I’ve been told by neurologists at Mayo that I probably have Progressive Supernuclear Palsy (PSP). Has anyone had this or know anything about it?
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My father has been diagnosed with PSP. There is more information available now than there was when he got diagnosed, but as it is rare, little is out there. Try the CurePSP website (psp.org). They have an upcoming virtual family conference that is free. I am hoping to learn more by attending.
Another source of information is the Association for Frontotemporal Degeneration. Here is a link:
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