Interesting article on Steve Jobs and PNETs

@lindabees Thank you so much for sharing this. It shows that even though we all might have NETs, our journeys can be quite different. Steve Jobs death is a reminder that NETs can be quite deadly for some of us.

Very true. There have also been so many advancements in treatments since his time. One thing not mentioned in this article is the fact that Jobs attempted to treat it holistically for awhile. I think that was before he went to Europe for PRRT and then his liver transplant. In 2008, my husband was first treated for his stage 4 pnet by the oncologist and surgeon at Stanford who were treating Jobs. Jobs' death a few years later really shook my husband.

@lindabees I can understand why. It's scary. I aspire to be your husband someday. Please thank him for continuing to raise the bar everyday for me to shoot for. I was just talking to my wife about you folks. You both give us motivation to keep soldiering on. You let us know what is possible. Thank you.

@tomrennie Wow. You just made my day. Thank you for those kind words.

VERY INTERESTING! I have already forwarded to my kids, thank you do much for sharing!

Jobs survived with a metastatic PNET for 7-8 years, which is not unusual. Maybe the liver transplant bought him another year or so, but it wouldn't be curative at that stage. One of my oncologists said it was a waste of resources.

Great article
Let’s not forget to applaud his son for the Millions of dollars he has been donating for NET research and development in his father’s name.
Donations are crucial!
Best to everyone

@sophiarose
Actually and unfortunately that is not the case. In fact, there is not a publicly disclosed, substantial commitment from the Jobs family specifically to NET research.
Reed Jobs and his firm, Yosemite, focus on the broader field of pancreatic cancer and general oncology rather than narrowing their scope strictly to neuroendocrine cancers.
I'm disappointed that, given Steve Jobs' personal experience with neuroendocrine cancer and the enormous resources and influence available to his family, they haven't made neuroendocrine cancer research a significant philanthropic priority. NETs are an underfunded rare cancer with a profound need for better treatments and cures. The Jobs name could have brought extraordinary attention, money and scientific talent to that effort.

@lindabees
Sorry I was mistaken
Hopefully R&D from other cancer’s will help NET
It’s happened before

Very true and their benefit to general oncology is huge. But having the Jobs name attached to a NET specific contribution likely would've drawn attention and contributions from other resources, benefiting NET research directly. Sorry. It's a big bone of contention for me. 😊