Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Hi everyone. I am so glad to have found this group as I’m very confused. I don’t know whether I have a prolapse or not and my last OBGYN visit, she said everything was great. I didn’t notice this until I got really constipated and I can feel a bulge between my vagina and rectum. Although I have hemorrhoids from childbirth I don’t seem to have anything else back there unusual and nothing is coming out the vagina either. It’s just this bulge like the rectum is taking a turn down before deciding to come out…This is so hard to discuss…does anyone else feel this way. I am actually blushing writing this stuff. How do I know if it’s bladder? Vagina? Rectal? Do I speak with my OB? I am 56. Menapause for about 5 years on HRT. I also noticed that a very strong orgasm seems to make everything push down? What to do?

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Hello Maisie

Have you considered going to a specialist to give you a second opinion whether or not you have a prolapse. Sometimes it can go undetected. What about a physio thereapist who deals with prolapse as well. They can give you an internal examination as well and maybe detect a prolapse or not. I think if you are still feeling uncomfortable and uncertain, you need a second opinion to be sure. I have had a prolapse for over ten years now and my prolapse is a stage 3, so it would protrude out of my vagina area if I did not wear my support. I hope you find out soon by getting a second opinion to ease your mind. Blessings to you.

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Hello Maisie,
I am sorry you have to deal with the discomforts of pelvic floor dysfunction. It is frustrating to find informed answers for sure, as there is much misinformation and partial information out there. Because of the different ways pelvic floor dysfunction and pelvic floor prolapse can manifest, Tanglefoot’s recommendation to seek the opinion of a specialist is a good one. A differential diagnosis is imperative in making the right decisions while moving forward to get answers. I would recommend a Uro-Gynecology center. These teams of clinicians include specialized physician assistants, specialized physical therapists and nurses, specialized gynecologists, and very specialized surgeons. A comprehensive center will provide good patient information, which helps you move forward and have some level of informed control. In order to gain a complete perspective on your needs, specific tests must be performed. These tests provide functional and physical measurements. Before any treatment and surgical decisions are made, the information from these tests must be looked at and considered by a team, with the patient included. There are various treatment options out there, but these treatments need to be targeted and accurate, or they may not work. Surgery is always the last option, as outcomes are never perfect. So the scale must be weighed in carefully. Please do not feel self conscious about this topic. This is an important topic, and one’s day to day life can be devasted by the varying degrees of this condition. Hang in there and don’t be afraid to ask questions and advocate for your future.
Respectfully,
UPArtist

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Has anyone had any experiences with a cystocele? (prolapsed bladder)

Liked by cindys55555

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Welcome, @AlwaysHopeful.
I moved your message to this existing and active discussion about cystocele and other prolapse, so that you could meet fellow members talking about this important topic.
You may also be interested in these past discussions:
– scheduling sacrocolpopexy and cystocele repair…more than a little scared http://mayocl.in/2iWHE4a to read the messages by @wandili @montanagal @operationqueen

AlwaysHopeful: how are managing the prolapse? Do you have any questions you’d like to ask the group?

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hello I am interested in talking with anyone who has used the hide a way for a prolapsed bladder also any one who has had surgery about 5 months ago I was getting dressed and felt something weird down there and saw something with a hand mirror that shouldn’t be there I went to my gyn and was told I had a form of a prolapse (the first time I had ever heard of this) I am 56 and had 2 very large babies not to mention 2 cysts removals one on each ovary in the past…I also started to get extreme pain I ended up in the ER and was told I had too much stool in my bowel….it turns out I also have pelvic floor muscle spasms ended up with a uro gyn and P/T the uro gyn dr. said I have 3 choices do nothing and it will get worse ( i have both utral and bladder stage 2) try the pessary or surgery so I tried the pessary 3 different times I was able to tolerate one for about a week but it rubbed me raw and i developed a horrible infection the P/T has helped with the spasms and now feel the only other option I have is surgery my life has changed for the worse unable to stand or sit to long with out feeling as thought my insides will fall right out not to mentions the lower it falls then the spasms come right back I need to get back to life is surgery the only true fix…one and done…but the more I read the less i eel this is true he wants to do a stitching only no mesh…dos the hide a way really work? sorry for such a long post but am in need of some advise thank you

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Hi Mrs. Tanglefoot…have you had surgery if so what type I am considering this and like you do want to fix not mask the problem but am very afraid of surgery but need to be active and feel alive again thank you in advance for your time

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@pizon

hello I am interested in talking with anyone who has used the hide a way for a prolapsed bladder also any one who has had surgery about 5 months ago I was getting dressed and felt something weird down there and saw something with a hand mirror that shouldn’t be there I went to my gyn and was told I had a form of a prolapse (the first time I had ever heard of this) I am 56 and had 2 very large babies not to mention 2 cysts removals one on each ovary in the past…I also started to get extreme pain I ended up in the ER and was told I had too much stool in my bowel….it turns out I also have pelvic floor muscle spasms ended up with a uro gyn and P/T the uro gyn dr. said I have 3 choices do nothing and it will get worse ( i have both utral and bladder stage 2) try the pessary or surgery so I tried the pessary 3 different times I was able to tolerate one for about a week but it rubbed me raw and i developed a horrible infection the P/T has helped with the spasms and now feel the only other option I have is surgery my life has changed for the worse unable to stand or sit to long with out feeling as thought my insides will fall right out not to mentions the lower it falls then the spasms come right back I need to get back to life is surgery the only true fix…one and done…but the more I read the less i eel this is true he wants to do a stitching only no mesh…dos the hide a way really work? sorry for such a long post but am in need of some advise thank you

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Hello There Pizon

I have had a prolapse bladder for a very, very long time. Over 8 years now. When I get up in the morning your prolapse is at its best because you have been laying down all night. However, once we get up the prolapse starts to fall down further in to the vagina area and then suddenly it is at the opening of the vagina. It looks like a pink ball coming out. I cannot wear a pessary at all and I will not have surgery because of all the horrible results I have heard from people who have had surgery. I think the best route one can take is to follow the instructions of the physio therapist to strengthen our pelvic floor muscles that hold up our organs, organs such as the bladder, uterus and rectal. Once our muscles get weak the organs start to prolapse and fall down and that’s why we have this problem in the first place.
I highly recommend the Hideaway Prolapse Support garment. I put it on every morning after I go to the washroom and I am good for thw whole day. It reduces the feeling of my insides falling out and it supports the vagina area so the prolapse will not fall out. Most of the time when I wear my Hideaway I forget I even have a prolapse. I have been told that this Hideaway is being tested by two doctors and the results are very good so far. I think you should Google the words “Hideaway Prolapse Support Garment” and then click on the web site and read the testimonials from ladies like me who are wearing it. Those are the ladies that understand what we are going through and they will tell you what they think of the Hideaway. I would never, ever let anyone put mesh inside of me or anything else for that matter. If you can pee normally and you can have bowel movments okay, then all you need to do is wear a support and practice physio therapy pelvic floor exercises to help you as well. I hope I have helped you to feel better. I am walking in your shoes and my prolapse is a stage 3 and would hang out of my vagina area if I did not have my Hideaway on. Tanglefoot

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@pizon

hello I am interested in talking with anyone who has used the hide a way for a prolapsed bladder also any one who has had surgery about 5 months ago I was getting dressed and felt something weird down there and saw something with a hand mirror that shouldn’t be there I went to my gyn and was told I had a form of a prolapse (the first time I had ever heard of this) I am 56 and had 2 very large babies not to mention 2 cysts removals one on each ovary in the past…I also started to get extreme pain I ended up in the ER and was told I had too much stool in my bowel….it turns out I also have pelvic floor muscle spasms ended up with a uro gyn and P/T the uro gyn dr. said I have 3 choices do nothing and it will get worse ( i have both utral and bladder stage 2) try the pessary or surgery so I tried the pessary 3 different times I was able to tolerate one for about a week but it rubbed me raw and i developed a horrible infection the P/T has helped with the spasms and now feel the only other option I have is surgery my life has changed for the worse unable to stand or sit to long with out feeling as thought my insides will fall right out not to mentions the lower it falls then the spasms come right back I need to get back to life is surgery the only true fix…one and done…but the more I read the less i eel this is true he wants to do a stitching only no mesh…dos the hide a way really work? sorry for such a long post but am in need of some advise thank you

Jump to this post

Thank you so very much for getting back to me it has been hard to find someone to talk with other then my p/tipst….we had to work on getting rid of the spasms before we could start to strengthen I am working on that part now along with using a crystal wand at home to help keep the spasm’s at bay….dose the hideaway actually go in between the lips of your vagina? I have read the product info and the reviews but am unsure if this is just a band aid….as it stands now I don’t want to move in fear of it falling out and becoming very depressed…the dr. will not use mesh but will suture everything up I haven’t heard any other stories about the surgery other then one and done I just don’t feel like I can live a normal life anymore am looking to hear from someone who has had the surgery thank you again with my prolapse the lower it gets the more pain I am in this is why I am leaning toward the surgery but am very scared (also scared to live life the way I feel now as well)

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Hello Pizon

I am so sorry to hear that you have trouble finding someone to talk about this. But, I can certainly understand why. Prolapse is silent epidemic among women and a lot of them do not want to talk about it. They just want it to go away. The Hideaway does not go between the lips of the vagina. The Hideaway has supportive materials inside the sling of the Hideaway that work with the elastic to help give the required pressure up against the opening of the vagina area so the prolapse cannot fall out or feel like it is falling out. It gives you the support the same way as if when you put your hand up against your vagina from stopping you from peeing until you make it to the washroom. The Hideaway is very, very comfortable and there is no pain while wearing it. It has allowed me to once again enjoy my long walks that I could not do before for the prolapse was starting to hurt because there was not support and it was starting to fall further out of my vagina area. I feel like my old self again because now there is no falling out. The Hideaway is not going to cure anyone with bowel problems or something like that. Only good eating fiber etc is going to make bowel problems become easier and manageable. I have been wearing the Hideaway everyday for a long time now and it does the job I need it to do. I don’t even think about my prolapse anymore until I take off my Hideaway at night before bed and then I once again feel the difference because my prolapse starts to fall out a little without the Hideaway.

Be very careful about surgery because it is not a quick fix. I have heard a lot of negative results when it comes to sewing up the bladder. I am not saying that all surgeries are unsuccessful but I am saying don’t expect any quick fixes or guarantees. I think you would be better off to at least try all the natural remedies before you rush off into surgery. Physio therapy is number one and it can help a lot. Wearing a good support like the Hideaway is number two. Eating properly and keeping your bowels going good and your urinary track is the other important issue you have to take care of.

If you have anymore questions for me feel free to reply on this web site anytime. Stop being afraid to live with a prolapse. It is not life threatening and prolapse has been around since the beginning of time. No one ever died from a prolapse. Again, it is not life threatening. It is just life altering. If we do not want to risk surgery we need to make a plan to try everything we can first to see how that works first. Surgery should be the last resort if possible. I hope I have helped make you feel better. Tanglefoot.

Liked by Jamie Olson

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@tanglefoot

Hello Pizon

I am so sorry to hear that you have trouble finding someone to talk about this. But, I can certainly understand why. Prolapse is silent epidemic among women and a lot of them do not want to talk about it. They just want it to go away. The Hideaway does not go between the lips of the vagina. The Hideaway has supportive materials inside the sling of the Hideaway that work with the elastic to help give the required pressure up against the opening of the vagina area so the prolapse cannot fall out or feel like it is falling out. It gives you the support the same way as if when you put your hand up against your vagina from stopping you from peeing until you make it to the washroom. The Hideaway is very, very comfortable and there is no pain while wearing it. It has allowed me to once again enjoy my long walks that I could not do before for the prolapse was starting to hurt because there was not support and it was starting to fall further out of my vagina area. I feel like my old self again because now there is no falling out. The Hideaway is not going to cure anyone with bowel problems or something like that. Only good eating fiber etc is going to make bowel problems become easier and manageable. I have been wearing the Hideaway everyday for a long time now and it does the job I need it to do. I don’t even think about my prolapse anymore until I take off my Hideaway at night before bed and then I once again feel the difference because my prolapse starts to fall out a little without the Hideaway.

Be very careful about surgery because it is not a quick fix. I have heard a lot of negative results when it comes to sewing up the bladder. I am not saying that all surgeries are unsuccessful but I am saying don’t expect any quick fixes or guarantees. I think you would be better off to at least try all the natural remedies before you rush off into surgery. Physio therapy is number one and it can help a lot. Wearing a good support like the Hideaway is number two. Eating properly and keeping your bowels going good and your urinary track is the other important issue you have to take care of.

If you have anymore questions for me feel free to reply on this web site anytime. Stop being afraid to live with a prolapse. It is not life threatening and prolapse has been around since the beginning of time. No one ever died from a prolapse. Again, it is not life threatening. It is just life altering. If we do not want to risk surgery we need to make a plan to try everything we can first to see how that works first. Surgery should be the last resort if possible. I hope I have helped make you feel better. Tanglefoot.

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yes you have helped and again I thank you very much I am considering the hideaway however I am afraid that the prolapse will become worse and someday fall out if I don’t have the surgery and yes it will be the last resort I just want to be able to garden and walk and play with my grand baby I am looking for a fix not a band aid….however with more research maybe the band aid is the answer…can you exercise with your prolapse I am in need of loosing some weight and want to strengthen my core and now core exercises make it pop out

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Hi Pizon

My mother is in her 80’s and she has a prolapse too. So as far as getting worse , I think the only thing we have to really worry about is that we can go pee okay and have bowel movements okay. My prolapse is not getting any worse since I have been wearing the Hideaway. It can only go to the opening of the vagina if you have a support garment on. It cannot stretch any further or go anywhere if we are wearing something to support it. If we don’t wear a support then of course the bladder can stretch further and further out of our vagina and will protrude quite significantly. Again, if we wear a support it has no where to go, it cannot stretch or fall out because the support is stopping it.

My prolapse has been a stage 3 for over two years now. I have no bowel issues and no urine issues. I eat healthy, I can exercise while wearing the Hideaway because it supports me and keeps my prolapse supported. I can go for walks, ride my bike and play tennis even. I am in my sixties so I am doing quite well living my life while managing my prolapse. Its scary at first when someone has a prolapse because you feel like your insides are going to fall out on the floor. This will not happen. The key is to do those pelvic floor exercises, eat well, don’t lift anything heavy as lifting will make the prolapse worse, try not to have a bad cough, that makes prolapse worse as well. Try not to be constipated as pushing, also pushes the prolapse out at the same time when you go to the bathroom. There is a trick to pushing. I fold up toilet paper and hold it with my hand against my vaginal opening so when I push for a bowel movement my prolapse does not come out because my hand / toilet paper is against the vaginal opening holding it in.

Try to relax Pizon. Its not that bad once you learn to manage a prolapse and work to strengthen the pelvic floor muscles that hold up our organs. I would rather see you try all the positive things before you venture into unknown territories like surgery. What do you think?

Tanglefoot

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Hello Pizon,
I have been following your discussion regarding pelvic floor prolapse. It is a complicated topic with numerous variations on how it occurs. Have you and your medical team determined exactly what kind of prolapse you have? I don’t really see that clarified. Bladder prolapse can occur in tandem with other structures. While the use of assistive devices such as the hideaway or the pessary are good conservative approaches, they may not be affective for a combination prolapse, a severe prolapse, an individual with limited range of motion or mobility, nor on an Enterocele. If there is bowel involved, with protrusion through the enterocoele opening, then surgery is the only option. Before your decision to have or not to have surgery is made, make sure you collect all the information available including possible dynamic imaging. Prolapse is not just muscular weakness. It involves connective tissue. While physical therapy is important and nessesary, pre and post surgery, it can only manage a certain percentage of prolapse pre-surgery. You may be one of those individuals, which would be great. You need informed clinicians to clarify your personal specifics, then discuss these options of the various tools available with your clinicians so these tools can be applied appropriately to your specific prolapse. Maybe our moderator, Colleen, can steer you towards some good articles on the various surgeries with success and failure rates. Look at the methods used, the age groups, and any complicating medical issues. Good luck with this decision. Well rounded Information facilitates good outcomes.
UPArtist

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@upartist

Hello Pizon,
I have been following your discussion regarding pelvic floor prolapse. It is a complicated topic with numerous variations on how it occurs. Have you and your medical team determined exactly what kind of prolapse you have? I don’t really see that clarified. Bladder prolapse can occur in tandem with other structures. While the use of assistive devices such as the hideaway or the pessary are good conservative approaches, they may not be affective for a combination prolapse, a severe prolapse, an individual with limited range of motion or mobility, nor on an Enterocele. If there is bowel involved, with protrusion through the enterocoele opening, then surgery is the only option. Before your decision to have or not to have surgery is made, make sure you collect all the information available including possible dynamic imaging. Prolapse is not just muscular weakness. It involves connective tissue. While physical therapy is important and nessesary, pre and post surgery, it can only manage a certain percentage of prolapse pre-surgery. You may be one of those individuals, which would be great. You need informed clinicians to clarify your personal specifics, then discuss these options of the various tools available with your clinicians so these tools can be applied appropriately to your specific prolapse. Maybe our moderator, Colleen, can steer you towards some good articles on the various surgeries with success and failure rates. Look at the methods used, the age groups, and any complicating medical issues. Good luck with this decision. Well rounded Information facilitates good outcomes.
UPArtist

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HI and Thank You for your reply it is so good to be able to talk with other women that are having the same issue as myself….I have bladder and utural prolapse am at stage 2 in addition to the prolapse I have pelvic muscle spasms I am seeing a therapist for this and have had much success with the pain and am able to use what is called a crystal wand at home so I am now about 90% pain free and only have to see her once a month now however with that being said the pessary (after 3 different fittings) didn’t work for me when it is in it causes me to spasm again it is a vicious circle my uro-gyn is proposing to sew the bladder up along with the ligaments and connective tissue and of course it is an elective surgery which is more than likely why I am having such a hard time making up my mind yes or no to the surgery I am having no problem with my bowel movements or urination it is just so dam uncomfortable and the more I do the lower it gets then I get spasm again… I would like to talk with women that have had this surgery just to hear first hand what they recommend recovery ect…the dr. and my therapist say that after surgery you can maintain a normal life I am also thinking about the hideaway for what erver reason I am scared to have this surgery…I have had ovary surgery in the past and didn’t feel this way???? thank you again for your post I don’t feel so alone now

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@tanglefoot

Hi Pizon

My mother is in her 80’s and she has a prolapse too. So as far as getting worse , I think the only thing we have to really worry about is that we can go pee okay and have bowel movements okay. My prolapse is not getting any worse since I have been wearing the Hideaway. It can only go to the opening of the vagina if you have a support garment on. It cannot stretch any further or go anywhere if we are wearing something to support it. If we don’t wear a support then of course the bladder can stretch further and further out of our vagina and will protrude quite significantly. Again, if we wear a support it has no where to go, it cannot stretch or fall out because the support is stopping it.

My prolapse has been a stage 3 for over two years now. I have no bowel issues and no urine issues. I eat healthy, I can exercise while wearing the Hideaway because it supports me and keeps my prolapse supported. I can go for walks, ride my bike and play tennis even. I am in my sixties so I am doing quite well living my life while managing my prolapse. Its scary at first when someone has a prolapse because you feel like your insides are going to fall out on the floor. This will not happen. The key is to do those pelvic floor exercises, eat well, don’t lift anything heavy as lifting will make the prolapse worse, try not to have a bad cough, that makes prolapse worse as well. Try not to be constipated as pushing, also pushes the prolapse out at the same time when you go to the bathroom. There is a trick to pushing. I fold up toilet paper and hold it with my hand against my vaginal opening so when I push for a bowel movement my prolapse does not come out because my hand / toilet paper is against the vaginal opening holding it in.

Try to relax Pizon. Its not that bad once you learn to manage a prolapse and work to strengthen the pelvic floor muscles that hold up our organs. I would rather see you try all the positive things before you venture into unknown territories like surgery. What do you think?

Tanglefoot

Jump to this post

Hello Tanglefoot…I do agree and am doing all that can be done with the therapist, the uro-gyn and @ home exercises I think if I didn’t have the muscle spasms it would be a no brainer to try the hideaway my regular gyn suggests I give it a couple of months and continue to lose the weight and maybe try the pessary one more time…I had luck for about a week and now believe it was the @ home therapy that may have moved it but now I know how to take it in and out… can you tell me with the hideaway dose it have a bulge on the pad? I guess I don’t understand how it holds back the buldge I am at stage 2 I have looked at her video on line maybe I will have to look again I know women live with this with nothing and that is not an option for me way to uncomfortable

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