@autumn12575 I haven’t heard from you and wondered if you’ve learned anything about what’s going on with your health. If you wish, please check in with us. Becky

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Hi hun!! I would love to talk more in person if u can pm me I can give u my ph #, I can roll out more questions as they come to mind! This is a disease that u have to advocate for urself for unfortunately…I just got off of my 105 antibiotics in just 4 yrs! Have an appointment with Ortho surgeon here in an hr but pls get back with me! I will do my best to answer n help u figure this out!! Xo 😘. Lisa

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@autumn12575 I haven’t heard from you and wondered if you’ve learned anything about what’s going on with your health. If you wish, please check in with us. Becky

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Good morning @autumn12575 . You do sound like you’re on a merry-go-round going nowhere! All the different symptoms and odd occurrences but no answers. My sister and I went thru the same things as you. My sister finally went to Univ of Michigan and was diagnosed with an autoimmune disease. She really liked her care at U of M. I, finally, went to U of Colorado and have been happy with my care. You mentioned that you were thinking of U of Michigan. I say, go for it! But, first, do your homework. Write down the issues that bother you the most, how long you’ve had the symptoms, and the doctors you have seen. And go with an open mind. Take a friend or family member with you—to take notes and to be extra ears
Does this sound reasonable? Can you do this and then let me know what happens?

You might want to read this discussion also:
https://connect.mayoclinic.org/discussion/tips-for-getting-a-proper-diagnosis-of-an-autoimmune-disease/

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Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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Hi, I haven’t heard anything yet. I’m still waiting on one test result that still is not back yet since Feb 19th. It’s getting a bit irritating that my Doc appointment has been changed twice now because of it. I really wish I knew why it’s taking so long.

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Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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