Share this:
KATHY G
@wishingforhealth

Posts: 3
Joined: Aug 23, 2015

I AM A 52 YEAR OLD WOMAN WHO BECAME ILL AT 24. [...]

Posted by @wishingforhealth, Aug 23, 2015

I AM A 52 YEAR OLD WOMAN WHO BECAME ILL AT 24. I ALWAYS SUFFERED FROM SEVERE CONSTIPATION, BUT IN MY EARLY 20’S I STARTED EXPERIENCING SEVERE FATIQUE, JOINT PAIN AND SEVERE GASTO ATTACKS. AFTER MANY DOCTOR VISITS I WAS DIAGNOSED WITH GENETIC BLOOD DISEASES AND CONNECTIVE TISSUE DISEASE. I HAVE HAD 13 SURGERIES AND EACH ONE RESULTED IN INFECTION AND VERY LONG RECOVERIES. I AM NOW AT A POINT THAT THE ONLY WAY TO KEEP ME ALIVE, DUE TO THE BLOCKAGES, IS TO DO A FULL COLECTOMY AND RE-ATTACH THE RECTOCILE. SINCE I HAVE CONNECTIVE TISSUE DISEASE I WAS TOLD THAT REMOVING THE COLON IS NOT AN OPTION BECAUSE THE RESECTION WILL DETACH AND I WILL BECOME SEPTIC. THEY CAN’T FIX THE RECTOCILE BECAUSE THEY SAID THAT AFTER SO MANY ABDOMINAL SURGERIES, THE SCAR TISSUE IS VERY EXTENSIVE AND IF THEY REMOVE IT, DUE TO THE CONNECTIVE TISSUE DISEASE, I WILL BECOME SEPTIC. AFTER 10 DIFFERENT EXTENSIVE CONSULTS, I WAS BASICALLY TOLD THAT MY ONLY OPTION WAS TO GO HOME, WHICH IS WHERE I AM ALL THE TIME BECAUSE I AM TOO WEAK, FATIQUED, NAUSOUS AND FILLED WITH JOINT PAIN TO GO ANYWHERE. I STILL CAN’T BELIEVE THERE IS NOT A WAY FOR A SURGEON TO HELP ME, EVEN IF THERE WAS A POSSIBILITY OF PUTTING IN AN NG TUBE . ANY THOUGHTS OF SUGGESTIONS WOULD BE GREATLY APPRECIATED!!

REPLY

Please login or register to post a reply.