Invasive ductile breast cancer: What should I expect?

Posted by ellerbracke @ellerbracke, May 9 6:04am

I was just diagnosed with invasive ductile breast cancer.. Caught early, pretty localized, barely invasive. Lumpectomy on 6/2 (with sampling of sentinel lymph nodes, which show clear on ultrasound). Probably either, or both, of hormone therapy or radiation treatment afterwards. Any advice/input regarding what to be aware of, or what to expect?

@jejones

If they will take you in Rochester for the accelerated treatment, by all means try to take it. PM me if you get accepted but want more info/support.

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Jejones, I encourage you to also share about the accelerated program on the forums where appropriate too. That way you can provide info and support to many as well as to Sandy. 🙂

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@genea

I finished radiation 4/30 and started Tamoxifen 5/10. Since having to stop birth control and go on the Tamoxifen I feel like a teenager again, in a bad way. Acne, awful cramps, emotional, unpredictable and heavy periods. There was mention of ovary suppression with injections, but my oncotype score was only 12. Has anyone else had a similar experience and/or done the injections or had their ovaries removed?

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I'm 51, diagnosed earlier this year and after lumpectomy and radiation started zoladex injections for ovarian suppression with an AI. The shots are once a month. I'll be on them until natural menopause – maybe two years. I don't mind the shot, they numb the skin before they give them so you really don't feel them – but they are in the stomach.

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@aestong

I'm 51, diagnosed earlier this year and after lumpectomy and radiation started zoladex injections for ovarian suppression with an AI. The shots are once a month. I'll be on them until natural menopause – maybe two years. I don't mind the shot, they numb the skin before they give them so you really don't feel them – but they are in the stomach.

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Thanks for the info. I'm still waiting to find out if they're going to recommend the injections or not. But I'm glad to hear they aren't painful. My oncologist said it had to be given by an oncologist because it could be painful if they didn't do it correctly. That was just enough to scare me. 😂

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I was diagnosed with Stage 2 invasive ductal breast cancer(3 masses on left) two weeks ago. Is anyone here being treated in Phoenix and if so how long did it take you to get an medical or surgical oncologist? I have yet to be able to even set up an appt with an oncologist(I call daily). They say they are "triaging" patients and can't tell me when I can even set up an appt. This has become an extremely frustrating experience for me. I am a healthcare worker who came down here to "help out" during the height of Covid and was really impressed with Mayo. I am from Nashville and my physician can't even get answers. While I would prefer to stay here after my contract ends next week, I might be forced to head back to Nashville to be treated. My physician is Nashville feels I should be already be seeing an oncologist and developing a game plan.

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Update: I had lumpectomy and removal of sentinel lymph nodes (2, maybe 3, judging from bloody area). Luckily, almost no pain so far (15 hours post-op), some slight oozing which has stopped now. Can even sleep on stomach without problem. Follow up appointment next week for results. Hoping for good news, but I wanted to thank everyone in this discussion for the valuable information regarding types of radiation that’s available, as well as hormone therapy. At least I know which questions to ask, which is half the battle, and listen to and evaluate the doctors’s recommendations.

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@goldenmj1

I was diagnosed with Stage 2 invasive ductal breast cancer(3 masses on left) two weeks ago. Is anyone here being treated in Phoenix and if so how long did it take you to get an medical or surgical oncologist? I have yet to be able to even set up an appt with an oncologist(I call daily). They say they are "triaging" patients and can't tell me when I can even set up an appt. This has become an extremely frustrating experience for me. I am a healthcare worker who came down here to "help out" during the height of Covid and was really impressed with Mayo. I am from Nashville and my physician can't even get answers. While I would prefer to stay here after my contract ends next week, I might be forced to head back to Nashville to be treated. My physician is Nashville feels I should be already be seeing an oncologist and developing a game plan.

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I have a slightly different diagnosis but was diagnosed (biopsy) on April 15. Had surgery May 15. Are you trying to get into the Mayo system?

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@sandyrob

I have a slightly different diagnosis but was diagnosed (biopsy) on April 15. Had surgery May 15. Are you trying to get into the Mayo system?

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Yes, and I finally was able to connect with someone yesterday at Mayo in Phoenix to set up an appt for June 15th(4 weeks after diagnosis). I'm good with that and it is a relief to finally get something set up. This being in "appointment limbo" was killing me. What type of surgery did you have? What was your diagnosis?

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@goldenmj1

Yes, and I finally was able to connect with someone yesterday at Mayo in Phoenix to set up an appt for June 15th(4 weeks after diagnosis). I'm good with that and it is a relief to finally get something set up. This being in "appointment limbo" was killing me. What type of surgery did you have? What was your diagnosis?

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I have Stage 1a ICD, pr+hr+ Her2-. Grade 1; Ki67 1%. I had lumpectomy and sentinel node biopsy. 7 nodes removed, no cancer in the nodes and tumor margins are clear. They refer to it as "favorable breast cancer". Go figure…LOL. Anyway, expect things to go fast now that you are in their system. I had surgery locally but will do radiation and follow-up at Mayo. With this early stage cancer and my age (74) i have the option of 3 day partial breast radiation so am doing that.

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Update: lumpectomy done, clear margins, lymph nodes clear. So far, so good. Treatment options to be discussed and decided this coming week. Annoying fluid accumulation with leakage (still) after 9 days in area of removed lymph nodes under arm. Had it drained yesterday, hope that’s the end of that.

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@sandyrob

I have Stage 1a ICD, pr+hr+ Her2-. Grade 1; Ki67 1%. I had lumpectomy and sentinel node biopsy. 7 nodes removed, no cancer in the nodes and tumor margins are clear. They refer to it as "favorable breast cancer". Go figure…LOL. Anyway, expect things to go fast now that you are in their system. I had surgery locally but will do radiation and follow-up at Mayo. With this early stage cancer and my age (74) i have the option of 3 day partial breast radiation so am doing that.

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I guess after talking to a medical oncologist next week, I’ll also have all the asterisks that go with stage 1 breast cancer. Just noticed that you mentioned that at age 73 – I’ll be 72 in a week – there is a partial breast radiation. Will keep this in mind. No mention if you were put on hormone medication? Radiation, to me, seems once and done, hormone medication with all its potential side effects goes on for maybe 5 years.

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@ellerbracke

I guess after talking to a medical oncologist next week, I’ll also have all the asterisks that go with stage 1 breast cancer. Just noticed that you mentioned that at age 73 – I’ll be 72 in a week – there is a partial breast radiation. Will keep this in mind. No mention if you were put on hormone medication? Radiation, to me, seems once and done, hormone medication with all its potential side effects goes on for maybe 5 years.

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Hormone blocker Anastrozole has been recommended.

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Good luck, Sandy. This Mayo Connect group has confirmed to me that the AI's react differently in each of us! Just be sure your estrogen is tested after 8-10 weeks to be sure your estrogen is reduced low enough!!

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