Share this:
dexter651
@dexter651

Posts: 2
Joined: Jun 04, 2017

Inclusion body myositis

Posted by @dexter651, Jun 4, 2017

Food to eat if you have ibm

REPLY

Hi @dexter651, welcome to Connect. If you feel comfortable, would you mind sharing a bit more about your situation so members have a bit more to share with you as well?

How long have you known about having inclusion body myositis? What sort of treatments does it require? What sorts of foods do you currently eat and are you looking for foods that help manage your condition better? We look forward to learning more about you so we can help Connect you with members who may be able to offer some recipes or foods to help.

@JustinMcClanahan

Hi @dexter651, welcome to Connect. If you feel comfortable, would you mind sharing a bit more about your situation so members have a bit more to share with you as well?

How long have you known about having inclusion body myositis? What sort of treatments does it require? What sorts of foods do you currently eat and are you looking for foods that help manage your condition better? We look forward to learning more about you so we can help Connect you with members who may be able to offer some recipes or foods to help.

Jump to this post

Well I was just recently diagnosed with my condition in March tried prednisone it did not work for me going to try a new medication starting Friday .but I want to know what kind of diet is best for me

Hi @dexter651,

Here is some information from Mayo Clinic about IBM, muscular dystrophy, including diet, coping and support: http://mayocl.in/2taBIXg

We also have a few discussions on Connect which might interest you:

Inclusion Body Myositis: http://mayocl.in/2s0RGUu
inclusion body myositis: http://mayocl.in/2taj7dx
regarding chronic polymyositis treatment: http://mayocl.in/2rg6K36

I’m tagging @rama, @tonyc55 @jamesthee @awhall75 @splinte @dk @bonnieh @jmbjar @mklam @gailfaith who have posted about IBM or other forms of muscular dystrophy in the past, and will hopefully join this conversation to provide some support and insights.

@dexter65, have you started the new medication? How is that working for you?

@kanaazpereira

Hi @dexter651,

Here is some information from Mayo Clinic about IBM, muscular dystrophy, including diet, coping and support: http://mayocl.in/2taBIXg

We also have a few discussions on Connect which might interest you:

Inclusion Body Myositis: http://mayocl.in/2s0RGUu
inclusion body myositis: http://mayocl.in/2taj7dx
regarding chronic polymyositis treatment: http://mayocl.in/2rg6K36

I’m tagging @rama, @tonyc55 @jamesthee @awhall75 @splinte @dk @bonnieh @jmbjar @mklam @gailfaith who have posted about IBM or other forms of muscular dystrophy in the past, and will hopefully join this conversation to provide some support and insights.

@dexter65, have you started the new medication? How is that working for you?

Jump to this post

My husband who has been recently diagnosed with IBM has started a program with physiotherapist, occupational therapist and gym trainer. In just two weeks he is steadier on his feet, walking better and feels more balanced. Miracle? No I don't think so but any little improvement that may delay further muscle weakness is worth celebrating. A small improvement makes a big difference in mood and hope to keep walking longer. There seems to be wisdom in using your muscles. Merle in Montreal

@kanaazpereira

Hi @dexter651,

Here is some information from Mayo Clinic about IBM, muscular dystrophy, including diet, coping and support: http://mayocl.in/2taBIXg

We also have a few discussions on Connect which might interest you:

Inclusion Body Myositis: http://mayocl.in/2s0RGUu
inclusion body myositis: http://mayocl.in/2taj7dx
regarding chronic polymyositis treatment: http://mayocl.in/2rg6K36

I’m tagging @rama, @tonyc55 @jamesthee @awhall75 @splinte @dk @bonnieh @jmbjar @mklam @gailfaith who have posted about IBM or other forms of muscular dystrophy in the past, and will hopefully join this conversation to provide some support and insights.

@dexter65, have you started the new medication? How is that working for you?

Jump to this post

What are the symptoms?

Why don’t you tell us what foods to eat? I want some good news. I don’t need to hear more stories of what does not work.

@brentdan67

Why don’t you tell us what foods to eat? I want some good news. I don’t need to hear more stories of what does not work.

Jump to this post

@brentdan67 – I wished I had a black and white answer for you on what to eat and what not to eat for IBM but I’m not sure there is one. Here is a PDF document on “Nutrition and Myositis: What we know (and still need to learn)” by Renee Lantner, an MD with DM at
The Myositis Association Annual Conference, September 2016, New Orleans, LA:

http://www.myositis.org/storage/documents/2016_APC_Presentations/new/TMA_2016_Nutrition_sans_photos.pdf

Hopefully this will help…

John

Please login or register to post a reply.