Share this:

LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012

Chronic Myeloid Leukemia

Posted by @lindav, Jan 21, 2012

I’ve been trying to find someone that allso has CML. I’m in remission but need to take a chemo drug for the rest of my life. It has some side effects

Liked by unicorn100

Reply


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 3, 2012

Continue the therapy, my daughter was diagnosed with AML June 21, 2011 and passed away November 14, 2011. She was doing everything she should do but some medication that was given her when she coded in August, caused her to loose her hands and legs just below the knee. I pray that you stay in remission. God Bless You


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 4, 2012

Thanks for sharing your daughters story. I plan on continuing the drug because it is the only game in town right now. This cancer has actually improved my quality of life. I stopped putting things off until later. I’ve started to do the things that were piling up on my bucket list. This lady is planning on getting her ears pierced this weekend. God Bless You Too


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 6, 2012

Great!! Wear your best lingerie, burn the candles, drink the best wine and eat in the best restaurants. Let’s stop putting anything on bucket lists.


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 8, 2012

Isn’t the internet amazing? This is the first time I’ve chatted with a unicorn.


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 8, 2012

Isn’t the internet amazing? This is the first time I’ve talked to a unicorn.


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 8, 2012

Yes. I use the name unicorn because that was my daughter’s username. She collected unicorns since a small child. I never understood her fasination with them, but I guess things like that is what makes each of so individual.


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 10, 2012

Unicorns are majical and we could all use a little majic in our lives some days. I think that losing a child is the greatest sorrow in our lives. You are very courageous. I go to see my doctor tomorrow. It is just for a 3 month check. I work in a laboratory so I have already seen my lab results. They are good. Hope you can find some joy in your day. LV


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 10, 2012

I will be praying for you. I try to keep joy in my life. I work as a School Nurse and see a lot of children that simply need a hug and I have plenty of them. Losing my daughter has been very hard, she was also my best friend.
God Bless You unicorn100


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 10, 2012

I had a good doctor visit. I got out of work 2 hours early….maybe that was the best part. I just love my doctor. He does a lousy bonemarrow aspirate but in every other way he is great. My GP really picked a good one for me. Actually I like my job too. I’m a Medical Technologist and I work in general testing doing blood cell counts, urinalysis and coagulation tests most of the time. I work with great people. They make me laugh. I have three sons and my husband and I both still work. We live in Davenport , Iowa right on the Mississippi River. We have been lacking in sunshine lately. Hope its sunny where you are . It helps. LInda V


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 13, 2012

We are having a lot of sunshine here. The past three mornings we have been in the 20’s for lows and up to 60’s for highs. Wish I could package it up and send it to you. Have a great day today and every day. unicorn100


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 13, 2012

We have had plenty of sunshine. The last three days we have had morning temperatures in the 20’s. We don’t get much snow here. Most of the time it only looks like a heavy frost. I work in the public school system as a school nurse. I spent my career in the doctor’s office and retired in 1999 to be with my new grandson. My husband and I traveled for a few years but when we could no longer do that I returned to the work force and I really enjoy the children and the teachers that I work with. I am 65 years old and in pretty good health except for some arthritis and needing a knee replacement I do pretty well. Take care. unicorn100


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 17, 2012

Well we did get that sunshine. I guess your wish came true. Now you can wish for a winning lottery number. I went for a walk after work. It was a little windy but temperatures were in the 40’s. I’m 63 and work 30 hours a week. I hope to continue working until I’m 65 maybe longer. When it stops being fun it will be time to quit. I was thinking that I should know what I would do with my time before I retire. My two sisters are retired and they seem to have lost the structure in their daily life. I don’t know if that is healthy. I have 3 sons. One is married but I have no grandchildren yet. Bye for now Linda V


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 17, 2012

Glad you got the sunshine. You truly do need to have a plan in place before retiring. My husband and I traveled for a while. We have been in all continental United States with the exception of three. Hope you have the opportunity to have grandchildren, they are truly Gods gift to us for surviving our children’s teen age years. Have a great week-end. I don’t know about you, but we will be having a 3 day week-end. I am looking forward to getting some much needed rest. God Bless unicorn100


LindaV
@lindav

Posts: 17
Joined: Jan 20, 2012
Posted by @lindav, Feb 18, 2012

My husband and two of my sons have a three day weekend because they work for the federal government. I on the other hand work in a private lab. We don’t get all of those miscelaneous holidays. I’m not working this weekend and I have alot to do. I’m going to Florida with my sister. We are driving and the first night we want to get to Memphis. I’ve never been there before. We are going to be staying in Tallahasie with my aunt and cousin. They are lots of fun. We used to travel with my husband when the kids were small. He would travel for work and we would go along. Once the kids started going to college we put all of our extra money into tuition, room and board. They are all out of school now. We went to California last year to see where my oldest son lived and worked. ANd now I’m going to Florida. It’s that don’t put it off anymore thing. My E_Mail address is lindav32@Yahoo.com. I’ve been looking at a website for CML. It is http://www.nationalcmlsociety.org. Did your daughter ever take Gleevec? That’s what I’m on now. Thanks for taking the time to talk with me. LInda V


unicorn100
@unicorn100

Posts: 10
Joined: Feb 03, 2012
Posted by @unicorn100, Feb 23, 2012

No, my daughter was never on Gleevec. I pray that it works for you and others who are taking it. I enjoyed my three day week-end, I spent a lot of time with my grandson. He is 13 y/o and will be living with me begining this summer. I am looking forward to the time with some anticipation. I’m not sure I am ready to begin all over with a teenager. But I have to keep remembering that the Lord will not give us more than we can bear. Have a great day. unicorn100

Please login or register to post a reply.