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ROCCO
@rocco

Posts: 12
Joined: Jul 30, 2011

I WANT TO DISCUSS HEP C TREATMENT

Posted by @rocco, Jul 30, 2011

DISCUSS WITH ANYONE WHO IS GOING THRU TREATMENT OR HAVE HAD TREATMENT FOR HEP C

Liked by CeeSharr, ROCCO

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scaredsis27
@scaredsis27

Posts: 2
Joined: Aug 04, 2011
Posted by @scaredsis27, Aug 4, 2011

My brother has hep c and his liver enzyme levels are 458. How bad is this?


lili
@lili

Posts: 6
Joined: Aug 23, 2011
Posted by @lili, Aug 23, 2011

scaredsis… I’m not a doctor, but I can say the fact that he’s had lab test is a positive step. No doubt he’ll follow through. The best thing you can do is offer him your support, especially when and if he undergoes treatment. I don’t feel comfortable commenting further.


lili
@lili

Posts: 6
Joined: Aug 23, 2011
Posted by @lili, Aug 23, 2011

.


peggydeal222
@peggydeal222

Posts: 9
Joined: Nov 10, 2011
Posted by @peggydeal222, Nov 14, 2011

that is very high. i have been thru treatment 4x. u r talking ast and alt? do u know total bil?


lili
@lili

Posts: 6
Joined: Aug 23, 2011
Posted by @lili, Aug 23, 2011

Rocco, I’m starting my first week on Hep C treatments: incivik, ribivirin, pegasys. Aside from getting used to the daily routine, not unduly bad. Although I do have skin rash already. Have you begun treatment?

Liked by ROCCO, lili


ROCCO
@rocco

Posts: 12
Joined: Jul 30, 2011
Posted by @rocco, Aug 23, 2011

To: lili – I would ike to repy to the message I recieved at 10:51 pm -not sure how to
where would i direct my message— Rocco


motherofthree
@motherofthree

Posts: 1
Joined: Aug 31, 2011
Posted by @motherofthree, Aug 31, 2011

I am wondering how bad the treatment really is…My Dr. has said that I can not start my treatment until I am cleared by a Psychiatrist…Is the depression really that bad? I also have Hep C Genotype 1 and have Stage 5 Cirrhosis. I am scared of the treatment but planning to start sometime soon.

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ROCCO
@rocco

Posts: 12
Joined: Jul 30, 2011
Posted by @rocco, Sep 4, 2011

Hi – motherofthree
We are in about the same position. Since I’m on an anti depressant, my liver doctor
wants either my regular doctor or my therapist to say that my depression is under
control. I’ve talked to a couple of people who are taking the treatment and neither
of them mentioned any thing about feeling depressed. But my liver doctor says that
people that are depressed can get more depressed.
I was also told that I had to be smoke-free for six months.
I’m scared of the treatment too some people get sick while on treatment. But the two people now having treatment say it’s not too bad
Stay in touch; and best wishes. Rocco

Lets become friends–mother of three


lee222
@lee222

Posts: 5
Joined: Sep 17, 2011
Posted by @lee222, Sep 17, 2011

i had to go to mental health but my depression wasnt that bad i finished my 48 week shots on tuesday only had minor side effects that i know about


Nancy7
@nancy7

Posts: 7
Joined: Jan 05, 2012
Posted by @nancy7, Jan 29, 2012

What kind of doctor is a liver doc. I go to a infectious disease doctor but don’ t really like him. He says I’m at stage 4 cirrhosis. I’m starting to have some pain and bloating. What about the meds for hep B he says I have to do that has anyone else? Is everyone on here being treated at Mayo?


janeen
@janeen

Posts: 1
Joined: Aug 24, 2011
Posted by @janeen, Aug 24, 2011

i have hep c and just found out april 1,this year i now have liver cirrhosis and am suppose to start hep c treatment .just wondering if there is anyone in a similar situation of being treated for hep c after finding out they have cirrhosis?


ROCCO
@rocco

Posts: 12
Joined: Jul 30, 2011
Posted by @rocco, Aug 25, 2011

hi janeen–thanks for your message; i’m in stage 3 liver disease. I think full blown corrhosis is stage 5. Some people think lower stges are also called cirrhosis.
So, find out what stage your in. Non- the- less, we are close to the same amount of liver damage. I have genotype 1; the hardest to cure. My chances are about 80%; with the new drug now availible. I haven’t started treatment yet. but i think i will in a month or so.


peggydeal222
@peggydeal222

Posts: 9
Joined: Nov 10, 2011
Posted by @peggydeal222, Nov 13, 2011

i also had 3 biopsies and last was 3+ stage started treatment at maintenance level after 3 other times full dose. Depression is big with me as is this time white count and all times platletts. Been geeting 3 shots neuprin week since april to raise white count. Stopped medicine first sept and white count still 2.8 platletts 83. its tough treatment for some


CeeSharr
@ceesharr

Posts: 5
Joined: Dec 27, 2011
Posted by @ceesharr, Dec 27, 2011

OMG I need the NEW drugs name so I can research it, and force my doctor to use it in me. I am not told about details from the variety of docotors I hve been to. I have mild fibrosis, thats what the Biopsy says. I have the hard one to cure, also. It hurts soooo Bad.


peggydeal222
@peggydeal222

Posts: 9
Joined: Nov 10, 2011
Posted by @peggydeal222, Jan 19, 2012

Rocco did u start treatment yet? I believe stage 4 is cirrhosis, 5 end stage

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