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nrake

Hypersomnia

Posted by @nrake in Sleep Health, Jul 27, 2011

I am desperately searching for successful treatments of idiopathic hypersomnia. Has anyone else been diagnosed with this?

Tags: sleep problems, hypersomnia

deniseb likes this
kim99

Posted by @kim99, Aug 15, 2011

I was diagnosed with this several years ago. I have been taking Ritalin as prescribed and it has helped considerably. It has really made a difference in my life.

LottieMouse likes this
lottiemouse

Posted by @lottiemouse, Oct 27, 2011

Could you explain how it's made a difference to you and if you'd tried anything else previously?

kim99

Posted by @kim99, Oct 28, 2011

I hadn't tried anything before starting the Ritain. It took some time and adjustments to the dosage for me to feel better without getting jittery or hyper. I take a combination of dosages including extended release throughout the day. The biggest difference I have felt is that I'm not exhausted just trying to drag myself through the day anymore. I still get tired if I haven't gotten enough sleep but it is not the all consuming exhaustion that I had been battling.

deniseb and sweetsue like this
whamo01

Posted by @whamo01, Sep 12, 2011

I was origionaly diegnosed with narcolepsy 5 years ago but recently found out it was IH. The meds help some but i feel my life slipping away more and more.

LottieMouse likes this
lottiemouse

Posted by @lottiemouse, Oct 27, 2011

Me too and feel the same way. I wish I could find an effective treatment. Started on modafinil, the effects of which soon stopped and my symptoms then seemed worse. Recently started on dexamfetamine which does not seem to be doing much. I feel so useless, to my family especially

lottiemouse

Posted by @lottiemouse, Oct 27, 2011

That is my question too, exactly......and desperate

anon43599718

Posted by @anon43599718, Nov 19, 2011

Methylphenidate. I take up to 90mg per day, a combination of 10 & 20 mg. I am alert and awake. It has been a life saver.

nrake

Posted by @nrake, Nov 30, 2011

Although I wouldnt wish this diseaae on anyone, it's nice to know I'm not alone. Many people have never heard of it and look at me like I'm crazy. Tired of medication side effects and fighting prescription insurance denials!

deniseb likes this

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