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drdung86
@drdung86

Posts: 2
Joined: May 07, 2016

12 month old daughter diagnosis trachea hemangioma

Posted by @drdung86, May 7, 2016

im a peditricians, and a have a daughter 12months old. she was diagnosis trachea hemangioma. She was done tracheotomy and used propanolol 2mg/kg/day 5 month ago.
I want to treat completely for her
Help me

REPLY

Hi @drdung86. Welcome to Connect. I’m sorry to hear about your baby girl, but it sounds like you are doing all the right things. Here is some information from Mayo Clinic about treatment options for hemangiomas: http://www.mayoclinic.org/diseases-conditions/hemangioma/diagnosis-treatment/treatment/txc-20202405. Has your physician discussed whether laser treatment is an option? I’m tagging @cobs and @donna38 who have posted about hepatic hemangiomas and may be able to provide some insight on treatment. Hope this helps!

Thank you so much, i hope that laser may help my daughter, but in my country, we dont have any laser so my physician dont have experience about this. Thanks you so much

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@drdung86

Thank you so much, i hope that laser may help my daughter, but in my country, we dont have any laser so my physician dont have experience about this. Thanks you so much

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For any country that does not have adequate facilities for laser therapy, it might be possible to start a non-profit organization dedicated to providing such laser therapy. The Gates Foundation might provide advice on how to proceed.
http://www.gatesfoundation.org/How-We-Work/General-Information/Grant-Seeking-Resources

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