Mayo Clinic Connect
I’ve been trying to find someone that allso has CML. I’m in remission but need to take a chemo drug for the rest of my life. It has some side effects
Liked by unicorn100
Continue the therapy, my daughter was diagnosed with AML June 21, 2011 and passed away November 14, 2011. She was doing everything she should do but some medication that was given her when she coded in August, caused her to loose her hands and legs just below the knee. I pray that you stay in remission. God Bless You
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Thanks for sharing your daughters story. I plan on continuing the drug because it is the only game in town right now. This cancer has actually improved my quality of life. I stopped putting things off until later. I’ve started to do the things that were piling up on my bucket list. This lady is planning on getting her ears pierced this weekend. God Bless You Too
Great!! Wear your best lingerie, burn the candles, drink the best wine and eat in the best restaurants. Let’s stop putting anything on bucket lists.
Isn’t the internet amazing? This is the first time I’ve chatted with a unicorn.
Isn’t the internet amazing? This is the first time I’ve talked to a unicorn.
Yes. I use the name unicorn because that was my daughter’s username. She collected unicorns since a small child. I never understood her fasination with them, but I guess things like that is what makes each of so individual.
Hi Linda. I sent you a ‘friend request’ so that I could inbox you. My 22 year old son also has CML, and I know a place where you can connect with a lot of others who are living with CML.
Wow. 22 is pretty young to get CML. I’m so sorry. Thanks for texting me.. I just haven’t had much luck finding other people with CML. I guess that could be a good thing. I wouldn’t wish this on others. My doctor says that CML is the best leukemia to have because of the drugs that are available now. Is your son in remission? Hope so. I found my CML early. I work in a Medical Lab and get blood drawn for new tests and normal reference range studies fairly often. So I found the change in my blood cell count myself. I look forward to hearing from you. Linda
Unicorns are majical and we could all use a little majic in our lives some days. I think that losing a child is the greatest sorrow in our lives. You are very courageous. I go to see my doctor tomorrow. It is just for a 3 month check. I work in a laboratory so I have already seen my lab results. They are good. Hope you can find some joy in your day. LV
I will be praying for you. I try to keep joy in my life. I work as a School Nurse and see a lot of children that simply need a hug and I have plenty of them. Losing my daughter has been very hard, she was also my best friend.
God Bless You unicorn100
I had a good doctor visit. I got out of work 2 hours early….maybe that was the best part. I just love my doctor. He does a lousy bonemarrow aspirate but in every other way he is great. My GP really picked a good one for me. Actually I like my job too. I’m a Medical Technologist and I work in general testing doing blood cell counts, urinalysis and coagulation tests most of the time. I work with great people. They make me laugh. I have three sons and my husband and I both still work. We live in Davenport , Iowa right on the Mississippi River. We have been lacking in sunshine lately. Hope its sunny where you are . It helps. LInda V
We are having a lot of sunshine here. The past three mornings we have been in the 20’s for lows and up to 60’s for highs. Wish I could package it up and send it to you. Have a great day today and every day. unicorn100
We have had plenty of sunshine. The last three days we have had morning temperatures in the 20’s. We don’t get much snow here. Most of the time it only looks like a heavy frost. I work in the public school system as a school nurse. I spent my career in the doctor’s office and retired in 1999 to be with my new grandson. My husband and I traveled for a few years but when we could no longer do that I returned to the work force and I really enjoy the children and the teachers that I work with. I am 65 years old and in pretty good health except for some arthritis and needing a knee replacement I do pretty well. Take care. unicorn100
Well we did get that sunshine. I guess your wish came true. Now you can wish for a winning lottery number. I went for a walk after work. It was a little windy but temperatures were in the 40’s. I’m 63 and work 30 hours a week. I hope to continue working until I’m 65 maybe longer. When it stops being fun it will be time to quit. I was thinking that I should know what I would do with my time before I retire. My two sisters are retired and they seem to have lost the structure in their daily life. I don’t know if that is healthy. I have 3 sons. One is married but I have no grandchildren yet. Bye for now Linda V
Glad you got the sunshine. You truly do need to have a plan in place before retiring. My husband and I traveled for a while. We have been in all continental United States with the exception of three. Hope you have the opportunity to have grandchildren, they are truly Gods gift to us for surviving our children’s teen age years. Have a great week-end. I don’t know about you, but we will be having a 3 day week-end. I am looking forward to getting some much needed rest. God Bless unicorn100
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