Incisional hernia after transplant: Anyone else?

Posted by btwest6 @btwest6, Dec 26, 2020

Would be interested to hear others experience with incisional hernia after liver transplant. Thank you.

Interested in more discussions like this? Go to the Transplants Support Group.

Profile picture for Rosemary, Volunteer Mentor @rosemarya

@beach56153 I invite you to meet some fellow transplant members whom I am tagging to the conversation. - What is your transplant team suggesting is the cause of your discomfort?

@rfriend50 @cehunt57 @jackie421blfdgurl @athenalee @melody12 @footballmum @janeent

Jump to this post

@rosemarya hi hi hi...how r u?miss all our chats. I am fine. I now need to keep sn eye on my kidney numbers and creaetine numbers. Summer is here beach time. Hope u r well and have a good summer.lv jackie

REPLY

Yes 6 months after my liver transplant i felt the same thing it was an incisional hernia.

REPLY

Hi, I'm 2 years post liver transplant. About 4 months after my transplant I developed a weird lump like feeling on my right side right above my scar line. Since then, I have done various Physical Therapy sessions, exercise routines and even acupuncture. I have also had nerve blocks which have lasted a few days. I have had multiple CT scans and MRI's, but the test do not show what I'm feeling. I have been working with a pain management professional, but still have not found a solution for the pain & discomfort. My hepatology team recently suggested that I see a plastic surgeon to determine if perhaps it is some type of scar along my abdominal wall that is not visible on the various tests that I have had. The lump is not noticable, but you can feel it. So I was reaching out to see if anyone else experienced this situation.

REPLY

@beach56153 I invite you to meet some fellow transplant members whom I am tagging to the conversation. - What is your transplant team suggesting is the cause of your discomfort?

@rfriend50 @cehunt57 @jackie421blfdgurl @athenalee @melody12 @footballmum @janeent

REPLY
Profile picture for Amanda Burnett @amandaa

Hi @btwest6, You are suffering from an incisional hernia? I have heard those are terribly painful. I know that both @blueve97 and @sickvick have struggled with incisional hernias. Perhaps they can share their story with you.

You might be interested in reading this article from UCSF on incisional hernias: https://transplantsurgery.ucsf.edu/conditions--procedures/ventral-(incisional)-hernia.aspx

If you would like a good long read, there is also this study that was published on liver transplant specific incisional hernias: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689349/

@btwest6, Do you currently have one and are looking into removal? Can you share with us a little more about your story?

Jump to this post

Hello all .good morning 🌞🌞 my liver transplant was 10/20/20
6 mos after that gruling
Surgery I had an incision hernia right in same spot as liver.thdy operated put in mesh
And I found out yesterday from my MRI I have another one in middle above belly button.i felt something and pressure there after I ate. ANYWAY. The thought of going thru those doors that say surgery..is a nino for me not after what I went thru.2 months in hospital from liver transplant and 8 days from hernia. From all that developed Celtic disease from all those surgeries and I am sure this new one has to do with the immunesurpresnt drugs and a weak stomach muscles.i suffered depression after liver surgery and suicide thoughts after i came home from hospital with oxygen .mouth soars for 23 days duto meds liver teams all over need to do more research of hiw msny others are experiencing
Things like this.

REPLY
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@cehunt57, How long after your transplant did the incisional hernia develop to when you needed surgery? What signs/symptoms did you experience? Did you return to your transplant center for the procedure?

Jump to this post

Hi Rosemary thank you,as always for that great information regarding hernias
It seems for the first hernia after transplant it is connected with autoimmune drugs we take. The second was the study tried to connect it with the type
of cut the surgeon makes. But in my case since this is my second one I believe is just due to still taking the tacrolimus and week stomach walls. The report did say if a mesh was implanted then that is cause for a low recurrance.well popo
on that!! I will ask my liver team but my liver Dr. know she is the one who told me. Anyway as always thank you and the best of health to u...Love Jackie

REPLY
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@janeent, I hope your appointment goes well next week 🤍

Jump to this post

Thank you Rosemary! That was so kind of you to remember.

REPLY
Profile picture for janeent @janeent

The first was in Feb 2022. The recent scan was 2 weeks ago. I see the general surgeons April 13th.

Jump to this post

@janeent, I hope your appointment goes well next week 🤍

REPLY
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@janeent, that sounds terribly uncomfortable and it must be frustrating to be left wondering about any medical response.
How long ago was this CT performed? Did you have a follow-up conversation with the doctor who ordered the scan?

Jump to this post

The first was in Feb 2022. The recent scan was 2 weeks ago. I see the general surgeons April 13th.

REPLY
Profile picture for janeent @janeent

I am 1yr 3months post kidney transplant and have a large- 7-8 centimeter incisional hernia. I look like I am pregnant on my right side. I see the surgeon next month. As I eat and drink throughout the day it grows and I can feel my skin pulling apart. My scar has started pulling apart and is growing in width. I believe this hernia occurred shortly after transplant but didn’t show for some reason on the scans. They gave me a support band and told me to wear it. I noticed my side growing and mentioned it a few times to the doctors with no remark from them. My nephrologist saw it and said oh you have a hernia but did not refer me to anyone. My last visit I showed the doctor, because it had grown so much and pain really started up, she scheduled a CT scan that shows a 7-8 centimeter incisional hernia.

Jump to this post

@janeent, that sounds terribly uncomfortable and it must be frustrating to be left wondering about any medical response.
How long ago was this CT performed? Did you have a follow-up conversation with the doctor who ordered the scan?

REPLY
Please sign in or register to post a reply.