Share this:

I need help taming my Ulcerative Colitis

Posted by @kolitis in Digestive Health, Nov 26, 2011

Hello everyone, so here's my background:

> male, 20 years old
> diagnosed with UC on July 12th, 2011
> I decide on homeopathic treatment, combined with specific carb diet
> still bleeding, bloating, and cramping after 2 months of this regimen
> had a few very bad days, characterized by severe urgency, pain, and very little sleep
> try asacol (oral mesalamine) 800mg/day, does not help
> need to use the bathroom at least 12 times per day, sometimes within 2 minutes of each other
> give in to Dr's suggestion, start Prednisone 40mg/day
> bleeding gone in 2 weeks, cramping, bloating significantly decreased, sleeping increased
> also I began doing butyrate acid and mesalamine enemas (not fun)
> usually I'd aim for 2 per day (one of each type) but sometimes I'd only do one
> kept up with enemas, tapered off Prednisone after about 2 months (40mg, 30mg, 20mg, 15mg, 10mg, 5mg, 2mg, 1mg, 0mg, one week at each dose)
> Start Lialda (oral mesalamine) 2.4g/day to aid in tapering of Prednisone.
> November begins, and I have not seen blood in a very long time. I still get up in the night, sometimes many times, sometimes only once. Urgency occurs rarely in the daytime, and always occurs at night, specifically when I try to lay down.
> Today, the only remaining symptom is my stool consistency. I have not achieved a solid stool yet. The best my stool ever looks is semi-solid, formed little pieces. Like a normal poop but miniature-sized, and more pieces.
> I am still on Lialda, and I still do at least one enema per day. I take fish oil, and digestive enzymes as well. As far as diet, I still do not eat any dairy, yeast, refined sugars, raw fruit or vegetables, red meat, and I only drink water and coconut water.

Stool consistency usually has to do with re-uptake of fluids, so I ask you, what could be going wrong inside my gut that is still making my bowel movements so watery and soft.

How, in God's name, do I get my stools to become more formed? I feel that I've done everything to get back into remission. Any help you may have would be greatly appreciated 🙂

Tags: ulcerative, colitis, ulcerative colitis, IBD, gastroenterology, colon disease, stomach, pain, digestive, cramps, Bleeding, bowel movements, Bowel, movement


Posted by @glutenfreecuredmycrohns, Jan 6, 2012

You sound like me before I went gluten-free. Get off the gluten and you will be amazed.


Posted by @holzmantm, Mar 25, 2012

Other than a recent flare up - mild bleeding and about a 30% loss of energy for the last two weeks - I've been doing really well for the last year after adopting a big change in my diet (which may have the gluten free benefits the other guy here is talking about). I started eating "Primally" (all pasta, rice, bread, etc. are gone from my diet) and Mark Sisson has become a source of great nutritional and fitness information for me (go to: Since I went Primal last year, stopped taking my colitis meds, and kicked my acid reflux (which I had for 7-8 years) almost completely (not taking Nexium anymore).

I think I caused my recent flare (at least I'd like to think I did) by upping my training 2 1/2 weeks ago and then topping the end of the week off with 4 Margaritas (after not drinking for a while).

I'd love to hear anyone's thoughts on the potential adverse effects off "too much" exercise and alcohol.

Thanks...and good luck everyone!



Posted by @susieqpants, Jul 23, 2012

I haven't been able to drink alcohol in over years due to my UC...its like having food poisoning for days on end if I even have a tiniest sip...It is fun however, to get pity faces as people assume I am an alcoholic because I don't drink


Posted by @gfrancis, Mar 20, 2012


Edited: 02/01/2015 @ 10:40pm


Posted by @karma, Jun 9, 2012

Have you been on the drug Remicade? My son will be having his third infusion this Monday. It is a very scary disease for me to watch him experience. He also takes Asacol (4800 mg per day). He is still on Imuran, too. It did not work on its own, so they added the Remicade infusions after his second, huge, flare-up that landed him in the hospital for five days. Any suggestions for us are also welcomed!! Where are you being treated? My son is currently being treated at the University of Michigan. I am willing to go elsewhere for a second opinion, especially if he has another flare.


Posted by @bolo49, Jul 24, 2012

I'm sorry to hear you are suffering so and at such a young age. I've had UC for 18 years now. It's controlled but I rarely have solid stools and still have about 5 BM per day. I've recently cut out meat and that seems to make a huge difference. Try sleeping on your back or sleep propped up as it will not bother the UC as much. I should be on Asacol but the price is too steep for me. Another thing that seems to affect the UC for me is stress. I find that when my stress levels are down and my diet is good, my bowels look almost normal. Best of luck.

Please login or become a member to post a comment.