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Lung transplant possible for a person with dermatomyositis with ILD?

Posted by @buttons, Apr 22, 2016

I have dermatomyositis with ILD for over 13 years. Since dermatomyositis is an autoimmune disease could a patient like me be able to have a transplant or would my body attack the new lung also?

REPLY

Good question @buttons.
I’m tagging @vickis @charbaby @dbdeer on this discussion to see if they have any thought.

Did you see the webinar Interstitial Lung Disease and Lung Transplant: What Patients Need to Know hosted by Cassie Kennedy, M.D., Transplant Pulmonologist, and Teng Moua, M.D., Interstitial Lung Disease Clinic Director? You can watch it here: https://connect.mayoclinic.org/discussion/a-interstitial-lung-disease-and-lung-transplant-what-patients-need-to-know/

Has a lung transplant been suggested for you at this time?

Liked by Ali Skahan

@colleenyoung

Good question @buttons.
I’m tagging @vickis @charbaby @dbdeer on this discussion to see if they have any thought.

Did you see the webinar Interstitial Lung Disease and Lung Transplant: What Patients Need to Know hosted by Cassie Kennedy, M.D., Transplant Pulmonologist, and Teng Moua, M.D., Interstitial Lung Disease Clinic Director? You can watch it here: https://connect.mayoclinic.org/discussion/a-interstitial-lung-disease-and-lung-transplant-what-patients-need-to-know/

Has a lung transplant been suggested for you at this time?

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Hi Colleen, none of my doctors have said anything at this time. I was checking out my options for who knows when I might need a transplant. Dermatomyositis is a disease that’s somedays I believe has a mind of its own.

Good morning Buttons.
Wise to do your research now. We put your question to Dr. David B. Erasmus, pulmonologist and transplant specialist at Mayo Clinic, Florida. He said:

“Patients with dermatomyositis can be evaluated for lung transplantation. Some of the other organ involvements may pose problems, especially if there is significant muscle weakness, but each individual case should be assessed on its own merits. All lung transplant recipients require lifelong immunosuppression, but the risk of such episodes should not be more likely in a patient with dermatomyositis. We have performed lung transplantation in selected individuals with dermatomyositis at our transplant center.”

I’m glad that you’ve started the discussion about dermatomyositis (https://connect.mayoclinic.org/discussion/dermatomyositis/) so others with this condition will have a group of people to connect with. Thank you.

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