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mllucas
@mllucas

Posts: 1
Joined: Mar 24, 2012

I have CIDP (Chronic Infammatory Demyelinating Polyneuropathy).

Posted by @mllucas, Mar 24, 2012

I have CIDP (Chronic Infammatory Demyelinating Polyneuropathy). It is now affecting autonomic nervous system and it’s getting kind of scary. I respond well to IV IgG (intervenous human immunoglobulin) but new insurance company won’t pay for it. How do you fight to get it.

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bburleson1
@bburleson1

Posts: 8
Joined: Aug 19, 2016
Posted by @bburleson1, Aug 22, 2016

I live outside Dallas Texas and have had 4 IVIG treatments, so far no problem with insurance. I haven’t had a noticeable difference in my symptoms. How long did it take for the IVIG to make a difference. I have numbness in hands and feet and legs up to my knees. Severe balance problems. I have to use a walker. I’m looking for hope and encouragement.

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