In which group do I really fit ?
Good morning I have been following several groups and found a great deal of info but am reaching out here for input because I don’t know where I fit.
I had a “textbook perfect” ( doctor’s description ) hip replacement in Aug 2017, discharged with “cane as needed” instructions. 5 days later rolled my ankle, dislocated my hip and fractured my pelvis. A surgical repair required 13 screws and 2 plates in my pelvis. I developed foot drop 1 week after surgery and was diagnosed with probable “nerve damage”
6 weeks later the surgeon dislocated my hip during an office visit and back to surgery I went. He replaced the ball with a locking device to prevent further dislocations and performed nerve neurolysis to remove 4 cm of scar tissue adhered to my sciatic nerve. I suffered 1 more dislocation in 2018 and a new surgeon removed the screws and replaced the equipment in my hip. I immediately began to get some movement in my foot.
My dilemma; orthopedic surgeons have told me nerve damage will either heal, or it won’t. There’s nothing that can be done. Consulting a neurologist is useless.
A lumbar MRI shows spinal changes that per my hip surgeon could cause my foot weakness, pain, numbness, etc . Spinal surgeon says no, it is a result of my hip trauma.
Pain management did lumbar epidural and trigger injections which I think increased my complaints rather than mitigated it. 3 EMG- nerve conduction tests since 2017 confirm nerve damage but that’s where it all ends. I am reaching out to John Hopkin peripheral nerve center to see if I can get an appt.
Mayo’s neurologist did conduct one of the neurology work ups in 2018 but that’s where it ended. I’ve tried to get appts with Mayo for hip- spine- neurology without success.
I am frustrated and stuck in a revolving door of doctors and find their lack of communication with me and each other is hindering my progress. I need to resolve this and am unsure how to proceed. Someone needs to make the effort to determine 1. Is it a spine nerve root issue 2 Is it damage from the dislocation/ fractured pelvis 3. Is it nerve damage that can be treated and / or managed because gabapentin has been useless and the chronic pain- numbness- lack of sleep is taking a toll.
Thank you for any input you share 🙏🏻