had no setbacks to date, so can't address that. LEARNER @marshahj