Chronic Abdominal Bloating and Pain

Posted by geb @gloriaeb, Aug 17, 2015

I am a relatively healthy person with a problem “bloated belly”. My belly gets bigger as the day goes on; doesn’t matter if I eat, drink only water, my belly still gets more bloated. The bloat continues up the abdomen into the midriff area…I have to loosen bra or put on a bigger one. This happens everyday. Pretty good in the morning.

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I also suffer w severe bloat,pain n dizzy spells daily.ive lost 70 lbs, several CT scans n endo told barrettes esophagus.tortuous colon? My veins also throb.put on PPI which made me end up ambulatory enemas.(severe fecal impaction). Any suggestions out there?

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No pain here, notwithstanding psychological. I long for my lean uniform weight of 75 kg. Now I see myself as a humpty-dumpty, egg shapped, stick legs old man. What caused this?

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@kanaazpereira

Welcome to Connect, @swollengutguy.
I’m sorry to hear about your symptoms, but I want you to know that you’re not alone. I moved your discussion and combined it with this existing discussion on abdominal bloating so that you can meet the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

With the frequent urination, has your doctor ruled out bladder infection or UTI?

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See a Gastro Dr about possible endocrine pancreatic insufficiency or EPI. They have pills which act as enzymes to digest food. If so, Zenpep is easiest on your stomach. With CREON I had horrible stomach swelling , diarrhea and vomiting. Worth a shot to ask.

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@pamherman

See a Gastro Dr about possible endocrine pancreatic insufficiency or EPI. They have pills which act as enzymes to digest food. If so, Zenpep is easiest on your stomach. With CREON I had horrible stomach swelling , diarrhea and vomiting. Worth a shot to ask.

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I’ve been on Zenpep for 2 weeks now…so far the only reactions I have had is itchiness after taking it, which is aggravating but not enough to cause me to stop taking it.
I have found that I do experience discomfort if I consume pork as in a pork roast, however we don’t consume a lot of pork in our diet so it’s just something that I know to typically avoid.and yes I know Zenpep is derived from swine, but I don’t really know if that’s just my body or if that is a common issue. Either way, Zenpep is still the only solution that has worked for my EPI.

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@pamherman

See a Gastro Dr about possible endocrine pancreatic insufficiency or EPI. They have pills which act as enzymes to digest food. If so, Zenpep is easiest on your stomach. With CREON I had horrible stomach swelling , diarrhea and vomiting. Worth a shot to ask.

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When Jim first went on creon post Whipple surgery in 2018, it was $40 at Kmart for the prescription. When I went back for a refill the cost was in the hundreds. By the end of his "tour" with cancer and creon, we were in Medicare's catastrophic category for medications. It was a fortune. After Jim died I had three unopened bottles and researched what to do with them and found a website through the government in Wyoming which would accept unused and unopened medications. I think the 3 bottles were about $8000 worth of pills. I did get a nice acknowledgment letter from the department. I did call ahead to assure it was a legitimate program. Shame you had that expensive medication and it gave you grief and not support.

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@tarmansbks

When Jim first went on creon post Whipple surgery in 2018, it was $40 at Kmart for the prescription. When I went back for a refill the cost was in the hundreds. By the end of his "tour" with cancer and creon, we were in Medicare's catastrophic category for medications. It was a fortune. After Jim died I had three unopened bottles and researched what to do with them and found a website through the government in Wyoming which would accept unused and unopened medications. I think the 3 bottles were about $8000 worth of pills. I did get a nice acknowledgment letter from the department. I did call ahead to assure it was a legitimate program. Shame you had that expensive medication and it gave you grief and not support.

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I have tons of unopened CREON. I feel great on the Zenpep, it’s been a horrible two years.

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@grannydee

I’ve been on Zenpep for 2 weeks now…so far the only reactions I have had is itchiness after taking it, which is aggravating but not enough to cause me to stop taking it.
I have found that I do experience discomfort if I consume pork as in a pork roast, however we don’t consume a lot of pork in our diet so it’s just something that I know to typically avoid.and yes I know Zenpep is derived from swine, but I don’t really know if that’s just my body or if that is a common issue. Either way, Zenpep is still the only solution that has worked for my EPI.

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Have your Dr. call in an order for hydroxyzine HCL 50 mg tablets. The only thing that stops the itching and it doesn’t make you tired. Works right away!

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@grannydee

I’ve been on Zenpep for 2 weeks now…so far the only reactions I have had is itchiness after taking it, which is aggravating but not enough to cause me to stop taking it.
I have found that I do experience discomfort if I consume pork as in a pork roast, however we don’t consume a lot of pork in our diet so it’s just something that I know to typically avoid.and yes I know Zenpep is derived from swine, but I don’t really know if that’s just my body or if that is a common issue. Either way, Zenpep is still the only solution that has worked for my EPI.

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I wrote a reply but it’s down after a couple other posts. A pill that you will never itch against.

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@tarmansbks

When Jim first went on creon post Whipple surgery in 2018, it was $40 at Kmart for the prescription. When I went back for a refill the cost was in the hundreds. By the end of his "tour" with cancer and creon, we were in Medicare's catastrophic category for medications. It was a fortune. After Jim died I had three unopened bottles and researched what to do with them and found a website through the government in Wyoming which would accept unused and unopened medications. I think the 3 bottles were about $8000 worth of pills. I did get a nice acknowledgment letter from the department. I did call ahead to assure it was a legitimate program. Shame you had that expensive medication and it gave you grief and not support.

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My insurance covers it all. Optima

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Try pancreatic enzymes off of Amazon. Tell your Dr if it works and get Zenpep if you have to stay on enzymes. Also, Dexilent would help too.

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@pamherman

I have tons of unopened CREON. I feel great on the Zenpep, it’s been a horrible two years.

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Wyoming medication donation program has a website explaining how it works. I hated to waste the medication if someone with limited assets could benefit. Wyoming's legislature passed the program. Toll free 855-257-5041.

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Thanks to all that replied. This is the first time being able to discuss with anyone that has EPI, etc. it’s been lonely! I’ll certainly look into the suggestions about the itching. Congrats to anyone with good insurance!
I’m thankful for Medicare and the supplemental insurances, but believe me, I’ve had to be vigilant about every expense, I am currently waiting to hear from the prescription assistance program and hope to receive help with the Zenpep costs. No matter how you plan for retirement, NO ONE ever plans to have prescriptions that cost $14,400 a year!
I’ve worked all my life and I don’t expect anything for free, but the costs of Zenpep is way beyond the means of the majority of people that may need it. Especially since there are so many people that were misdiagnosed for so many years. I hope no one has to go through 30+ years of being told it was:
1. Too nervous 🙄
2. Eating the wrong foods (they assumed because I live in the south that all I did was lay around and eat fried chicken) … they actually said that to me.🤑
3. IBS-D😵‍💫
4. It’s all in your mind😳
Etc, etc, etc.
I had one Dr tell me to eat more oatmeal (it was plainly stated in my records that I am allergic to oatmeal). That’s how I knew she NEVER even looked at my records.
Anyone else? I don’t expect an medical professional to be my “bestie” but why in the world did they ever choose a profession that is centered around patient care and then get defensive and blame the patient when they are seeking help?
Akarumba…please!
Let’s spread the word, pancreatic issues are no joke and don’t get a lot of press apart from diabetes and cancer, but any pancreatic issue increases the risk of developing into a life altering condition. I guess I’ve turned into a pancreatic missionary 🏃‍♀️🏃‍♀️🏃‍♀️🙃

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