Share this:
rocco

I WANT TO DISCUSS HEP C TREATMENT

Posted by @rocco in Infectious Diseases, Jul 30, 2011

DISCUSS WITH ANYONE WHO IS GOING THRU TREATMENT OR HAVE HAD TREATMENT FOR HEP C

Tags: Infectious Disease, hepatitis C

CeeSharr and ROCCO like this
scaredsis27

Posted by @scaredsis27, Aug 4, 2011

My brother has hep c and his liver enzyme levels are 458. How bad is this?

lili

Posted by @lili, Aug 23, 2011

scaredsis... I'm not a doctor, but I can say the fact that he's had lab test is a positive step. No doubt he'll follow through. The best thing you can do is offer him your support, especially when and if he undergoes treatment. I don't feel comfortable commenting further.

lili

Posted by @lili, Aug 23, 2011

.

peggydeal222

Posted by @peggydeal222, Nov 14, 2011

that is very high. i have been thru treatment 4x. u r talking ast and alt? do u know total bil?

lili

Posted by @lili, Aug 23, 2011

Rocco, I'm starting my first week on Hep C treatments: incivik, ribivirin, pegasys. Aside from getting used to the daily routine, not unduly bad. Although I do have skin rash already. Have you begun treatment?

ROCCO and lili like this
rocco

Posted by @rocco, Aug 23, 2011

To: lili - I would ike to repy to the message I recieved at 10:51 pm -not sure how to
where would i direct my message--- Rocco

motherofthree

Posted by @motherofthree, Aug 31, 2011

I am wondering how bad the treatment really is...My Dr. has said that I can not start my treatment until I am cleared by a Psychiatrist...Is the depression really that bad? I also have Hep C Genotype 1 and have Stage 5 Cirrhosis. I am scared of the treatment but planning to start sometime soon.

ROCCO likes this
rocco

Posted by @rocco, Sep 4, 2011

Hi – motherofthree
We are in about the same position. Since I’m on an anti depressant, my liver doctor
wants either my regular doctor or my therapist to say that my depression is under
control. I’ve talked to a couple of people who are taking the treatment and neither
of them mentioned any thing about feeling depressed. But my liver doctor says that
people that are depressed can get more depressed.
I was also told that I had to be smoke-free for six months.
I’m scared of the treatment too some people get sick while on treatment. But the two people now having treatment say it’s not too bad
Stay in touch; and best wishes. Rocco

Lets become friends--mother of three

nancy7

Posted by @nancy7, Jan 29, 2012

What kind of doctor is a liver doc. I go to a infectious disease doctor but don' t really like him. He says I'm at stage 4 cirrhosis. I'm starting to have some pain and bloating. What about the meds for hep B he says I have to do that has anyone else? Is everyone on here being treated at Mayo?

lee222

Posted by @lee222, Sep 17, 2011

i had to go to mental health but my depression wasnt that bad i finished my 48 week shots on tuesday only had minor side effects that i know about

janeen

Posted by @janeen, Aug 24, 2011

i have hep c and just found out april 1,this year i now have liver cirrhosis and am suppose to start hep c treatment .just wondering if there is anyone in a similar situation of being treated for hep c after finding out they have cirrhosis?

rocco

Posted by @rocco, Aug 25, 2011

hi janeen--thanks for your message; i'm in stage 3 liver disease. I think full blown corrhosis is stage 5. Some people think lower stges are also called cirrhosis.
So, find out what stage your in. Non- the- less, we are close to the same amount of liver damage. I have genotype 1; the hardest to cure. My chances are about 80%; with the new drug now availible. I haven't started treatment yet. but i think i will in a month or so.

peggydeal222

Posted by @peggydeal222, Nov 13, 2011

i also had 3 biopsies and last was 3+ stage started treatment at maintenance level after 3 other times full dose. Depression is big with me as is this time white count and all times platletts. Been geeting 3 shots neuprin week since april to raise white count. Stopped medicine first sept and white count still 2.8 platletts 83. its tough treatment for some

ceesharr

Posted by @ceesharr, Dec 27, 2011

OMG I need the NEW drugs name so I can research it, and force my doctor to use it in me. I am not told about details from the variety of docotors I hve been to. I have mild fibrosis, thats what the Biopsy says. I have the hard one to cure, also. It hurts soooo Bad.

peggydeal222

Posted by @peggydeal222, Jan 19, 2012

Rocco did u start treatment yet? I believe stage 4 is cirrhosis, 5 end stage

anon11518263

Posted by @anon11518263, Jul 27, 2012

Hi rocco just wanted to know if your transamina sgot and sgpt count is high when you have hepa c ? and just wanted to know what are the types of genotype?

lee222

Posted by @lee222, Sep 17, 2011

hello i also have genotype 1 i also have hiv an cirrious i only had minor side effects from the treatment that i know about it was a long 48 weeks but in my situation i had to go for it an pray it works wwish you the best

ceesharr

Posted by @ceesharr, Dec 27, 2011

I have the same genotype, and I was told to do interferon for the 48 weeks. I don't want to. I am vegan and want to do intravenious vitamin C treatments, before I do the later.

sild

Posted by @sild, Jan 28, 2012

did u do the intravenous vit c therapy???? i also thought of doing that but got side tracked w/systemic candida and then my allergist rec alpha lipoic acid intrav which i did twice, not see anything and pay out of pocket so havent proceeded, have been taking standard process supplements to help thyroid and adrenal and stomach function but need to get back to my liver in a more direct way. Last viral load was much increased. are you familiar with lloyd wright triumph over hep c?

peggydeal222

Posted by @peggydeal222, Nov 10, 2011

I have been on the treatment 4 different times. just finished year treatment as maintenace doe half of normal. went off medicine month ago still have very low white count and platletts. have geno type 1 and respond on treatment just so many side effects

ROCCO likes this
ceesharr

Posted by @ceesharr, Dec 27, 2011

My story is without treatments SO FAR but, do I need to use them now that some blood test is at 7million?

peggydeal222

Posted by @peggydeal222, Jan 19, 2012

it is the HCV viral count. What would you like to know??

deliasanderson

Posted by @deliasanderson, Nov 13, 2011

a family friend had it and took all the treatments, he had been in bad shape. he was in rough shape during the treatments, they thought he might have even developed lou gherig's disease but he did not, it's just the drugs really weaken your system in order to give you long term health. he's healthier than most now and does everything, he has no limits and he does push it, karate, biking, travelling, etc..... good luck

ROCCO likes this

Posted by Anonymous-7df50f65, Nov 14, 2011

HI DELIA IT WAS VERY NICE OF YOU TO REPLY TO MY POST. I HAVE THE GO-AHEAD TO GET THE TREATMENT--BUT I'M WORRIED AND HAVE SOME QUESTIONS. I'D LIKE TO BE YOUR FRIEND AND ASK SOME THINGS
ROCCO

nancy7

Posted by @nancy7, Jan 5, 2012

I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.

sild

Posted by @sild, Jan 28, 2012

have u started and what protocol r u following?

nancy7

Posted by @nancy7, Jan 29, 2012

I have not started anything yet just all the tests. I am at stage 4 Cirrhosis and starting to feel pain and bloating. I am also genotype 1 Hep C. I need a doctor I don't care for the infectious disease doctor I've been to. Considering the Mayo Clinic although it is a 12 hr drive from my home.

karen51

Posted by @karen51, Mar 18, 2012

Nancy, go to the Mayo clinic! Their diligence and superb skill saved my life.

nancy7

Posted by @nancy7, Mar 19, 2012

Karen thank you for replying I know your right I'll be calling soon. Is it correct that the first visit they request you be in the area for a week.

karen51

Posted by @karen51, Mar 19, 2012

Nancy, if they did a liver biopsy you should know your degree of damage. If they have not yet done that Mayo will probably do one and they will want to determine your Meld score, but of course it will vary from person to person. I had periodic tests from my gastroenterologist; MRI, endoscopes, ultrasounds, blood work. Mayo will do their own. We only lived a little under two hours away, so we went back and forth. The liver transplant team should be able to tell you at least part of what to expect and how long to plan on being there. You get in the transplant system and you are moved up as your disease progresses. Mayo will probably want you to have blood tests done on a regular basis when you get home. l think that Dr. Michael Charlton was the first person we meet with. It is hard to remember the exact order of everything. Dr. Charlton is the medical director. I was in and out of Mayo (hospitalized) so much that some things just blend together. They are the best in the business and will work solidly to help you. I hope things get better for you. Write me anytime. Karen

nancy7

Posted by @nancy7, Apr 6, 2012

Karen, thank you so much for all the info. I did have a biopsy and am in stage four. I'm only starting to have problems that I think the liver is causing. Did you say if you have hep c? What do they treat first?? Again thanks a bunch!!! Nancy

karen51

Posted by @karen51, Mar 19, 2012

I should of said that as your meld score gets higher you get closer to a transplant. Mine was not high enough when I initially went to Mayo, but over the years it went up. I was already end stage in 1997.

Please login or become a member to post a comment.