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Just diagnosed....continue testing for causes

Posted by robge @robge, Feb 18, 2019

I was just diagnosed with neuropathy and am currently being tested to try to determine the root cause. What I know so far is that I am not diabetic, my B12 level is fine, I do not have thyroid issues, tested my inflammation levels and those were fine, and I do not have Hodgkin's Lymphoma. Testing for MS next (and I am not sure what else). They also did X-Rays of my hips and back and those were fine.

My big question for the group….I know that I have had neuropathy for several years. It began slowly and has remained about the same for years; however, lately it has progressed quickly from the balls of my feet up to my knees and also into my finger tips. Also having trouble with balance. Have others had a quick progression like that or was it more gradual? Thanks in advance.

Also, someone recommending acupuncture. Has anyone had successes there?

Interested in more discussions like this? Go to the Neuropathy group.

6969 barbie spokely in minot, nd | @6969 | Feb 20, 2019

This sounds like my daughter…except this came on all of a sudden with her lips becoming numb….no doctor in Minot knows what caused this….strange….headn to mayo mid April to hopefully get some answers and help…..will let you know what we find out…

REPLY
1 reply
robge | @robge | Feb 23, 2019
In reply to @jenniferhunter "@robge When you talked about cold parts of your body where you have neuropathy, that suggests..." + (show)
@jenniferhunter

@robge When you talked about cold parts of your body where you have neuropathy, that suggests to me that you may have decreased circulation there, and nerve compression and decreased circulation can be caused by physical fascial restrictions that can happen anywhere in the body. I have thoracic outlet syndrome that has caused my hands to turn blue and cold (actually cold to the touch), with arm pain, tingling , and numbness. I have been treating this in physical therapy with myofascial release. MFR can help so many conditions where conventional medicine hasn't helped. There can be similar issues with tight tissue in the hips and pelvic area that are similar. If your issues are physical, fascial stretching can help.

I created a discussion for MFR at https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

You may want to look at that and see what you think. I have had great results with MFR. Also if you have low thyroid function, that tends to cause cold hands and feet. My feet were always cold until I took thyroid medication to assist my thyroid that was not producing enough hormones.
https://www.mayoclinic.org/diseases-conditions/hypothyroidism/symptoms-causes/syc-20350284
https://www.mayoclinic.org/diseases-conditions/thoracic-outlet-syndrome/symptoms-causes/syc-20353988
https://trainingandrehabilitation.com/how-truly-treat-thoracic-outlet-syndrome/

Jump to this post

Thank you @jenniferhunter I examined the link and will look into that more. I have noticed and plan to mention to my neurologist at the next appt that when I shower, the portions of my feet that I have numbness or no feeling in are actually white (a very stalk white). The portions that have feeling in them have a healthy color and are almost reddish, but the others are a stalk white. For now, my fingertips do not show this color pattern when in the shower, but the numbness has just begun in my fingertips whereas I have been experiencing numbness in my feet for several years now.

Thanks for sharing this information. I really appreciate it.

REPLY
2 replies
robge | @robge | Feb 23, 2019
In reply to @6969 "This sounds like my daughter...except this came on all of a sudden with her lips becoming..." + (show)
@6969

This sounds like my daughter…except this came on all of a sudden with her lips becoming numb….no doctor in Minot knows what caused this….strange….headn to mayo mid April to hopefully get some answers and help…..will let you know what we find out…

Jump to this post

Hope you get the answers you are looking for @6969

REPLY
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Feb 23, 2019
In reply to @robge "Thank you @jenniferhunter I examined the link and will look into that more. I have noticed..." + (show)
@robge

Thank you @jenniferhunter I examined the link and will look into that more. I have noticed and plan to mention to my neurologist at the next appt that when I shower, the portions of my feet that I have numbness or no feeling in are actually white (a very stalk white). The portions that have feeling in them have a healthy color and are almost reddish, but the others are a stalk white. For now, my fingertips do not show this color pattern when in the shower, but the numbness has just begun in my fingertips whereas I have been experiencing numbness in my feet for several years now.

Thanks for sharing this information. I really appreciate it.

Jump to this post

@robge @jenniferhunter Your description of the stark white areas of the feet are exactly like my feet. And like @jenniferhunter wrote, it is relieved with Myofascial Release (MFR). My MFR therapist also taught my partner how to relieve it at home. I still get a weekly treatment which enhances my balance and stability by getting rid of the numbness or greatly reducing it. At least I now feel safe driving and walking, Be safe and have a pain free day with healthy colored feet. Chris

REPLY
Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | Feb 23, 2019
In reply to @robge "Thank you @jenniferhunter I examined the link and will look into that more. I have noticed..." + (show)
@robge

Thank you @jenniferhunter I examined the link and will look into that more. I have noticed and plan to mention to my neurologist at the next appt that when I shower, the portions of my feet that I have numbness or no feeling in are actually white (a very stalk white). The portions that have feeling in them have a healthy color and are almost reddish, but the others are a stalk white. For now, my fingertips do not show this color pattern when in the shower, but the numbness has just begun in my fingertips whereas I have been experiencing numbness in my feet for several years now.

Thanks for sharing this information. I really appreciate it.

Jump to this post

@robge You're welcome. Hopefully your neurologist will be familiar with this type of problem, and that therapy could help.

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