Rosemary, Volunteer Mentor | @rosemarya | Nov 15, 2016
@sandras, I would like to introduce you to a new member, @2011panc. She also received a pancreas transplant. I think that you two might have a lot in common.
Rosemary
@sandras, I would like to introduce you to a new member, @2011panc. She also received a pancreas transplant. I think that you two might have a lot in common.
Rosemary
I am 26 years old and was added to the kidney pancreas rransplant list on feb 21st 2014 can anhbodh tell me about thier transplant experiences and. Parricularlh thier wait time. J also live in washington and am listed in phoenix whT hppens when yoh geg that call how long dk j have to get thier ty
I had been searching online, but I only found technical and caregiver support groups. I asked at my last annual exams if they were aware of any talk/discussion groups for recipients and they sent me this link.
My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.
I am so relieved to be able to stop counting carbs, counting calories, measuring and recording blood sugars, calculalting/measuring and administering insulin, that counting anything (such as the number of years since my transplant) is of no interest to me. I personally think all diabetics that are trying their hardest to remain healthy must become walking, talking computers. My focus now is stability. I will do the best the longest if I can keep all my levels and test results stable. This also includes stability in my diet and activity. There was so much chaos in my life before the transplant, I am just grateful for and enjoying the stability. Kinda funny, right?
@sandras, I would like to introduce you to a new member, @2011panc. She also received a pancreas transplant. I think that you two might have a lot in common.
Rosemary
I received my transplant January 2011 in the middle of a traffic-stopping blizzard. I didn't care about the weather but it is an interesting comment for people to hear.
I have found that living with a transplant successfully changes you far beyond the actual physical and medical things we must do. Has anyone else noticed a change in your mental, spiritual or emotional self? Are you more or less: patient? understanding? short tempered? calm? forgiving? precise? picky? complimentary? thankful? resentful? Are your emotions the same, different, more pronounced or muted? I am just curious about how other people have reacted. You may have no other forum to discuss these issues and I would welcome any input from anyone.
My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.
@2011panc Your description of the chaotic life before transplant and the eventual stability are the reality of life for many of us. I am happy that you have joined our discussion. I look forward to hearing more from you. And I look forward to hearing from others who have had similar or non-similar experiences. We have a lot to learn from each other, and to teach each other.
Rosemary
I have found that living with a transplant successfully changes you far beyond the actual physical and medical things we must do. Has anyone else noticed a change in your mental, spiritual or emotional self? Are you more or less: patient? understanding? short tempered? calm? forgiving? precise? picky? complimentary? thankful? resentful? Are your emotions the same, different, more pronounced or muted? I am just curious about how other people have reacted. You may have no other forum to discuss these issues and I would welcome any input from anyone.
@2011panc these are fabulous questions to ask of our Transplants group. In fact, I think they are so important that I would like to ask you to repost your message as a New Discussion. Here's how:
1. Go to the Transplants group page https://connect.mayoclinic.org/group/transplants/
2. Click START A DISCUSSION.
3. Write your title and message.
4. Click CREATE DISCUSSION.
What are your thoughts? I look forward to talking about this! Rosemary
Possible title something like: Mental, Emotional, Spiritual Changes after Transplant
Connect
Connect
Like
Helpful
Hug
Hi this is Sandra pancrease transplant recipient. God bless and blessed are the fortunite
-
Like -
Helpful -
Hug
1 Reaction@sandras, I would like to introduce you to a new member, @2011panc. She also received a pancreas transplant. I think that you two might have a lot in common.
Rosemary
Sure! Hello I am a pancrease recipient 2013. When did you have your transplant?
I had been searching online, but I only found technical and caregiver support groups. I asked at my last annual exams if they were aware of any talk/discussion groups for recipients and they sent me this link.
-
Like -
Helpful -
Hug
1 ReactionI received a pancreas in 2011 and just found this group this week.
-
Like -
Helpful -
Hug
1 ReactionI am so relieved to be able to stop counting carbs, counting calories, measuring and recording blood sugars, calculalting/measuring and administering insulin, that counting anything (such as the number of years since my transplant) is of no interest to me. I personally think all diabetics that are trying their hardest to remain healthy must become walking, talking computers. My focus now is stability. I will do the best the longest if I can keep all my levels and test results stable. This also includes stability in my diet and activity. There was so much chaos in my life before the transplant, I am just grateful for and enjoying the stability. Kinda funny, right?
I received my transplant January 2011 in the middle of a traffic-stopping blizzard. I didn't care about the weather but it is an interesting comment for people to hear.
I have found that living with a transplant successfully changes you far beyond the actual physical and medical things we must do. Has anyone else noticed a change in your mental, spiritual or emotional self? Are you more or less: patient? understanding? short tempered? calm? forgiving? precise? picky? complimentary? thankful? resentful? Are your emotions the same, different, more pronounced or muted? I am just curious about how other people have reacted. You may have no other forum to discuss these issues and I would welcome any input from anyone.
-
Like -
Helpful -
Hug
1 Reaction@2011panc Your description of the chaotic life before transplant and the eventual stability are the reality of life for many of us. I am happy that you have joined our discussion. I look forward to hearing more from you. And I look forward to hearing from others who have had similar or non-similar experiences. We have a lot to learn from each other, and to teach each other.
Rosemary
@2011panc these are fabulous questions to ask of our Transplants group. In fact, I think they are so important that I would like to ask you to repost your message as a New Discussion. Here's how:
1. Go to the Transplants group page https://connect.mayoclinic.org/group/transplants/
2. Click START A DISCUSSION.
3. Write your title and message.
4. Click CREATE DISCUSSION.
What are your thoughts? I look forward to talking about this! Rosemary
Possible title something like: Mental, Emotional, Spiritual Changes after Transplant