If you want we can communicate on our profile. This might be a bit more private way to ask and answer questions.
I was diagnosed with PSC and began the urso. For about 10 years I had very few symptoms, except for some fatigue, nausea, indigestion. Eventually my PSC developed other symptoms, and my GI referred me to Transplant clinic for treatment. It is a scary thing to have, especially since very few people have even heard of it. Also everybody’s case seems to follow a different path as the disease seems to have a mind of its own. I was near 50 yrs old at the time of diagnosis. I needed a transplant at 60, and am now a very healthy active 64 yr. old. I would be happy to try to help you with your concerns. My advice to you is to learn all you can from reliable sources, and focus on taking care of yourself. That way you can be prepared if your PSC develops other symptoms. @donnadpw