Share this:
mllucas

I have CIDP (Chronic Infammatory Demyelinating Polyneuropathy).

Posted by @mllucas in Just Want to Talk, Mar 24, 2012

I have CIDP (Chronic Infammatory Demyelinating Polyneuropathy). It is now affecting autonomic nervous system and it's getting kind of scary. I respond well to IV IgG (intervenous human immunoglobulin) but new insurance company won't pay for it. How do you fight to get it.

bburleson1

Posted by @bburleson1, Mon, Aug 22 at 9:04am CDT

I live outside Dallas Texas and have had 4 IVIG treatments, so far no problem with insurance. I haven't had a noticeable difference in my symptoms. How long did it take for the IVIG to make a difference. I have numbness in hands and feet and legs up to my knees. Severe balance problems. I have to use a walker. I'm looking for hope and encouragement.

Please login or become a member to post a comment.