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Joined: Jul 27, 2012

I am 49 years old, and was diagnosed with moderate to severe

Posted by @eldir2006, Jul 27, 2012

I am 49 years old, and was diagnosed with moderate to severe Crohn’s disease when I was 21. From my first surgery in 1984 until 2005, things went fairly well, then my world was turned upside down, bowel obstruction after bowel obstruction, in and out of the ER, hospitalized every few weeks. Mid 2005, they did surgery to remove more small bowel. The obstructions still continued, same scenerio. Then, in Dec. 2005, another surgery for more bowel removal. After that, I was put on Remicaid, and azathioprine. The complete bowel obstructions have stopped, had a few partial, but for the most part things had been going well with the new treatment.

Now, because of the surgeries, there are adhesions (which get worse after each surgery). I have been experiencing lots of abdominal pain, been though the wringer with all the tests. No active crohn’s, and no clear explanation for the pain other than adhesions. The continues to get more frequent, it is getting more and more difficult to enjoy life in general. I am trying to find a surgeon who would be willing to do surgery to clear the adhesions, but I am told that with crohn’s disease no general surgeon wants to do surgery just for adhesions. I would have to deal with the pain. There has to be a solution, just because we have crohn’s, shouldn’t mean we have to live life in constant pain if there is a means to alleviate it.


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