Is there a database of those of us with PMR?

Posted by pdxmac @pdxmac, Dec 29, 2025

I'm wondering if there's a central database anywhere that collects info about us sufferers that would help researchers examine various treatments / lifestyle choices / other factors. It seems like something like that would be a big step beyond the anecdotal info I've gathered on this page over the years (not to diss it at all, it's been a game changer!)

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

John, Volunteer Mentor | @johnbishop | Dec 29, 2025

There is the PMR and You site but it's only for U.S. residents. I'm sure there may be others - https://www.pmrandyou.com/support-and-resources/. There are other discussions on Connect on diet and lifestyle changes if you want to connect with other members but I'm guessing you probably have already seen them - Here are a couple of phrases I searched on that brought up some different discussions:

-- "PMR lifestyle" - https://connect.mayoclinic.org/search/discussions/
-- "PMR diet and exercise" - https://connect.mayoclinic.org/search/