I have a diagnosis of neurofibromatosis. Mostly managed by balancing diet, exercise, rest, stretching, ice packs, ibuprofen alternated with acetaminophen. If I am losing sleep, due to pain I have a Rx for hydrocodone 5/500 or Lyrica 25mg. My PCP has said she will refer me to the mayo clinic. The pain management clinic I went to recommends my next step be surgery. I am interested in others and how they have managed and or been helped thru the Mayo Clinic.
Please advise and thank you for your time, Trisha