Just need to vent

Posted by kittykiernan @kittykiernan, Sep 2, 2019

I had a full mastectomy in 2015 had problems getting implants in, the one dr said not to touch me as I am looking at my metal expander and the inside of the muscle. I went to the office screamed to get this out now. They thought I had no feeling took it out on the table , any way that nightmare is is over in Jan 2919 I was diagnosed with chronic Epstein barre, it causes cancer and most everyone has a immune disorder. My primary does nothing. Some how I reactivated and I can not stay awake for 2 hours, sleep, bone pain, brusing on me, already had a lymph node biopsy my neck gets huge.I need help I just need to vent that I’m 45 have I not been through enough I am hopeless at this point. ER docs run comp panels no you need to run other tests with people who have chronic illness they wont let me past Er to get help

Kitty,
So sorry to hear of your pain and frustration. I would look into another opinion/another doctor. Have you thought of that? So sorry. God Bless. Sending you healing vibes! 🥰

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@kittykieman We can "hear" the frustration in your post, and how upsetting it must be for you. The purpose of an emergency department is to assist in immediate care, not necessarily work with you on a chronic condition. You say your primary does nothing. Will they refer you to a specialist, an infectious disease doctor, to help with the chronic Epstein Barr situation? If not, can you appeal to your insurance? You don't deserve to feel unheard and uncared for. Will you do this and let us know what happens, please? We care here at Mayo Connect.
Ginger

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@kittykiernanv- I can't imagine the frustration and fear that you must be feeling with being insulted and turned away. I do not know where you live but is there a major hospital nearby that can help you, even as @gingerw suggests, using the ER? You stated that you intend to go to Sloan Kettering, have you gone yet?

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@kittykiernan Hi Kitty, I Kim checking in with you to see if you have been able to find any answers I'm getting to see a doctor who will give you some help? How are you feeling these days, still sleeping so much and not feeling well? If you are comfortable sharing we would love to hear from you. Mayo connect is a safe place to share and ask for help like you have in the past.
Ginger

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