Chronic Myeloid Leukemia

Posted by LindaV @lindav, Jan 21, 2012

I’ve been trying to find someone that allso has CML. I’m in remission but need to take a chemo drug for the rest of my life. It has some side effects

@missvee42

I’ve had CML since 2007 ,taking 800mgs of gleevec daily ,also dealing with RA and fibromyalgia.I believe i contracted CML from taking enbrel injections for 5 yrs for the RA.I deal a lot with severe muscle cramps ,but lately they’re getting worse ,hitting me in the ribs and cutting off my wind.DO you have any trouble like this?

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I’m 63 and work 30 hr a week. I work in a laboratory. I found my CML myself. I live in Davenport Iowa and my Dr has 8 CML patients. I have never met any of them. Only one more day to work before the weekend. No plans. I’m just not going to get up early or go to work. I don’t do much extra. I started taking an art class once a week with my sister. I enjoy working with clay. The people are nice and the instructor is hot. I also belong to a book club with the people I work with. I read a lot. Are you able to do some activities that you enjoy? Hope you have a restful weekend too. Linda V

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@missvee42

I’ve had CML since 2007 ,taking 800mgs of gleevec daily ,also dealing with RA and fibromyalgia.I believe i contracted CML from taking enbrel injections for 5 yrs for the RA.I deal a lot with severe muscle cramps ,but lately they’re getting worse ,hitting me in the ribs and cutting off my wind.DO you have any trouble like this?

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Linda ,i’m pretty active in our church .When I lost husband in Sept of 2010 ,I was totally lost .We had been married for 52 1/2 yrs ,i didn’t really know how to function without him.But with the help of my Christian friends and family ,i’m learning new skills ,i never thought I could do.
I have to go for more blood tests tomorrow to have my muscle enzymes checked ,if i heard her correctly and i seem to be running anemic again and low calcium.
i do pretty decent most days just have to pace myself and not over do.
The weather affects me horribly ,i feel like my life is totally controlled by the barometer ,and it’s raing her today.
Planning a trip to Amish country saturday with friends .Glad you’re doing well ,Sandy

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@missvee42

I’ve had CML since 2007 ,taking 800mgs of gleevec daily ,also dealing with RA and fibromyalgia.I believe i contracted CML from taking enbrel injections for 5 yrs for the RA.I deal a lot with severe muscle cramps ,but lately they’re getting worse ,hitting me in the ribs and cutting off my wind.DO you have any trouble like this?

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Good Grief! You replied at midnight. Do you usually stay up that late? I only stay up that late on New Years Eve or if someone is in the Hospital. Hope you had a good day in
Amish country? We have Amish in Iowa too…about an hour away. I’m sorry you lost your husband. My husband had a bad stroke about 5 years ago. He worked hard to recover and go back to work. Now that I have CML he will probably out live me. I have my art class tonight. Its very relaxing. I got home from work and made dinner for my husband and one of my sons. I need to leave in about 30 minutes. I have 3 sons. The youngest still lives at home. He graduated from college and is looking for a job. I have two sisters that I see a lot. One lives here in Davenport and the other about an hour away in Iowa City. They are both retired. My mother died just a few months before I was diagnosed with CML.. I might mow the lawn later this week. IIt’s good exercise. Hoping for good weather for you. I had blood work done on Friday. Everything is still good. Hope you find the same. Linda

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@missvee42

I’ve had CML since 2007 ,taking 800mgs of gleevec daily ,also dealing with RA and fibromyalgia.I believe i contracted CML from taking enbrel injections for 5 yrs for the RA.I deal a lot with severe muscle cramps ,but lately they’re getting worse ,hitting me in the ribs and cutting off my wind.DO you have any trouble like this?

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Midnight is real normal for me .I worked 2nd shift at AT&T for years and it’s hard to break the habit.i have my drs appt tomorrow and all of my blood work .My GP thinks the reason I’m feeling so rotten and muscles aching is because after you’re on a chemo drug very long you become toxic ,so we’ll see what my oncologist thinks.i just don’t know anyone else on this drug ,so I don’t have anyone to compare it with.I have 3 kids ,2 girls and a boy 5 grandkids and 41/2 grt grand kids.Youngest girl is in NY and the other about 4 hrs away.My son lives about an hour away .I have a lot of good friends and neighbors that have really helped me out a lot.
It’s been really dreary here today and a little rain that was much needed.Hope you stay healthy ,that’s more important than wealth ,Sandy

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@missvee42

I’ve had CML since 2007 ,taking 800mgs of gleevec daily ,also dealing with RA and fibromyalgia.I believe i contracted CML from taking enbrel injections for 5 yrs for the RA.I deal a lot with severe muscle cramps ,but lately they’re getting worse ,hitting me in the ribs and cutting off my wind.DO you have any trouble like this?

Jump to this post

Happy Fathers Day! I think women do more “men jobs” than men do “womens work”. Today is also our 34th wedding anniversary. I had to work yesterday so we are staying home today. My sister is going to take us out for dinner. I found a couple of books that my husband wanted to read. I buy myself presents alot. How was your Dr appt? I think my next appt is in August. We are going to have a potluck at work to celebrate the start of summer this week. We had book club last week. Do you read much? I do. The kids have called today. Its nice to know that they are all OK.. My knees have been achey lately. I never know anymore what is causing symptoms. I think a lot of it is old age. I forget I have CML. We had some great rain yesterday. It has been dry. Hope this finds you having a great day. Linda .

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Please dont let them use chemo or radiation will cause other cancer

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