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I've had a headache for nine months straight.

Posted by @taylor_r_p in Brain & Nervous System, May 9, 2014

I'm not even sure what group to post this in. I am simply hoping there is someone here who may have the knowledge to help me.

My name is Taylor. I am a twenty year old female, from Colorado. Mostly healthy, I've never had any serious medical concerns until recently. For the last nine months(ten months officially on the 15th) I have been dealing with a headache. I mean a constant, hadn't gone away at all, headache. It started on July 15th 2013. I have suffered from headaches my whole life so I thought nothing of it. After a few weeks, and it still hadn't stopped, it became more concerning to me. Especially when I started to experience other symptoms. I was becoming violently ill, often vomiting up all of my food. I was down to two,sometimes only one, meal a day. Since this started I have lost a significant amount of weight and continue to. My hands,arms,feet, and legs began going numb. I was constantly dizzy and often passing out. I have had a few episodes where my left eye would go dark, I could see out of my right but not the left. On September 4th 2013 my arms began hurting, with shooting pains in both arms. I was shaking and dizzy, so I went in to the ER. They did a CT scan and found that I had three small calcified spots, Meningioma's. I was told to visit a neurologist to check into these. I set up an appointment and long story short, they didn't appear to be harming me. The doctors don't think they're the cause of my symptoms. I began taking a series of tests. They did blood tests and discovered that I have Rocky Mountain Spotted fever. I was given antibiotics, but the symptoms persisted so that doesn't seem to be the cause either. I have had an MRI to look for signs of Multiple Sclerosis. That came back fine with no signs of it, nor signs of anything else. I was tested for Lyme Disease and that came back negative. I've had an EEG to see if I am having seizures, that too came back fine. My doctors seem to have run out of options and don't know what to do next. I am hoping and praying someone might have heard of, or experienced something similar. I just want answers, and to be pain free again. I would greatly appreciate any thoughts, comments, ect that might help me figure this out. Thanks so much for reading this long post!!

Tags: headaches, migraines, meningioma, numbness, dizziness, nausea, weight loss

Posted by @Margaret_Marie, May 13, 2014

Hi @taylor_r_p. I'm so sorry to hear about your ongoing pain. Here is some information on meningioma that might be helpful for you: Does anyone else have thoughts or comments?


Posted by @taylor_r_p, May 14, 2014

Thank you so much for reading my post, and sharing this info with me. I honestly appreciate it!


Posted by @mcmahome, May 13, 2014

Hi @taylor_r_p

You should check out about chronic pain and visiting a chronic pain clinic Mayo has an adult and pediatric outpatient and 3 week program

the biggest thing is to know with chronic pain that it might not go away but there are techniques you can learn to help you cope and the most important thing is to get you back to functioning and participating in life despite your pain.

Hang in there you're not alone I've talked with other people with similar stories, try to get to a team of specialist who can help you develop the skills needed to counter the pain mentally, biologically, and physically.


Posted by @taylor_r_p, May 14, 2014

Thank you for taking the time to read my post! I greatly appreciate it. I am looking at contacting some different specialist to get second opinions. Thanks again for reading my post,sharing this info with me,and for your encouraging words!

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