Invasive ductile breast cancer: What should I expect?

Posted by ellerbracke @ellerbracke, May 9 6:04am

I was just diagnosed with invasive ductile breast cancer.. Caught early, pretty localized, barely invasive. Lumpectomy on 6/2 (with sampling of sentinel lymph nodes, which show clear on ultrasound). Probably either, or both, of hormone therapy or radiation treatment afterwards. Any advice/input regarding what to be aware of, or what to expect?

@amandaburnett

@grandmapeggy and @sandyrob, Welcome to Mayo Clinic Connect. You will see that I moved both of your comments to a discussion that is talking about lumpectomies and breast cancer. I did this so you could not only meet each other as you share your experiences, but also connect with people in the group that have similar stories to share.

Sandy, a lot of times hospitals will have physicians on call, did you try to call and ask? do you have a follow up appt on Monday?

Peggy, Is your choice to move to chemo a chance to avoid further surgery?

Jump to this post

It was my doctors choice/suggestion to do chemo because one of the nodes came back positive for cancer.

REPLY
@genea

I was diagnosed in January with hormone positive IDC. I'm 40 yo, my first mammogram. I had a lumpectomy, radiation, and just started Tamoxifen this week. Physically I'm fine. Mentally I'm exhausted and can cry at the drop of a hat. Get plenty of rest, drink lots of water, my oncologist recommended Ginseng to help with fatigue. I'm just starting it as well. There's a Mayo clinic study you can Google if you're interested. You'll do great! Listen to your body, that's the hardest part. Slow down and take care of you.

Jump to this post

Hi Genea, @roch started a discussion about ginseng and fatigue a little while back. i bet she and others would appreciate your joining her in this discussion to share your experiences with ginseng and fatigue:

– Ginseng and Fatigue https://connect.mayoclinic.org/discussion/ginseng-and-fatigue/

REPLY
@sandyrob

I had a lumpectomy and sentinel node biopsy yesterday (Friday) so of course there is no one in the office to ask about this. From what the doctor said before surgery, if the first set of lymph nodes showed cancer, he would take out more. "high Neoprobe counts" ?? Means what?

" Findings: 4 sentinel nodes removed, all with high Neoprobe counts. 3 nonsentinel nodes removed based on their proximity to the sentinel lymphnodes."

Jump to this post

Sandy, a Neoprobe (small handheld device) is used to measure the radioactivity from the liquid (blue dye) that was injected during your lymphatic mapping procedure. The high Neoprobe count identifies the sentinel nodes. Sentinel nodes are the first nodes that drain a cancerous area. If the sentinel nodes are non-cancerous, it is unlikely that the cancer has entered the lymphatic system.

Were you able to talk to the nurse navigator today?

REPLY
@colleenyoung

Sandy, a Neoprobe (small handheld device) is used to measure the radioactivity from the liquid (blue dye) that was injected during your lymphatic mapping procedure. The high Neoprobe count identifies the sentinel nodes. Sentinel nodes are the first nodes that drain a cancerous area. If the sentinel nodes are non-cancerous, it is unlikely that the cancer has entered the lymphatic system.

Were you able to talk to the nurse navigator today?

Jump to this post

Thank you, Colleen. Yes, the surgeon called today to tell me that tumor margins were clear or clean, whatever is the right word and there were no cancerous cells in any of the lymph nodes. Hooray for that part!!!

REPLY
@sandyrob

Thank you, Colleen. Yes, the surgeon called today to tell me that tumor margins were clear or clean, whatever is the right word and there were no cancerous cells in any of the lymph nodes. Hooray for that part!!!

Jump to this post

Great news, Sandy. I'm throwing ***confetti***.
So what is the next step for you?

REPLY
@colleenyoung

Great news, Sandy. I'm throwing ***confetti***.
So what is the next step for you?

Jump to this post

I have an appt with Dr. Susan Kok tomorrow at 8 am to get an 2nd opinion on radiation and hormone therapy. Have already met Radiation oncologist and medical oncologist in Duluth.

REPLY

I finished radiation 4/30 and started Tamoxifen 5/10. Since having to stop birth control and go on the Tamoxifen I feel like a teenager again, in a bad way. Acne, awful cramps, emotional, unpredictable and heavy periods. There was mention of ovary suppression with injections, but my oncotype score was only 12. Has anyone else had a similar experience and/or done the injections or had their ovaries removed?

REPLY
@genea

I finished radiation 4/30 and started Tamoxifen 5/10. Since having to stop birth control and go on the Tamoxifen I feel like a teenager again, in a bad way. Acne, awful cramps, emotional, unpredictable and heavy periods. There was mention of ovary suppression with injections, but my oncotype score was only 12. Has anyone else had a similar experience and/or done the injections or had their ovaries removed?

Jump to this post

Genea, I see you didn't get a response to your question about ovary suppression. I suggest you start a new discussion specific to this topic in the Breast Cancer group. It's a good topic.

@sandyrob, how did your appointment go? Will you have radiation and/or hormonal therapy?

REPLY
@colleenyoung

Genea, I see you didn't get a response to your question about ovary suppression. I suggest you start a new discussion specific to this topic in the Breast Cancer group. It's a good topic.

@sandyrob, how did your appointment go? Will you have radiation and/or hormonal therapy?

Jump to this post

Hi Colleen…my appt was changed to June 1 for Radiation oncology and June 2 for Medical Oncology. Thanks for asking!

REPLY

That was very similar to my diagnosis and thankfully, it hadn't moved into my lymph nodes. I"m big breasted and my first shower after surgery was so painful (breasts hanging down without support) that I took showers with a bra on for about 2 weeks. I think that was the most pain I had during recover from Lumpectomy. Also, I was able to do "partial breast radiation" , which was only 3 sessions with a little more radiation in each session, so that was a blessing. Ask about that. I will pray that all goes well for you next week!!

REPLY
@jejones

That was very similar to my diagnosis and thankfully, it hadn't moved into my lymph nodes. I"m big breasted and my first shower after surgery was so painful (breasts hanging down without support) that I took showers with a bra on for about 2 weeks. I think that was the most pain I had during recover from Lumpectomy. Also, I was able to do "partial breast radiation" , which was only 3 sessions with a little more radiation in each session, so that was a blessing. Ask about that. I will pray that all goes well for you next week!!

Jump to this post

Thank you, yes, I am asking about the accelerated radiation that is available at Mayo. In Duluth the option for me is 20 days.

REPLY
@sandyrob

Thank you, yes, I am asking about the accelerated radiation that is available at Mayo. In Duluth the option for me is 20 days.

Jump to this post

If they will take you in Rochester for the accelerated treatment, by all means try to take it. PM me if you get accepted but want more info/support.

REPLY
Please sign in or register to post a reply.
  Request Appointment