How hard is it to get a doctor to test for pulmonary hypertension!!!
I started out with idiopathic dialated cardiomyopathy 5 years ago; that went away. But, I have had this problem where if I exert myself to a certain point, it’s like someone threw a switch and all of the oxygen in the room turned into helium and I cant get a breath…. litteraly! I can breath just fine but it doesn’t change. It can last for up to 3- 5 minutes depending on how hard the exertion is. My ejection fraction is in the 40’s and my pulmomary function test was good, but it keeps happening. Now I’m completely out of energy and get short of breath just walking a block or so. I’m a big man and was in great shape. I still look good but feel like a 80 year old man. I have told my doctors how I feel and what I think it might be; and ive been to the emergency room over and over again but they keep checking my heart because of the past problems, and send me home. It’s as if they don’t believe me when I tell them what’s happening. I am on disabillity and only have medicaid for coverage so I am at the mercy of the Denver health system and they are clueless. Has anyone else had these problems or can give me any advice. HELP!