Hypothermia anyone?

Hi @pdoubrava. I so relate. Taking pics of your unusual temp readings or anything else you can visually show like bp, heart rate, rash, swelling, bruising, vessel damage……at least helps others “see”. I have my electric blankets, even 110 summer, where I live laying now on my throne 🤣 and ice packs to help with throwing off blankets when needed in no heat on winter🙃 I have not found answers and just go with it so hope your journey finds them with quickest healing possible🌈

@law59 these symptoms are just so bizarre. My cardiologists gave me new diagnosis of inappropriate sinus tachycardia. Referred back to electrophysiologist and have consulted with neuros office. Our long covid neuro is out of office for another week but they have a compassionate nurse communicating with neuro in office. Validated that i dont have to run to ER when i experience hypothermia. I have to try hard not to let that happen again. Next step is getting the ME/CFS and PEM diagnoses. Right now i am experiencing a crash bigtime. Barely eating and almost completely bedridden. I did unload dishwasher this am and lo and behold finally took a shower. Showering has been challenging for me from the beginning. Its the standing in one place and heat/humidity. I love heated blankets btw...i have one too...my cat Bentley. Thank u for ur response. Sending good energy ur way!!

No one else I know has had these symptoms. I have ALWAYS run hot. Grew up in SF and never owned a coat- sweaters and windbreakers only-IF I wore them. But my temp was a very standard 98.6 unless I was sick which would first dip by a point or two then rise. Got every childhood illness chickenpox, measles, (no rubella), mumps and occasional colds and Mono with strep in 5th grade.
Starting at the very beginning of the pandemic, I came down with symptoms that I later came to recognize as COVID 19. The major effects I had were high fever, aches, SORE THROAT, and upper respiratory symptoms- nothing notable in the lungs. After 2 months I finally tested and they said it was epstein-barr. This was before they had any accurate COVID 19 testing. Afterward, my temp never went back to normal. I have had 2 vaccines which I thoroughly regret because my 2nd and 3rd cases of COVID 19 lab verified were worse than the first.
At this time, my normal ranges between 97.3 and 96.5 but I am constantly overheating, even at those body temperatures. The scary part is when I start feeling off, getting achy, then chilling. If I think to take my temp, it will be anywhere from 94.5 to 95.3. An immediate warm bath is my solution and a hop into bed to take a little rest. Then my temp goes back to 95.3+ and I feel hot. BTW, I am way past menopausal-69.

Hey, I feel what you're going through... any exertion and I start to heat up, then sweat, feel sick and then monitor my temperature as it drops as low as 92.9. I have to patiently wait to get any energy back, then start the ordeal over...

Oof! I have always tended to run low, but now my temperature goes up with exertion - as high as 101 at times. I had a thermoregulatory sweat test at Mayo a few months ago and they confirmed that I don't sweat, so my body can't lower my temperature when I work hard or get too warm. No one really paid any attention until I talked with the neurologist at Mayo she was able to diagnose the problem and give counsel on how to handle it.

Strange how LC affects our bodies' ability to regulate temperature, in various different ways, isn't it? I'm so sorry - I hope you are able to find some answers. I would suggest neurology, if you have access to a good one. The local neurologist I went to here was no help - it took a super-specialist like Mayo's to focus mine out.

@kratzer9 whew ill tell what i am recovering from a crash in energy bigtime. PEM sucks. The fact that i can communicate with someone with the temp dropping symptom too is soooo comforting. Jumping in this support group has been an amazing experience for me. Sending u tons of good energy my friend!! Its so good to know that im not alone in this surreal experience. We are all going to have wonderful fine tuned coping skills by the time they cure us 🙂

@bereese 92.9!! believe u have pulled ahead in the race for lowest body temp in this group. 🙂 so bizarre. Sending u warm positive energy since my temp is normal right now.