Pancreas and Kidney transplant - share experiences

Posted by charba1 @charba1, Jul 23, 2011

Does anyone know 

@ters1993

My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.

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I am so relieved to be able to stop counting carbs, counting calories, measuring and recording blood sugars, calculalting/measuring and administering insulin, that counting anything (such as the number of years since my transplant) is of no interest to me. I personally think all diabetics that are trying their hardest to remain healthy must become walking, talking computers. My focus now is stability. I will do the best the longest if I can keep all my levels and test results stable. This also includes stability in my diet and activity. There was so much chaos in my life before the transplant, I am just grateful for and enjoying the stability. Kinda funny, right?

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@rosemarya

@sandras, I would like to introduce you to a new member, @2011panc. She also received a pancreas transplant. I think that you two might have a lot in common.
Rosemary

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I received my transplant January 2011 in the middle of a traffic-stopping blizzard. I didn’t care about the weather but it is an interesting comment for people to hear.

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I have found that living with a transplant successfully changes you far beyond the actual physical and medical things we must do. Has anyone else noticed a change in your mental, spiritual or emotional self? Are you more or less: patient? understanding? short tempered? calm? forgiving? precise? picky? complimentary? thankful? resentful? Are your emotions the same, different, more pronounced or muted? I am just curious about how other people have reacted. You may have no other forum to discuss these issues and I would welcome any input from anyone.

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@ters1993

My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.

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@2011panc Your description of the chaotic life before transplant and the eventual stability are the reality of life for many of us. I am happy that you have joined our discussion. I look forward to hearing more from you. And I look forward to hearing from others who have had similar or non-similar experiences. We have a lot to learn from each other, and to teach each other.
Rosemary

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@2011panc

I have found that living with a transplant successfully changes you far beyond the actual physical and medical things we must do. Has anyone else noticed a change in your mental, spiritual or emotional self? Are you more or less: patient? understanding? short tempered? calm? forgiving? precise? picky? complimentary? thankful? resentful? Are your emotions the same, different, more pronounced or muted? I am just curious about how other people have reacted. You may have no other forum to discuss these issues and I would welcome any input from anyone.

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@2011panc these are fabulous questions to ask of our Transplants group. In fact, I think they are so important that I would like to ask you to repost your message as a New Discussion. Here’s how:
1. Go to the Transplants group page https://connect.mayoclinic.org/group/transplants/
2. Click START A DISCUSSION.
3. Write your title and message.
4. Click CREATE DISCUSSION.

What are your thoughts? I look forward to talking about this! Rosemary

Possible title something like: Mental, Emotional, Spiritual Changes after Transplant

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Hi I have had Type 1 for 40+ years and on the wait list for 14 months. I am now at the mayo clinic Rochester ICU post transplant.
that happened on 11-18-16 at 5:30 am. working perfict

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@bszychow Bob, this is wonderful news! Thank you for sharing this with us on Connect. I am so happy for you. You have endured a long hard journey to this pancreas transplant. Blessings and Peace be with you as you continue recovery and begin your new life. We look forward to hearing more from you in the future.
And – a very special Prayer of Thanksgiving to your organ donor.
I am walking with a big smile on my face today – because of you! Rosemary

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@rosemarya

@bszychow Bob, this is wonderful news! Thank you for sharing this with us on Connect. I am so happy for you. You have endured a long hard journey to this pancreas transplant. Blessings and Peace be with you as you continue recovery and begin your new life. We look forward to hearing more from you in the future.
And – a very special Prayer of Thanksgiving to your organ donor.
I am walking with a big smile on my face today – because of you! Rosemary

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@bszychow, Happy Thanksgiving!

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@bszychow, I was thinking about you and decided to drop in and say ‘Hi’ I hope that you are doing well. Rosemary

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@ters1993

My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.

Jump to this post

Hi, @coastalgirl. We have not heard from you for a while. I want you to know that I’m thinking about you. I sincerely hope that you are doing okay. Rosemary

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