ineffective esophageal motility disorder and electric shock sensation

Posted by Cam @tryingtofindanswers, Jul 29, 2018

I've been dealing with swallowing issues for over a year and a half now. They began after a course of beta blockers. After two manometry tests, 3 barium swallows and two endoscopies, i've been diagnosed with ineffective esophageal motility disorder and a sliding hiatal hernia. I also have pretty bad acid reflux. I have trouble eating anything that isn't liquid now. The only solids I can eat are saltine crackers, graham crackers and shortbread cookies, basically anything that's a meltable solid. As part of this issue, i get what feels like random electric shock sensations over my chest. They are quick and usually are a result of how I'm sitting or something I've eaten that's more solid. My heart has been ruled out, so these sensations are coming from the esophagus, i assume. Has anyone experienced this sensation as part of esophageal motility issues or hiatal hernia? Also, just doing another random check-in to see if anyone has ever been successfully treated for esophageal motility disorders. I sure do miss the luxury of solid food. Curious as to what doctors at mayo are good to see about esophageal motility disorders that are not achalasia. Thanks!

Interested in more discussions like this? Go to the Digestive Health group.

@kaykay729

I was just diagnosed with this and I am just looking for guidance on how to deal with it and if there are any procedures to correct it. Thanks.

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Hi @kaykay729 and welcome to Mayo Clinic Connect. There are several members that have discussed ineffective esophageal motility. You will see that I added you to one of the conversations that is talking about it.

There are also more discussions that I have included below so that you can read them as well.
https://connect.mayoclinic.org/discussion/esophagus-issues/
https://connect.mayoclinic.org/discussion/non-specific-esophageal-motility-disorder-caused-by-beta-blockers/
What did your physician suggest in the meantime? How long did you have symptoms before you were diagnosed?

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I have been having GI symptoms since last May. The only thing I have now is a bad taste in my throat and when I am hungry it gets worse. It's almost like a gas is coming up from my stomach. I was diagnosed with SIBO back in July but really don't have anybody the symptoms but mild constipation. So he suggested the manometry because of the bad taste. A week later he told me I had ineffective esophageal motility and that there is nothing that can be done.

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Hello @kaykay729. Have you considered a second opinion if the diagnosis just doesn't seem right based on your symptoms?

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@amandajro

Hello @kaykay729. Have you considered a second opinion if the diagnosis just doesn't seem right based on your symptoms?

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The SIBO diagnosis was found with a boost on the small intestine during an EGD. I don't disagree with that diagnosis but I don't have the symptoms like I read about other people having. Now I am diagnosed with Ineffective Esophageal Motility with the doctor telling me nothing can be done about it. I would like to find other people that have this so I can understand how to eat and maintain caloric intake and in fact if it's true that nothing can be done.

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