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jfinlay

I have recently been diagnosed (July 28, 2011) with myelofibrosis, a rare

Posted by @jfinlay in Just Want to Talk, Dec 28, 2011

I have recently been diagnosed (July 28, 2011) with myelofibrosis, a rare form of leukemia. I'm scheduled to see Dr. Tefferi at the Mayo Clinic in Minnesota in February. I'm trying to find out if there is a medication that will relieve some of the bone pain associated with this leukemia. My insurance will not pay for the new drug Jakafi ($7000 per month). All comments welcomed. John

djr

Posted by @djr, Jan 4, 2013

There is help to pay for this drug. Talk to your doctor. An organization called Chronic Disease Fund, 6900 N. Dallas Pkwy, Ste. 200, Plano TX 75024, phone #877-968-7233. You will need to furnish income statements (incl 1040) You may get billed for a small co-pay $10.00 from Accreddo Drug. Drug is shipped only with a one months supply. Any more questions? djr

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