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major
@major

Posts: 4
Joined: Feb 08, 2016

I have small cell cancer in lungs, liver, kidney, etc.

Posted by @major, Feb 8, 2016

I have small cell cancer in lungs, liver, kidney, etc. Round-1 platans & Round-2 red devil, did not work at all. Following I had a spontaneous tension pneumothorax that keep me in the hosp. for 3weeks. Round-3 is afinitor/taxol that starts next week. I really don’t want to die, does anyone out there have any other suggestions. I am running out of time here! President Carter got cured, why can’t I ?

REPLY

Hi @major,
Welcome to Connect. I’m glad you found us.

You asked “President Carter got cured, why can’t I?” The answer comes in several parts.
1. President Carter had a different type of cancer. He had metastatic melanoma, which is a type of skin cancer that has spread to other parts of the body. Each type of cancer grows differently, is treated with different treatments and drugs, and responds to treatment differently.
2. Even 2 people with the same cancer may respond differently to treatment. It depends on many different factors.
3. Only the media speaks about curing cancer. President Carter never said cured. His healthcare team would have said he is in remission, meaning the cancer is no longer growing.

This article talks more about “What the media got wrong about Jimmy Carter’s cancer “cure”” http://www.healthnewsreview.org/2015/12/what-the-media-got-wrong-about-jimmy-carters-cancer-cure/

But let’s talk about you. I’m sorry to hear that the first 2 rounds of chemo had little effect. But it is good that there is another chemo combination option. I’m going to tag Connect members @nikolaiw @frankgoss @buddyotto @3morris who also have lung cancer and bring them into this discussion.

Major – when do you go for chemo?

Colleen
Connect Community Director

My commander-in-chief is taking pembeolizumab (Keytruda) for his brain cancer. Has this work for small cell cancer patients ? I start round-3 tomorrow morning !

HELP ME PLEASE – I have serve this country for most of my life. Now I need America to come thru for me …

@major

My commander-in-chief is taking pembeolizumab (Keytruda) for his brain cancer. Has this work for small cell cancer patients ? I start round-3 tomorrow morning !

HELP ME PLEASE – I have serve this country for most of my life. Now I need America to come thru for me …

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I found some information for about pembeolizumab (Keytruda) for Non-Small Cell Lung Cancer, but it doesn’t appear to be used in Small Cell Lung Cancer.
http://www.mayoclinic.org/drugs-supplements/pembrolizumab-intravenous-route/description/drg-20122552
http://www.cancer.gov/about-cancer/treatment/drugs/pembrolizumab

The cells in Non-Small Cell Lung Cancer vs. Small Cell Lung Cancer behave differently and therefore different chemotherapies are used. Here’s a brief description about what this means http://www.mayoclinic.org/diseases-conditions/cancer/expert-answers/cancer/faq-20058509

I think you have some important questions for your cancer care team. I encourage to ask them everything that concerns you, and enough so that you know your options and what you can expect. You may also consider getting a second opinion.

Tips for seeking second opinion on cancer care http://www.mayoclinic.org/diseases-conditions/cancer/expert-blog/cancer-treatment-second-opinion/bgp-20056385

All the best tomorrow.

Thanks for your prompt reply. I am looking for the latest worldwide chemotherapy that has cured small cell cancer. I start Afinitor developed in France tomorrow. But what’s next, Interferon (intron-A) from UK, or IV vitamin-C or TACE or SirSpheres or ? Something new that was discovered that I do not know about yet? My fingers hurt from searching day and night on line and I just don’t want to miss a possible cure. I like others have a large extended family dependent on me, not to mention work colleagues and others that don’t even know I am sick as I have showed little to no side effects … army strong … HELP ME FIND IT. I have no need for a second openion as my oncologist did his chemoresidency at Mayo.

Great that you have confidence in your oncologist! You want to trust your team. Remember to distinguish between non-small and small cell lung cancer in your Internet searches, and to ensure the sources of information are reputable.

Have you found articles that indicate the use of TACE or SirSpheres in small cell lung cancer? You might be interested in reading this thread https://connect.mayoclinic.org/discussion/does-anyone-have-experience-with-receiving-tace-or-sirspheres-which-are-2/ where @sue_in_delaware and @Laydeewinx talk about their experiences.

Have you asked your oncologist about new therapies or clinical trials?

Your are good ! but like the Dayton Agreement, one must trust but verify to use a military strategy. Thus, I am the second opinion by researching periodicals and medical journals. Cuba uses Interferon for lung cancers and it is widely used in the UK, is this avaliable here in the USA, if so where ? If not would Mayo consider a trial ?

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