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suzisuzuki
@suzisuzuki

Posts: 1
Joined: Aug 28, 2011

I have just been diagnosed with "Sarcoidosis" after surgery to remove two

Posted by @suzisuzuki, Aug 28, 2011

I have just been diagnosed with “Sarcoidosis” after surgery to remove two lumps in my arm. I have since had Bloodwork, a Chest Xray, and a Cat Scan of my chest done. The diagnosis was confirmed and the cat scan indicated that the sarcoidosis is pretty extensive in my lungs. I’m waiting to see a Pulmonologist Sept. 26th. Is there anyone else out there who’s been diagnosed with this auto-immune disease?

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Gloey
@gloey

Posts: 2
Joined: Aug 28, 2011
Posted by @gloey, Aug 28, 2011

No but, I Pulmonary Hypertension which is a serious heart and lung problem. in 2002 I was told I only had 6 mths to 2 years and then would either die or need a double lung transplant. Wa la, I am still here. Can you explain your disease, maybe we have something in common.

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